› Forums › General Melanoma Community › Good Appointment
- This topic has 30 replies, 9 voices, and was last updated 10 years, 5 months ago by NYKaren.
- Post
-
- November 20, 2013 at 1:49 am
I saw Dr. Pavlick today. I don't know why, but I was a wreck before-hand.
When I messed myself up by staying off Tafilnar for 3 weeks, I wound up with 17 small brain mets, which were gamma knifed. Luckily, my lymph nodes were still clear.
I have a follow-up MRI on Dec 16th and then seeing neurologist right after that.
As I'm typing this, I'm wondering why I didn't ask her about phase II PD1 trial; we just discussed phase III, and how it wouldn't be good for me. I will call tomorrow to ask about phase II trial.
ANYWAY, her plan is, after brain is deemed stable, to add another MEK inhibitor. Apparently, they've gotten really good, long-term results with this combo, and hopefully that will hold me over until PD1 is FDA approved, before 2015.
I'll find out about phase II trial and report back.
Karen
- Replies
-
-
- November 20, 2013 at 2:55 am
Sounds like very good news, Karen! I will pray that those brain mets are really fried and that the BRAF/MEK combo works as well for you as it has for many others. This could be the start of something good, Baby!
-
- November 20, 2013 at 11:12 am
Good news and plan! Thanks for the update. I'm keeping you in my prayers.
God bless you.
Gina
-
- November 20, 2013 at 2:23 pm
That's wonderful news Karen!! I hope everything continues to go well for you!
Maureen
-
- November 20, 2013 at 2:23 pm
That's wonderful news Karen!! I hope everything continues to go well for you!
Maureen
-
- November 20, 2013 at 2:23 pm
That's wonderful news Karen!! I hope everything continues to go well for you!
Maureen
-
- November 20, 2013 at 3:07 pm
Great news Karen! Thanks for the update.
Amy
-
- November 20, 2013 at 3:07 pm
Great news Karen! Thanks for the update.
Amy
-
- November 20, 2013 at 3:07 pm
Great news Karen! Thanks for the update.
Amy
-
- November 21, 2013 at 3:44 pm
Srr you hd a good visit also.Get on to your next course of treatment asap.Wish i wiould have met you .Nice to put a face to another fighter.In my prayers.Keep on beating thr brast. Al
-
- November 21, 2013 at 3:44 pm
Srr you hd a good visit also.Get on to your next course of treatment asap.Wish i wiould have met you .Nice to put a face to another fighter.In my prayers.Keep on beating thr brast. Al
-
- November 21, 2013 at 3:44 pm
Srr you hd a good visit also.Get on to your next course of treatment asap.Wish i wiould have met you .Nice to put a face to another fighter.In my prayers.Keep on beating thr brast. Al
-
- November 21, 2013 at 3:44 pm
Srr you hd a good visit also.Get on to your next course of treatment asap.Wish i wiould have met you .Nice to put a face to another fighter.In my prayers.Keep on beating thr brast. Al
-
- November 21, 2013 at 3:44 pm
Srr you hd a good visit also.Get on to your next course of treatment asap.Wish i wiould have met you .Nice to put a face to another fighter.In my prayers.Keep on beating thr brast. Al
-
- November 24, 2013 at 9:29 pm
Hi, just saw this now. No side effects except tired from anesthesia and I was last case, 8:00 pm. Not all hospitals use anesthesia, but I couldn't imagine lying still for 2 hours. I was told that when there a lot of small mets it's time-consuming to get them all mapped out and zapped. If I had been a morning case, I would have gone to work the next day…I took one more day to sleep. Fingers crossed–3 weeks till brain MRI & if still clear, time to add Menkinist and pray a lot!
karen
-
- November 24, 2013 at 9:29 pm
Hi, just saw this now. No side effects except tired from anesthesia and I was last case, 8:00 pm. Not all hospitals use anesthesia, but I couldn't imagine lying still for 2 hours. I was told that when there a lot of small mets it's time-consuming to get them all mapped out and zapped. If I had been a morning case, I would have gone to work the next day…I took one more day to sleep. Fingers crossed–3 weeks till brain MRI & if still clear, time to add Menkinist and pray a lot!
karen
-
- November 24, 2013 at 9:29 pm
Hi, just saw this now. No side effects except tired from anesthesia and I was last case, 8:00 pm. Not all hospitals use anesthesia, but I couldn't imagine lying still for 2 hours. I was told that when there a lot of small mets it's time-consuming to get them all mapped out and zapped. If I had been a morning case, I would have gone to work the next day…I took one more day to sleep. Fingers crossed–3 weeks till brain MRI & if still clear, time to add Menkinist and pray a lot!
karen
-
- November 21, 2013 at 3:44 pm
Srr you hd a good visit also.Get on to your next course of treatment asap.Wish i wiould have met you .Nice to put a face to another fighter.In my prayers.Keep on beating thr brast. Al
- You must be logged in to reply to this topic.