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GI oncologist

Forums General Melanoma Community GI oncologist

  • Post
    lhaley
    Participant

      I've been having stomach pains and had an ultra sound by a local Doctor.  It showed possible calcification of the gallbladder or stones that had adhered to the gallbladder. He set me up with a local surgeon. Meanwhile I sent a copy of the scans to my melanoma specialist to compare.

      I've been having stomach pains and had an ultra sound by a local Doctor.  It showed possible calcification of the gallbladder or stones that had adhered to the gallbladder. He set me up with a local surgeon. Meanwhile I sent a copy of the scans to my melanoma specialist to compare. It really irritated me that the local hospital said they had nothing to compare to and I had handed them my scans from 2 months ago…..   Anyway, the surgeon seemed wary to operate on  me because of my history and wanted to wait till my next PET.  Just got a call from my melanoma specialist that they agree that the ultrasound is not clear cut.  They are setting me up with a GI oncologist that is part of their team.   Here's to hoping that this is just a strange way to present gallstones!! 

      Linda

      Stage IV since 06

    Viewing 15 reply threads
    • Replies
        Sherron
        Participant

          Thinking of you Linda, and hoping this is nothing…..

          Take Care,

          Sherron,wife to Jim FOREVER

          Sherron
          Participant

            Thinking of you Linda, and hoping this is nothing…..

            Take Care,

            Sherron,wife to Jim FOREVER

            Carol Taylor
            Participant

              Praying for you, Linda! Glad you sent your info to your melanoma dr and that the GI onc finds nothing.  Hopefully you've just got really unphotogenic guts. Lord, in Your mercy, look after Linda. Amen.

              Grace and peace,

              Carol

              Carol Taylor
              Participant

                Praying for you, Linda! Glad you sent your info to your melanoma dr and that the GI onc finds nothing.  Hopefully you've just got really unphotogenic guts. Lord, in Your mercy, look after Linda. Amen.

                Grace and peace,

                Carol

                washoegal
                Participant

                  Looking at your picture, you're what may internist would have called the perfect candidate for gall stones.  No offense here but light skinned and slightly overweight (that describes me too).  Here's hoping that's what it is.  A gall bladder removed laparoscopicly is a piece of cake. 

                  Good Luck!

                  Mary

                  Stage 3

                  washoegal
                  Participant

                    Looking at your picture, you're what may internist would have called the perfect candidate for gall stones.  No offense here but light skinned and slightly overweight (that describes me too).  Here's hoping that's what it is.  A gall bladder removed laparoscopicly is a piece of cake. 

                    Good Luck!

                    Mary

                    Stage 3

                      lhaley
                      Participant

                        No offense taken! I'd love for it to be gall stones!

                        lhaley
                        Participant

                          No offense taken! I'd love for it to be gall stones!

                        akls
                        Participant

                          Linda,

                          I had my gallbladder out 6 mos. before my mel. diagnosis.  My ultrasound showed I believe calcificaiton and enlargement of gall bladder.  They went in laproscopically, and ended up doing an old fashioned open gallbladder removal because I had an egg sized stone and my gallbladder was like leather because I'd had symptoms years earlier that I ignored and it just got worse over time.  My sister's gallbladder was full of stones, and it showed up weird on the ultrasound too.  I guess I'm just trying to give you our experience because gallbladder problems are really common.  My mom has hers out too.

                          I really hope that's what yours is.  I know it's a pretty uncommon place for mel to go.  I remember thinking after my mel diagnosis that maybe the "stone" was mel, but I know they sent it out to pathology, of course they probably wouldn't have tested for mel.

                          Good luck and I'll be praying for stones.

                          Amy S. from Michigan

                          akls
                          Participant

                            Linda,

                            I had my gallbladder out 6 mos. before my mel. diagnosis.  My ultrasound showed I believe calcificaiton and enlargement of gall bladder.  They went in laproscopically, and ended up doing an old fashioned open gallbladder removal because I had an egg sized stone and my gallbladder was like leather because I'd had symptoms years earlier that I ignored and it just got worse over time.  My sister's gallbladder was full of stones, and it showed up weird on the ultrasound too.  I guess I'm just trying to give you our experience because gallbladder problems are really common.  My mom has hers out too.

                            I really hope that's what yours is.  I know it's a pretty uncommon place for mel to go.  I remember thinking after my mel diagnosis that maybe the "stone" was mel, but I know they sent it out to pathology, of course they probably wouldn't have tested for mel.

                            Good luck and I'll be praying for stones.

                            Amy S. from Michigan

                            vivian
                            Participant

                              Linda,

                              Four weeks after my IIIa diagnosis and four days before my CLND, I had big pain in my lower abdomen.  When it moved to the left side, the doc said it was probably an appendicitis.  That seemed just too coincidental to me, and I was convinced it was really melanoma spread to the bowel.  But…it actually was just an acute appendix.  Odds are yours is just gallstones.    I am praying that is true and holding you in the light. 

                              Warmly,

                              Lear

                              vivian
                              Participant

                                Linda,

                                Four weeks after my IIIa diagnosis and four days before my CLND, I had big pain in my lower abdomen.  When it moved to the left side, the doc said it was probably an appendicitis.  That seemed just too coincidental to me, and I was convinced it was really melanoma spread to the bowel.  But…it actually was just an acute appendix.  Odds are yours is just gallstones.    I am praying that is true and holding you in the light. 

                                Warmly,

                                Lear

                                FormerCaregiver
                                Participant

                                  Sorry to read that you have been experiencing stomach pains. When is the earliest that you
                                  can have a PET scan?

                                  Frank from Australia

                                    lhaley
                                    Participant

                                      Frank,

                                      I had my last PET/CT 2 months ago along with a diagnostic CT since they are watching lung nodules.  Had another CT last Friday when the ultrasound wasn't certain.  Next one is scheduled for May 8th but hopefully the appointment with the GI onc will move it up.   One of my many concerns is that the CT did show some lymph nodes that were commented on but they were small (4mm). Not sure if these are of concern or not since the local hospital thought to mention them but then didn't bother to compare with the CD that I gave them……..  I know that my mel specialist did look at it today but I don't know yet what his thoughts are.  In the e-mail the other day he felt that they could not be causing the pain that I am experiencing. 

                                      FormerCaregiver
                                      Participant

                                        It is difficult to be 100% certain of what's causing the problem without knowing the
                                        results of the next PET scan. Perhaps the nature of the pain might give us a clue. For
                                        example, is the pain constant, is it localised or felt over a large area?

                                        Here is a detailed article about gallstones:
                                        http://digestive.niddk.nih.gov/ddiseases/pubs/gallstones/

                                        This is a link to the symptoms:
                                        http://digestive.niddk.nih.gov/ddiseases/pubs/gallstones/#4

                                        Hope this info helps.

                                        Frank from Australia

                                        lhaley
                                        Participant

                                          Thank you for the link.  Mine is not presenting normally but I have to tell you that none of my illnesses have ever presented normally. ;-(      Foods do bother me but not the ones you would think.

                                          When I had a kidney stone my GP (before advanced mel days) was convinced it was my sciatica.  I went through 9 months of physical therapy. Finally when I collapsed at work from the pain they figured out what it was. By that time the stone was the size of a ping pong ball and took major surgery.  My pain was nowhere near the kidney!

                                          When the dentist numbs my mouth for dental work I won't even tell you what part of my body also gets numb!!   I'm just wired very strangely. 

                                          My pain is in the gallbladder area but my entire right side hurts.  The CT scan only showed a few lymph nodes that were 4 mm and in another area they were subcentimeter (not quite sure why they didn't give a number). The ultrasound did show gallbladder issues but whether it's stones or mel is another question.

                                          I do have an appointment for Tuesday with the Dr. that my mel specialist has chosen.  I guess I will have answers then.

                                          Thanks,

                                          Linda

                                          lhaley
                                          Participant

                                            Thank you for the link.  Mine is not presenting normally but I have to tell you that none of my illnesses have ever presented normally. ;-(      Foods do bother me but not the ones you would think.

                                            When I had a kidney stone my GP (before advanced mel days) was convinced it was my sciatica.  I went through 9 months of physical therapy. Finally when I collapsed at work from the pain they figured out what it was. By that time the stone was the size of a ping pong ball and took major surgery.  My pain was nowhere near the kidney!

                                            When the dentist numbs my mouth for dental work I won't even tell you what part of my body also gets numb!!   I'm just wired very strangely. 

                                            My pain is in the gallbladder area but my entire right side hurts.  The CT scan only showed a few lymph nodes that were 4 mm and in another area they were subcentimeter (not quite sure why they didn't give a number). The ultrasound did show gallbladder issues but whether it's stones or mel is another question.

                                            I do have an appointment for Tuesday with the Dr. that my mel specialist has chosen.  I guess I will have answers then.

                                            Thanks,

                                            Linda

                                            FormerCaregiver
                                            Participant

                                              It is difficult to be 100% certain of what's causing the problem without knowing the
                                              results of the next PET scan. Perhaps the nature of the pain might give us a clue. For
                                              example, is the pain constant, is it localised or felt over a large area?

                                              Here is a detailed article about gallstones:
                                              http://digestive.niddk.nih.gov/ddiseases/pubs/gallstones/

                                              This is a link to the symptoms:
                                              http://digestive.niddk.nih.gov/ddiseases/pubs/gallstones/#4

                                              Hope this info helps.

                                              Frank from Australia

                                              lhaley
                                              Participant

                                                Frank,

                                                I had my last PET/CT 2 months ago along with a diagnostic CT since they are watching lung nodules.  Had another CT last Friday when the ultrasound wasn't certain.  Next one is scheduled for May 8th but hopefully the appointment with the GI onc will move it up.   One of my many concerns is that the CT did show some lymph nodes that were commented on but they were small (4mm). Not sure if these are of concern or not since the local hospital thought to mention them but then didn't bother to compare with the CD that I gave them……..  I know that my mel specialist did look at it today but I don't know yet what his thoughts are.  In the e-mail the other day he felt that they could not be causing the pain that I am experiencing. 

                                              FormerCaregiver
                                              Participant

                                                Sorry to read that you have been experiencing stomach pains. When is the earliest that you
                                                can have a PET scan?

                                                Frank from Australia

                                                washoegal
                                                Participant

                                                  my oh my we are a strange bunch … praying for the recommendation to be gall bladder surgey – 🙂

                                                   

                                                  Sorry just couldn't help myself on that one! 

                                                    lhaley
                                                    Participant

                                                      When my husband told my son what was going on he said the exact same thing!  Here we are excited that it could be something so boring!  Of course that was with Dr. #1 who refered us to Dr. #2 who then seemed to wonder. 

                                                      Linda

                                                      lhaley
                                                      Participant

                                                        When my husband told my son what was going on he said the exact same thing!  Here we are excited that it could be something so boring!  Of course that was with Dr. #1 who refered us to Dr. #2 who then seemed to wonder. 

                                                        Linda

                                                        JerryfromFauq
                                                        Participant

                                                          Yes, I've often commented on the strange things that mel makes us hope we have.  ///////pneumonia?, Infections, Stones, Yep ANYTHING BUT—-.

                                                          lINDA, PULLING FOR YOU.

                                                          JerryfromFauq
                                                          Participant

                                                            Yes, I've often commented on the strange things that mel makes us hope we have.  ///////pneumonia?, Infections, Stones, Yep ANYTHING BUT—-.

                                                            lINDA, PULLING FOR YOU.

                                                          washoegal
                                                          Participant

                                                            my oh my we are a strange bunch … praying for the recommendation to be gall bladder surgey – 🙂

                                                             

                                                            Sorry just couldn't help myself on that one! 

                                                            ValinMtl
                                                            Participant

                                                              Dear Linda.  You're so on top of everything.  I hate to say it but I too hope it's just pesky old gallstones.  All the best, Val

                                                              ValinMtl
                                                              Participant

                                                                Dear Linda.  You're so on top of everything.  I hate to say it but I too hope it's just pesky old gallstones.  All the best, Val

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