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? for anyone doing/has done Ipi

Forums General Melanoma Community ? for anyone doing/has done Ipi

  • Post
    Sharyn
    Participant

    Hi Ipi patients

    Hi Ipi patients

    I will be starting Ipi in a couple of weeks. Just wondering whether side effects are immediate, or do they show up after a week, month? I'm asking because Jim and I are considering a little vacation after I start Ipi, but if I'm going to be sick, we'll forego those plans. Thanks. BTW, I got my staples, stitches and drain out from the mastectomy, and I'm doing really well! I even have a temporary "falsey" to use until I get my prosthetic breast in 4 more weeks. At least it's better than the 4 pairs of socks I had stuffed into my bra! LOL!!!

    Hugs

    Sharyn

    Stage IV 

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  • Replies
      Rodensir
      Participant

      I did it while it was still in testing.  

      Take the vacation and if side effects hit then deal with them there.  Although not fun they can be handled and passing up the opportunity for a vacation is not what I would do.  

      Just know that what is, is and if you feel like taking a vaca take it now.

      just my thought.

      Allan

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      Rodensir
      Participant

      I did it while it was still in testing.  

      Take the vacation and if side effects hit then deal with them there.  Although not fun they can be handled and passing up the opportunity for a vacation is not what I would do.  

      Just know that what is, is and if you feel like taking a vaca take it now.

      just my thought.

      Allan

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        Vermont_Donna
        Participant

        Hi Sharyn, Glad to hear the update and that things sound like they are going well. I dont know of course the side effects of Ipi, but a vacation sure sounds good…where might you go?? Hugs, Vermont_Donna

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        Vermont_Donna
        Participant

        Hi Sharyn, Glad to hear the update and that things sound like they are going well. I dont know of course the side effects of Ipi, but a vacation sure sounds good…where might you go?? Hugs, Vermont_Donna

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      Bonnie Lea
      Participant

      Don't know about the drug stuff, but Sharyn you and Jim have a blast –  Cabin?  Lobister? some place exotic? like hmmm Pickering? hahah.  I am glad to hear about your staple and stitch and maybe drain removals.  Yeah for you!!!

       

      Good Times and plenty of love come your way.

      Bonnie

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      Bonnie Lea
      Participant

      Don't know about the drug stuff, but Sharyn you and Jim have a blast –  Cabin?  Lobister? some place exotic? like hmmm Pickering? hahah.  I am glad to hear about your staple and stitch and maybe drain removals.  Yeah for you!!!

       

      Good Times and plenty of love come your way.

      Bonnie

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      Jerry from Cape Cod
      Participant

      Sharyn,

      Take the vacation.  Immediate, severe reactions are RARE with ipi, generally GI system.  Your medical team will give you the symptoms to be on the lookout for, that will need quick attention.

      Jerry from Cape Cod

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      Jerry from Cape Cod
      Participant

      Sharyn,

      Take the vacation.  Immediate, severe reactions are RARE with ipi, generally GI system.  Your medical team will give you the symptoms to be on the lookout for, that will need quick attention.

      Jerry from Cape Cod

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      Jim in Denver
      Participant

      Hi Sharyn,

      I have received 2 high dose Ipi infustions (10mg/kg) so far beginning in early August.   I am 5 weeks out from the first one, and had a 3 week interval between the first and second.  I am also taking Temador (400 mg daily) for 4 days each 3 week cycle.  So far I have had minimal side effects, but GI issues apparently can come up, and skin rash is not uncommon.  I would endorse a getaway for you and Jim because initial side effects from Ipi seem to range from minimal to moderate, and you two deserve some quality time together.  You sounld like you are in good spirits, and I send many good thoughts and wishes your way.

      Best,

      Jim

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      Jim in Denver
      Participant

      Hi Sharyn,

      I have received 2 high dose Ipi infustions (10mg/kg) so far beginning in early August.   I am 5 weeks out from the first one, and had a 3 week interval between the first and second.  I am also taking Temador (400 mg daily) for 4 days each 3 week cycle.  So far I have had minimal side effects, but GI issues apparently can come up, and skin rash is not uncommon.  I would endorse a getaway for you and Jim because initial side effects from Ipi seem to range from minimal to moderate, and you two deserve some quality time together.  You sounld like you are in good spirits, and I send many good thoughts and wishes your way.

      Best,

      Jim

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      Jim M.
      Participant

      Hi Sharyn,

       Haven't talked to you in awhile. Go for the vacation! I had 4 doses of Ipi. Most side effects were mild until I got hypophysitis (swelling of the pituitary). That occurred when I was about to get the 5th dose. My opinion is it would be better to take the vacation early in the Ipi tx. Have a blast!! (and I don't mean a side effect!!)

      God Bless,

       Jim M.

       Stage 3C

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      Jim M.
      Participant

      Hi Sharyn,

       Haven't talked to you in awhile. Go for the vacation! I had 4 doses of Ipi. Most side effects were mild until I got hypophysitis (swelling of the pituitary). That occurred when I was about to get the 5th dose. My opinion is it would be better to take the vacation early in the Ipi tx. Have a blast!! (and I don't mean a side effect!!)

      God Bless,

       Jim M.

       Stage 3C

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