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? for anyone doing/has done Ipi
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? for anyone doing/has done Ipi

› Forums › General Melanoma Community › ? for anyone doing/has done Ipi

  • Post
    • September 4, 2010 at 6:58 pm
    Sharyn
    Participant

      Hi Ipi patients

      Hi Ipi patients

      I will be starting Ipi in a couple of weeks. Just wondering whether side effects are immediate, or do they show up after a week, month? I'm asking because Jim and I are considering a little vacation after I start Ipi, but if I'm going to be sick, we'll forego those plans. Thanks. BTW, I got my staples, stitches and drain out from the mastectomy, and I'm doing really well! I even have a temporary "falsey" to use until I get my prosthetic breast in 4 more weeks. At least it's better than the 4 pairs of socks I had stuffed into my bra! LOL!!!

      Hugs

      Sharyn

      Stage IV 

    Viewing 9 reply threads
    • Replies
        • September 4, 2010 at 9:20 pm
        Rodensir
        Participant

          I did it while it was still in testing.  

          Take the vacation and if side effects hit then deal with them there.  Although not fun they can be handled and passing up the opportunity for a vacation is not what I would do.  

          Just know that what is, is and if you feel like taking a vaca take it now.

          just my thought.

          Allan

            • September 4, 2010 at 10:43 pm
            Vermont_Donna
            Participant

              Hi Sharyn, Glad to hear the update and that things sound like they are going well. I dont know of course the side effects of Ipi, but a vacation sure sounds good…where might you go?? Hugs, Vermont_Donna

              • September 4, 2010 at 10:43 pm
              Vermont_Donna
              Participant

                Hi Sharyn, Glad to hear the update and that things sound like they are going well. I dont know of course the side effects of Ipi, but a vacation sure sounds good…where might you go?? Hugs, Vermont_Donna

              • September 4, 2010 at 9:20 pm
              Rodensir
              Participant

                I did it while it was still in testing.  

                Take the vacation and if side effects hit then deal with them there.  Although not fun they can be handled and passing up the opportunity for a vacation is not what I would do.  

                Just know that what is, is and if you feel like taking a vaca take it now.

                just my thought.

                Allan

                • September 4, 2010 at 10:45 pm
                Bonnie Lea
                Participant

                  Don't know about the drug stuff, but Sharyn you and Jim have a blast –  Cabin?  Lobister? some place exotic? like hmmm Pickering? hahah.  I am glad to hear about your staple and stitch and maybe drain removals.  Yeah for you!!!

                   

                  Good Times and plenty of love come your way.

                  Bonnie

                  • September 4, 2010 at 10:45 pm
                  Bonnie Lea
                  Participant

                    Don't know about the drug stuff, but Sharyn you and Jim have a blast –  Cabin?  Lobister? some place exotic? like hmmm Pickering? hahah.  I am glad to hear about your staple and stitch and maybe drain removals.  Yeah for you!!!

                     

                    Good Times and plenty of love come your way.

                    Bonnie

                    • September 5, 2010 at 1:06 am
                    Jerry from Cape Cod
                    Participant

                      Sharyn,

                      Take the vacation.  Immediate, severe reactions are RARE with ipi, generally GI system.  Your medical team will give you the symptoms to be on the lookout for, that will need quick attention.

                      Jerry from Cape Cod

                      • September 5, 2010 at 1:06 am
                      Jerry from Cape Cod
                      Participant

                        Sharyn,

                        Take the vacation.  Immediate, severe reactions are RARE with ipi, generally GI system.  Your medical team will give you the symptoms to be on the lookout for, that will need quick attention.

                        Jerry from Cape Cod

                        • September 5, 2010 at 4:53 am
                        Jim in Denver
                        Participant

                          Hi Sharyn,

                          I have received 2 high dose Ipi infustions (10mg/kg) so far beginning in early August.   I am 5 weeks out from the first one, and had a 3 week interval between the first and second.  I am also taking Temador (400 mg daily) for 4 days each 3 week cycle.  So far I have had minimal side effects, but GI issues apparently can come up, and skin rash is not uncommon.  I would endorse a getaway for you and Jim because initial side effects from Ipi seem to range from minimal to moderate, and you two deserve some quality time together.  You sounld like you are in good spirits, and I send many good thoughts and wishes your way.

                          Best,

                          Jim

                          • September 5, 2010 at 4:53 am
                          Jim in Denver
                          Participant

                            Hi Sharyn,

                            I have received 2 high dose Ipi infustions (10mg/kg) so far beginning in early August.   I am 5 weeks out from the first one, and had a 3 week interval between the first and second.  I am also taking Temador (400 mg daily) for 4 days each 3 week cycle.  So far I have had minimal side effects, but GI issues apparently can come up, and skin rash is not uncommon.  I would endorse a getaway for you and Jim because initial side effects from Ipi seem to range from minimal to moderate, and you two deserve some quality time together.  You sounld like you are in good spirits, and I send many good thoughts and wishes your way.

                            Best,

                            Jim

                            • September 7, 2010 at 12:44 am
                            Jim M.
                            Participant

                              Hi Sharyn,

                               Haven't talked to you in awhile. Go for the vacation! I had 4 doses of Ipi. Most side effects were mild until I got hypophysitis (swelling of the pituitary). That occurred when I was about to get the 5th dose. My opinion is it would be better to take the vacation early in the Ipi tx. Have a blast!! (and I don't mean a side effect!!)

                              God Bless,

                               Jim M.

                               Stage 3C

                              • September 7, 2010 at 12:44 am
                              Jim M.
                              Participant

                                Hi Sharyn,

                                 Haven't talked to you in awhile. Go for the vacation! I had 4 doses of Ipi. Most side effects were mild until I got hypophysitis (swelling of the pituitary). That occurred when I was about to get the 5th dose. My opinion is it would be better to take the vacation early in the Ipi tx. Have a blast!! (and I don't mean a side effect!!)

                                God Bless,

                                 Jim M.

                                 Stage 3C

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