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Follow-up: Melanoma on my rt thumb nail bed
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Follow-up: Melanoma on my rt thumb nail bed

› Forums › General Melanoma Community › Follow-up: Melanoma on my rt thumb nail bed

  • Post
    • July 6, 2015 at 9:47 pm
    jvictoria
    Participant

      Background…

      > Got Diagnosed this June after a missed diagnosis last July 2014; colorless melanoma on the right thumb nail bed.

      > Went to Moffitt (Tampa, FL) for second opinion and decided to have initial treatment done there

      > Had distal right thumb amputated and sentinal node performed

      Results are back… Amputation went as well as can be expected. Tumor 5mm depth and Clark level of 5.0mm. Sentinel node came back 2 of 10 nodes positive for cancer. Current recommendation is a follow up complete lymph node dissection in right arm and then potentially go on a clinical trial.

      I have been getting some conflicts on the benefits of the dissection… some people are saying that the full node removal sholdn't be done and I should go directly on a trial… then I hear you cannot go on a trial unless you have all your nodes removed.

      All your thought and knowledge are greatly appreciated…

      Also, curently thinking of getting a second opinoin at MD Anderson or Sloan.

      Juan

       

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    • Replies
        • July 9, 2015 at 4:41 am
        Marianne quinn
        Participant

          Juan-my husband had melanoma under his thumbnail too. It's rare and it is thought to be somewhat different than other types of melanoma. My husband had a lymphendectomy and was in a clinical trial of yervoy. He is NED.

          i would recommend a lymphendectomy . The only research we found on melanoma of the thumbnail with node involvement was from Australia in 1995. This was before immunotherapy was invented. The study showed increased survival rates in those patients who had a lymphendectomy. 

          Whatever decision you make, it will be the right one for you.  Feel free to contact me through this site. Good luck. Marianne

            • July 17, 2015 at 5:23 pm
            jvictoria
            Participant

              Tried messaging you but no replies… I'm at juanvictoria at hotmail.com

              • July 17, 2015 at 5:23 pm
              jvictoria
              Participant

                Tried messaging you but no replies… I'm at juanvictoria at hotmail.com

                • July 17, 2015 at 5:23 pm
                jvictoria
                Participant

                  Tried messaging you but no replies… I'm at juanvictoria at hotmail.com

                • July 9, 2015 at 4:41 am
                Marianne quinn
                Participant

                  Juan-my husband had melanoma under his thumbnail too. It's rare and it is thought to be somewhat different than other types of melanoma. My husband had a lymphendectomy and was in a clinical trial of yervoy. He is NED.

                  i would recommend a lymphendectomy . The only research we found on melanoma of the thumbnail with node involvement was from Australia in 1995. This was before immunotherapy was invented. The study showed increased survival rates in those patients who had a lymphendectomy. 

                  Whatever decision you make, it will be the right one for you.  Feel free to contact me through this site. Good luck. Marianne

                  • July 9, 2015 at 4:41 am
                  Marianne quinn
                  Participant

                    Juan-my husband had melanoma under his thumbnail too. It's rare and it is thought to be somewhat different than other types of melanoma. My husband had a lymphendectomy and was in a clinical trial of yervoy. He is NED.

                    i would recommend a lymphendectomy . The only research we found on melanoma of the thumbnail with node involvement was from Australia in 1995. This was before immunotherapy was invented. The study showed increased survival rates in those patients who had a lymphendectomy. 

                    Whatever decision you make, it will be the right one for you.  Feel free to contact me through this site. Good luck. Marianne

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