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First chemo on this past Monday

Forums General Melanoma Community First chemo on this past Monday

  • Post
    yoopergirl
    Participant

    will be getttting an infusion every 3 weeks with Paklitaxel and after 3 hours and then Carboplatin for 30 minutes. Yesterday I was sleeping most of the day,, today is better. Praying that this is the the one!!!! is anyone on this combo?

    will be getttting an infusion every 3 weeks with Paklitaxel and after 3 hours and then Carboplatin for 30 minutes. Yesterday I was sleeping most of the day,, today is better. Praying that this is the the one!!!! is anyone on this combo?

Viewing 23 reply threads
  • Replies
      Linny
      Participant

      I'm not on this combo, but BOY am I glad to hear you're OK! Am praying that this works for you.

      Linny
      Participant

      I'm not on this combo, but BOY am I glad to hear you're OK! Am praying that this works for you.

      Linny
      Participant

      I'm not on this combo, but BOY am I glad to hear you're OK! Am praying that this works for you.

      aldakota22
      Participant

      Good to see your post.Prayers sent your way that this is the combo .Beat the Beast.  Al

      aldakota22
      Participant

      Good to see your post.Prayers sent your way that this is the combo .Beat the Beast.  Al

      aldakota22
      Participant

      Good to see your post.Prayers sent your way that this is the combo .Beat the Beast.  Al

      bikerwife
      Participant

      its so good to hear from you. prayers sent your way.

      bikerwife
      Participant

      its so good to hear from you. prayers sent your way.

      bikerwife
      Participant

      its so good to hear from you. prayers sent your way.

      Swanee
      Participant

      …..no I'm not,  but sending good luck to you and best wishes that this will be the one!!  Keep us posted to your progress and success with this treatment.

      Swanee

      Swanee
      Participant

      …..no I'm not,  but sending good luck to you and best wishes that this will be the one!!  Keep us posted to your progress and success with this treatment.

      Swanee

      Swanee
      Participant

      …..no I'm not,  but sending good luck to you and best wishes that this will be the one!!  Keep us posted to your progress and success with this treatment.

      Swanee

      sjl
      Participant

      My husband is on this same regiman.  His first treatment was on August 13.  He just had his 4th treatment today.  He has done very well.  After the first treatment, he slept most of the next day, missed a half day of work the following day, and a little here and there the next week.  Round two went better, and he never missed a beat after round 3.  For round 3, we left at 5:30 am and got back home around 10 pm on a Thursday.  He made it to work the next day and then to a football game that night.  The following day he drove 2 hours to a baseball game and we didn't get home until 2am.  He did fine on Sunday and on Monday we had to drive 2 hours to see another doctor.  Other than the doctor visits, he missed no work.  He was also undergoing stereotactic radiation for a secondary lung cancer at the same time.  The great news is that he had a 75% reduction in tumors after the second treatment.  In 3 more weeks he'll have another scan and see where he stands.  As we were told today, he is doing well but not out of the woods yet.  His is mucosal melanoma of the nasal cavity, stage 3c with one lymph node involvement in the neck.

      I hope this works for both of you!  I'd be interested in hearing how things go for you as not many seem to be on this treatment.  My husband is BRAF and CKit negative, not eligible for clinical trials and not able to take IL-2.  He was so bad in August that one doctor was surprised to see him alive at a visit 2 weeks ago.  He feels fine except for some mild neuropathy.  From what I can gather, there is nothing that works for everybody and what works on one may not work on another.  I'm putting my faith in God that this will do the trick for my husband.  I know a lot of prayers are being said for him and I'll pray for you as well.

      Good luck and stay positive!

      sjl
      Participant

      My husband is on this same regiman.  His first treatment was on August 13.  He just had his 4th treatment today.  He has done very well.  After the first treatment, he slept most of the next day, missed a half day of work the following day, and a little here and there the next week.  Round two went better, and he never missed a beat after round 3.  For round 3, we left at 5:30 am and got back home around 10 pm on a Thursday.  He made it to work the next day and then to a football game that night.  The following day he drove 2 hours to a baseball game and we didn't get home until 2am.  He did fine on Sunday and on Monday we had to drive 2 hours to see another doctor.  Other than the doctor visits, he missed no work.  He was also undergoing stereotactic radiation for a secondary lung cancer at the same time.  The great news is that he had a 75% reduction in tumors after the second treatment.  In 3 more weeks he'll have another scan and see where he stands.  As we were told today, he is doing well but not out of the woods yet.  His is mucosal melanoma of the nasal cavity, stage 3c with one lymph node involvement in the neck.

      I hope this works for both of you!  I'd be interested in hearing how things go for you as not many seem to be on this treatment.  My husband is BRAF and CKit negative, not eligible for clinical trials and not able to take IL-2.  He was so bad in August that one doctor was surprised to see him alive at a visit 2 weeks ago.  He feels fine except for some mild neuropathy.  From what I can gather, there is nothing that works for everybody and what works on one may not work on another.  I'm putting my faith in God that this will do the trick for my husband.  I know a lot of prayers are being said for him and I'll pray for you as well.

      Good luck and stay positive!

      sjl
      Participant

      My husband is on this same regiman.  His first treatment was on August 13.  He just had his 4th treatment today.  He has done very well.  After the first treatment, he slept most of the next day, missed a half day of work the following day, and a little here and there the next week.  Round two went better, and he never missed a beat after round 3.  For round 3, we left at 5:30 am and got back home around 10 pm on a Thursday.  He made it to work the next day and then to a football game that night.  The following day he drove 2 hours to a baseball game and we didn't get home until 2am.  He did fine on Sunday and on Monday we had to drive 2 hours to see another doctor.  Other than the doctor visits, he missed no work.  He was also undergoing stereotactic radiation for a secondary lung cancer at the same time.  The great news is that he had a 75% reduction in tumors after the second treatment.  In 3 more weeks he'll have another scan and see where he stands.  As we were told today, he is doing well but not out of the woods yet.  His is mucosal melanoma of the nasal cavity, stage 3c with one lymph node involvement in the neck.

      I hope this works for both of you!  I'd be interested in hearing how things go for you as not many seem to be on this treatment.  My husband is BRAF and CKit negative, not eligible for clinical trials and not able to take IL-2.  He was so bad in August that one doctor was surprised to see him alive at a visit 2 weeks ago.  He feels fine except for some mild neuropathy.  From what I can gather, there is nothing that works for everybody and what works on one may not work on another.  I'm putting my faith in God that this will do the trick for my husband.  I know a lot of prayers are being said for him and I'll pray for you as well.

      Good luck and stay positive!

        yoopergirl
        Participant

        such good news, hope I fall into tha catagory, I had the radisation first so a down with the side effects of that, oherwise would be feeeling much better.

        yoopergirl
        Participant

        such good news, hope I fall into tha catagory, I had the radisation first so a down with the side effects of that, oherwise would be feeeling much better.

        yoopergirl
        Participant

        such good news, hope I fall into tha catagory, I had the radisation first so a down with the side effects of that, oherwise would be feeeling much better.

      shellebrownies
      Participant

      My husband was on this combo and it helped him for a while (but he was very, very sick when he started treatment, otherwise it may have helped more). I wish you great success!

      Michelle

      shellebrownies
      Participant

      My husband was on this combo and it helped him for a while (but he was very, very sick when he started treatment, otherwise it may have helped more). I wish you great success!

      Michelle

      shellebrownies
      Participant

      My husband was on this combo and it helped him for a while (but he was very, very sick when he started treatment, otherwise it may have helped more). I wish you great success!

      Michelle

      jcmp
      Participant

      Yes, my husband is on this combination.  He has had three low dose infusions, one per week.  It was started after one week of IL-2 because of rapid tumor growth.  Not sure if it is working yet. 

        Laurie from maine
        Participant

        HI

        I am so glad you posted.  I am sorry you had such a rough time of it, I am glad you are getting energy back    I hope this treatment is the one for you and side effects are minimal!!

        Keep us posted! 

        laurie from maine

        Laurie from maine
        Participant

        HI

        I am so glad you posted.  I am sorry you had such a rough time of it, I am glad you are getting energy back    I hope this treatment is the one for you and side effects are minimal!!

        Keep us posted! 

        laurie from maine

        Laurie from maine
        Participant

        HI

        I am so glad you posted.  I am sorry you had such a rough time of it, I am glad you are getting energy back    I hope this treatment is the one for you and side effects are minimal!!

        Keep us posted! 

        laurie from maine

      jcmp
      Participant

      Yes, my husband is on this combination.  He has had three low dose infusions, one per week.  It was started after one week of IL-2 because of rapid tumor growth.  Not sure if it is working yet. 

      jcmp
      Participant

      Yes, my husband is on this combination.  He has had three low dose infusions, one per week.  It was started after one week of IL-2 because of rapid tumor growth.  Not sure if it is working yet. 

      MikeWI
      Participant

      Yoopergirl,

      Glad to hear from you, I am glad you are OK.  The chemo you are doing, is that through Dr Albertini?

      MikeWI

      Stage 2c currently NED

        yoopergirl
        Participant

        No I e switched back to the MARSHFIELD CLININC IN mINoqua WI with the blessing of Madsion , I could not do the cliinicl trial so hope this one works, I have falllen a couple of time, my legs muscles are soft. still need my 3 prong cane.I had radiation on y upper and lower spine for 14 treatments, no taste buds.

        yoopergirl
        Participant

        No I e switched back to the MARSHFIELD CLININC IN mINoqua WI with the blessing of Madsion , I could not do the cliinicl trial so hope this one works, I have falllen a couple of time, my legs muscles are soft. still need my 3 prong cane.I had radiation on y upper and lower spine for 14 treatments, no taste buds.

        yoopergirl
        Participant

        No I e switched back to the MARSHFIELD CLININC IN mINoqua WI with the blessing of Madsion , I could not do the cliinicl trial so hope this one works, I have falllen a couple of time, my legs muscles are soft. still need my 3 prong cane.I had radiation on y upper and lower spine for 14 treatments, no taste buds.

      MikeWI
      Participant

      Yoopergirl,

      Glad to hear from you, I am glad you are OK.  The chemo you are doing, is that through Dr Albertini?

      MikeWI

      Stage 2c currently NED

      MikeWI
      Participant

      Yoopergirl,

      Glad to hear from you, I am glad you are OK.  The chemo you are doing, is that through Dr Albertini?

      MikeWI

      Stage 2c currently NED

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