MRF-Logo2019-Horizontal-RGB
Finished OpDivo Treatment 3/21/2019
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Finished OpDivo Treatment 3/21/2019

› Forums › General Melanoma Community › Finished OpDivo Treatment 3/21/2019

  • This topic has 12 replies, 11 voices, and was last updated 5 years ago by Raco.
  • Post
    • April 16, 2019 at 4:32 pm
    Raco
    Participant

      SORRY FIRST ONE POSTED AS ANONYMOUS

      WHOOOOOP WHOOOOP LAST Treatment  3/21/2019.  NOW CONSIDERED N.E.D
      I also have been back to my Dr. April 4th for blood work and to see him for further instructions.
      He said he was pleased with my treatments and all my scans which were normal.
      My biggest complaints have been PAIN, LOOSING All MY HAIR and ITCHING.
      I am on Prednisone 10mg a day for now and will start decreasing over the net few week and see if any pain comes back. Keep Fingers Crossed.    ( anyone else had symptions last past final treatment?)
          
      What a journey kinda strange not going to treatment every other Thursday but Im sure Ill get over it.
      Wishing all my hair will return lol. 
      My wish and hope that we all can get to the place where we are NED.
      Raco

    Viewing 10 reply threads
    • Replies
        • April 16, 2019 at 4:37 pm
        BillB
        Participant

          CONGRATS!!!!!!!!!!!!!!!!!

          • April 16, 2019 at 4:54 pm
          gopher38
          Participant

            Good for you.

            • April 16, 2019 at 5:04 pm
            sister of patient
            Participant

              Excellent news!! Congratulations and may NED be your forever state!!! Best wishes!

              Barb

              • April 16, 2019 at 6:25 pm
              lkb
              Participant

                Congratulations!!! I hope you do something fun every other Thursday to celebrate your new freedom.

                • April 16, 2019 at 6:58 pm
                MarkR
                Participant

                  Congratulations- hope you stay NED!!

                  • April 16, 2019 at 10:44 pm
                  Lucygoose
                  Participant

                    Yay!!!!!! Love good news.  Congratulations!

                    • April 17, 2019 at 12:58 am
                    Bubbles
                    Participant

                      YAY!!!  Way to rock it out!!!  Congrats!  Celeste

                      • April 17, 2019 at 12:54 pm
                      jbronicki
                      Participant

                        Congratulations Raco!  Wishing you much hair in the future!  That is very exciting to finish treatment and be NED, nothing better.

                        • April 17, 2019 at 4:21 pm
                        Casitas1
                        Participant

                          Congratulations Robbie! Unfortunately, I am still dealing with joint pain and body aches 2.5 years post treatment. I am down to 4mg. prednisone and going any lower than that really hurts! Just gonna live with it i guess… I have alopecia so  been bald since teenager it really is easier to maintain. I was wondering how your (Brother in law?) Ronnie is doing after his diagnosis?

                          Best, Paul

                            • May 3, 2019 at 1:45 pm
                            Raco
                            Participant

                              Paul, thank you for asking, Ronnie is doing well, he went through surgery and has had several radiation treatments, Face and mouth hurt alot,  and his taste buds are really off.  Hope that retrnes. Looks like he has a major SunBurn on his right cheek.

                              Also, I am on my 5mg a day of prednisome right now but after this weekend, I am suppose to stop all together.  I went from 20MG per day to 15MG per day for two weeks than to 10mg a day for two weeks than, 10mg one day & 5mg  the net day for 1 week.  Now this past week I have been on only 5mg day until Sunday.  Than Done. I HOPE THE PAIN DOES NOT RETURN.

                              Do you have any adverse symptions from being on prednisome all the time?

                            • April 18, 2019 at 11:56 pm
                            Riven
                            Participant

                              Congratulations Raco!! I am so happy for you! Ipray for a speed return to your normal health, and rutine! I have three treatments left myself! (Once every four weeks) I hope to join the NED club soon!

                              Much love, Becca

                              • April 22, 2019 at 4:09 pm
                              Raco
                              Participant

                                thanks to all who replyed. appreciate it. Yes, lets hope and pray that we all become NED 

                            Viewing 10 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics