Finished ippi

Glad you made it through Greg! Not sure about the rash and blotches, probably not super troubling but if it worries you just let your doc know. My legs get super itchy these days but with no rash… and my last infusion was in Feb! (I go back in 2 weeks to start maintanence doses… hopefully those go smoothly too).

All the best,

Glad you made it through Greg! Not sure about the rash and blotches, probably not super troubling but if it worries you just let your doc know. My legs get super itchy these days but with no rash… and my last infusion was in Feb! (I go back in 2 weeks to start maintanence doses… hopefully those go smoothly too).

All the best,

Glad you made it through Greg! Not sure about the rash and blotches, probably not super troubling but if it worries you just let your doc know. My legs get super itchy these days but with no rash… and my last infusion was in Feb! (I go back in 2 weeks to start maintanence doses… hopefully those go smoothly too).

All the best,

I used 1% hydrocortisone cream to get rid of my rash after Ipi.

I confess I found my GP (general practitioner) and the melanoma specialist nurse much more helpful than my oncologist about the 'little stuff' that hung on after Ipi treatment.

Firsty, I got a major flare up of side effects two months later, so be aware that can happen.

Second, I never really sorted out the diarrhoea – it was like I had developed Irritable Bowel Syndrome. My GP helped me modify my diet and I cope just fine with it now, although I take a lot of deitary supplements!

I used 1% hydrocortisone cream to get rid of my rash after Ipi.

I confess I found my GP (general practitioner) and the melanoma specialist nurse much more helpful than my oncologist about the 'little stuff' that hung on after Ipi treatment.

Firsty, I got a major flare up of side effects two months later, so be aware that can happen.

Second, I never really sorted out the diarrhoea – it was like I had developed Irritable Bowel Syndrome. My GP helped me modify my diet and I cope just fine with it now, although I take a lot of deitary supplements!

I used 1% hydrocortisone cream to get rid of my rash after Ipi.

I confess I found my GP (general practitioner) and the melanoma specialist nurse much more helpful than my oncologist about the 'little stuff' that hung on after Ipi treatment.

Firsty, I got a major flare up of side effects two months later, so be aware that can happen.

Second, I never really sorted out the diarrhoea – it was like I had developed Irritable Bowel Syndrome. My GP helped me modify my diet and I cope just fine with it now, although I take a lot of deitary supplements!

Did Ipi and then Pembro.  

After ipi, I had basically no side effects.  Pain from bone tumors went away (yay).  Did not show reduction though (suggestive of swelling, we pushed for pembro anyway, Doc was very supportive).  

Just had Pembro #19 (I think).  I've always had dry skin issues, mostly on my hands.  I've developed very dry hands and patchy dry feet now.  I've had that since about September October of last year (2015).  

Docs provided some topical steroids, which have helped (Clobetasol), but I try to limit use as they can be damaging to skin long term.  I've gotten to a decent managed point using extra-greasy eucerin and nitrile gloves at night.  Still gets itchy during the day.  
 

Probably not troubling, but something to keep the docs aprised of and work with staff (nurses or your derm) to control.  It is most likely not a big deal, but I always like (and suggest) you tell your docs about any changes.  

Did Ipi and then Pembro.  

After ipi, I had basically no side effects.  Pain from bone tumors went away (yay).  Did not show reduction though (suggestive of swelling, we pushed for pembro anyway, Doc was very supportive).  

Just had Pembro #19 (I think).  I've always had dry skin issues, mostly on my hands.  I've developed very dry hands and patchy dry feet now.  I've had that since about September October of last year (2015).  

Docs provided some topical steroids, which have helped (Clobetasol), but I try to limit use as they can be damaging to skin long term.  I've gotten to a decent managed point using extra-greasy eucerin and nitrile gloves at night.  Still gets itchy during the day.  
 

Probably not troubling, but something to keep the docs aprised of and work with staff (nurses or your derm) to control.  It is most likely not a big deal, but I always like (and suggest) you tell your docs about any changes.  

Did Ipi and then Pembro.  

After ipi, I had basically no side effects.  Pain from bone tumors went away (yay).  Did not show reduction though (suggestive of swelling, we pushed for pembro anyway, Doc was very supportive).  

Just had Pembro #19 (I think).  I've always had dry skin issues, mostly on my hands.  I've developed very dry hands and patchy dry feet now.  I've had that since about September October of last year (2015).  

Docs provided some topical steroids, which have helped (Clobetasol), but I try to limit use as they can be damaging to skin long term.  I've gotten to a decent managed point using extra-greasy eucerin and nitrile gloves at night.  Still gets itchy during the day.  
 

Probably not troubling, but something to keep the docs aprised of and work with staff (nurses or your derm) to control.  It is most likely not a big deal, but I always like (and suggest) you tell your docs about any changes.