› Forums › General Melanoma Community › finding information on childhood melanoma is proving difficult
- This topic has 6 replies, 2 voices, and was last updated 12 years, 1 month ago by rlaraia.
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- February 20, 2012 at 8:30 pm
My daughter was diagnosed stage IIIb at the age of 4. She is 6 now and has had a WLE to remove the melanoma as well as a lymphadenectomy. In October 2011 she completed 1 year of interferon and remains NED at this time. We have been trying to research information since her diagnosis in July 2010 and have not been able to find much of anything. Most of the information about melanoma as it applies to children under the age of 10 has come from only two paraent that we have met along the way who also have children who were diagnosed at a very young age. Her Drs.
My daughter was diagnosed stage IIIb at the age of 4. She is 6 now and has had a WLE to remove the melanoma as well as a lymphadenectomy. In October 2011 she completed 1 year of interferon and remains NED at this time. We have been trying to research information since her diagnosis in July 2010 and have not been able to find much of anything. Most of the information about melanoma as it applies to children under the age of 10 has come from only two paraent that we have met along the way who also have children who were diagnosed at a very young age. Her Drs. are as informative as they can be but even the info they provide mainly based on adults. I would like to find other parents who are willing to share their stories and any information resources they have found. We are very greatful for the knowlege we have aquired but feel like there must be more out there. It is simply difficult to grasp that there is no why or how this happens
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- February 20, 2012 at 10:30 pm
My heart goes out to you having to deal with this with your little one. I found this article informative (my son was 20 when he was diasgnosed which is consiered the upper end of "pediatric")
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- February 20, 2012 at 10:30 pm
My heart goes out to you having to deal with this with your little one. I found this article informative (my son was 20 when he was diasgnosed which is consiered the upper end of "pediatric")
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- February 20, 2012 at 10:30 pm
My heart goes out to you having to deal with this with your little one. I found this article informative (my son was 20 when he was diasgnosed which is consiered the upper end of "pediatric")
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- March 11, 2012 at 12:34 am
Sorry for the late response to your post, but I don't visit the site as often as I used to. My daughter was diagnosed 3B at age 7 and followed the same treatment you described. She is now 12 and coming up on 5 years NED. There are a few parents of kids with melanoma who keep in touch via facebook / email and would be happy to talk to you about our experiences post-treatment. Feel free to email me at [email protected]
Bo
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- March 11, 2012 at 12:34 am
Sorry for the late response to your post, but I don't visit the site as often as I used to. My daughter was diagnosed 3B at age 7 and followed the same treatment you described. She is now 12 and coming up on 5 years NED. There are a few parents of kids with melanoma who keep in touch via facebook / email and would be happy to talk to you about our experiences post-treatment. Feel free to email me at [email protected]
Bo
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- March 11, 2012 at 12:34 am
Sorry for the late response to your post, but I don't visit the site as often as I used to. My daughter was diagnosed 3B at age 7 and followed the same treatment you described. She is now 12 and coming up on 5 years NED. There are a few parents of kids with melanoma who keep in touch via facebook / email and would be happy to talk to you about our experiences post-treatment. Feel free to email me at [email protected]
Bo
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