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Feedback – Nivolumab vs Ipilimumab CheckMate 238 Trial

Forums General Melanoma Community Feedback – Nivolumab vs Ipilimumab CheckMate 238 Trial

  • Post
    jvictoria
    Participant

      Hi All,

      Thinking of getting on this Trial… anyone one it? Thoughts / Words of Wisdom?

      Stage IIIb Melanoma

      Recent Axila Disection

      Thanks!!!

    Viewing 8 reply threads
    • Replies
        arthurjedi007
        Participant

          At 3b I would say go for it. I've had both seperately at stage 4. They are the standard for that stage. Actually I'm still on the nivo.

          Artie

          arthurjedi007
          Participant

            At 3b I would say go for it. I've had both seperately at stage 4. They are the standard for that stage. Actually I'm still on the nivo.

            Artie

            arthurjedi007
            Participant

              At 3b I would say go for it. I've had both seperately at stage 4. They are the standard for that stage. Actually I'm still on the nivo.

              Artie

              dentholla
              Participant

                Juan, my husband Todd is currently in this trial – week 8 at Texas Oncology / Baylor Dallas.  He is also stage lllb and we felt this was the best thing going for our situation.  While we don't know which drug he is on he has his suspicions.   He is 39 and we have 3 young boys (7, 5, 5) and working to stay NED and fight this beast.

                The trial itself has been pretty uneventful for us with little to no side effects.  I observed a little fatigue after infusion days but that is to be expected.  He’s had a little change in stool but nothing requiring OTC drugs to address.  His bloodwork is within normal to expected ranges so far and praying it stays that way.  What I think is funny is he often remarks about his superhuman healing powers now.  His incision line healed up almost overnight.  Before the first infusion it was really red and irritated (neckline where he shaves) and within a few days the redness went away and he has had zero irritation for 8 weeks now.  Funny.  J  Also, he wears a Batman shirt and cape to every infusion – it’s his lucky shirt and the nurses/doctors/patients love it. 

                I hope our experience helps you make an informed decision.  We feel very blessed to be a part of this trial and want to help try to determine if this course of treatment will aid in prevention of reoccurrence.  We are certainly hoping that’s the case for him.  Best wishes to you.

                ~Kristi

                dentholla
                Participant

                  Juan, my husband Todd is currently in this trial – week 8 at Texas Oncology / Baylor Dallas.  He is also stage lllb and we felt this was the best thing going for our situation.  While we don't know which drug he is on he has his suspicions.   He is 39 and we have 3 young boys (7, 5, 5) and working to stay NED and fight this beast.

                  The trial itself has been pretty uneventful for us with little to no side effects.  I observed a little fatigue after infusion days but that is to be expected.  He’s had a little change in stool but nothing requiring OTC drugs to address.  His bloodwork is within normal to expected ranges so far and praying it stays that way.  What I think is funny is he often remarks about his superhuman healing powers now.  His incision line healed up almost overnight.  Before the first infusion it was really red and irritated (neckline where he shaves) and within a few days the redness went away and he has had zero irritation for 8 weeks now.  Funny.  J  Also, he wears a Batman shirt and cape to every infusion – it’s his lucky shirt and the nurses/doctors/patients love it. 

                  I hope our experience helps you make an informed decision.  We feel very blessed to be a part of this trial and want to help try to determine if this course of treatment will aid in prevention of reoccurrence.  We are certainly hoping that’s the case for him.  Best wishes to you.

                  ~Kristi

                  dentholla
                  Participant

                    Juan, my husband Todd is currently in this trial – week 8 at Texas Oncology / Baylor Dallas.  He is also stage lllb and we felt this was the best thing going for our situation.  While we don't know which drug he is on he has his suspicions.   He is 39 and we have 3 young boys (7, 5, 5) and working to stay NED and fight this beast.

                    The trial itself has been pretty uneventful for us with little to no side effects.  I observed a little fatigue after infusion days but that is to be expected.  He’s had a little change in stool but nothing requiring OTC drugs to address.  His bloodwork is within normal to expected ranges so far and praying it stays that way.  What I think is funny is he often remarks about his superhuman healing powers now.  His incision line healed up almost overnight.  Before the first infusion it was really red and irritated (neckline where he shaves) and within a few days the redness went away and he has had zero irritation for 8 weeks now.  Funny.  J  Also, he wears a Batman shirt and cape to every infusion – it’s his lucky shirt and the nurses/doctors/patients love it. 

                    I hope our experience helps you make an informed decision.  We feel very blessed to be a part of this trial and want to help try to determine if this course of treatment will aid in prevention of reoccurrence.  We are certainly hoping that’s the case for him.  Best wishes to you.

                    ~Kristi

                    jvictoria
                    Participant

                      Thanks everyone for the great replies… I signed the papers yesterday. I hope I get in before the window closes next month.

                        Nmgn8019
                        Participant
                          Hi Juan….I am enlisted as well. I am from The Netherlands, male and 35 years of age.
                          Good luck!
                          Nmgn8019
                          Participant
                            Hi Juan….I am enlisted as well. I am from The Netherlands, male and 35 years of age.
                            Good luck!
                            Nmgn8019
                            Participant
                              Hi Juan….I am enlisted as well. I am from The Netherlands, male and 35 years of age.
                              Good luck!
                            jvictoria
                            Participant

                              Thanks everyone for the great replies… I signed the papers yesterday. I hope I get in before the window closes next month.

                              jvictoria
                              Participant

                                Thanks everyone for the great replies… I signed the papers yesterday. I hope I get in before the window closes next month.

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