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Dr. Schuchter – U of Penn, BRAF trial

Forums General Melanoma Community Dr. Schuchter – U of Penn, BRAF trial

  • Post
    TracyLee
    Participant

    Hi y'all,

    I will be going to U of Penn in Philly to join the BRAF+ extended access clinical trial.

    Anyone else currently in that trial?

    I'm hoping to see Dr. Schuchter once, get the meds, and then mainly be followed here in Delaware, as I do with Dr. Sharfman at Hopkins.
     

    I really don't want to haul back and forth to Philly more than I have to, I'm almost out of time off at work. I am blessed to have both short and long term disability offered at work, but hate to go that route.

    Hi y'all,

    I will be going to U of Penn in Philly to join the BRAF+ extended access clinical trial.

    Anyone else currently in that trial?

    I'm hoping to see Dr. Schuchter once, get the meds, and then mainly be followed here in Delaware, as I do with Dr. Sharfman at Hopkins.
     

    I really don't want to haul back and forth to Philly more than I have to, I'm almost out of time off at work. I am blessed to have both short and long term disability offered at work, but hate to go that route.

    What should I expect at my first appointment for this trial? Long visit, short visit?

    And, finally, I didn't mesh well with Dr. Schuchter last consult. However, I'm deferring to Dr. Sharfman's opinion that she is the one to see for this trial. I'll suck it up, I guess!

    Thanks as always to the posse! Final ipi on Thursday, then BRAF as long as it will work. I see IL2 in my future, hopefully, wayyyyyyy down the road.

    TracyLee

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  • Replies
      shellebrownies
      Participant

      Tracy,

      That is Don's next step if/when the chemo is no longer effective. Best of luck; I hope it works well for you!

      Michelle, wife of Don

      shellebrownies
      Participant

      Tracy,

      That is Don's next step if/when the chemo is no longer effective. Best of luck; I hope it works well for you!

      Michelle, wife of Don

      StevenK
      Participant

      I am praying that you have a great response to this treatment, Tracy. Best of luck to you!

      Steve

      StevenK
      Participant

      I am praying that you have a great response to this treatment, Tracy. Best of luck to you!

      Steve

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