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Did scan yesterday

Forums General Melanoma Community Did scan yesterday

  • Post
    dfeng
    Participant

    After one cycle of phase 2 trail, the scheduled three month scan was done yesterday.

    Crossing fingers, the result would be on Thursday appointment, or maybe my doc will call me today to discuss it.

    We just hope it doesn't grow for more than 20%. And then I can still rely on this trail.

    Extremely fatigue during this treatment. I am still working during the no treatment days, but my energy goes down quickly.

    Pain is not very big issue, but sometimes it is annoying, especially when I am sleeping.

    Next month it would be 1 year survival for me, which is so called average survival duration in my case. I am still kicking and not losing hope.

Viewing 20 reply threads
  • Replies
      jamieth29
      Participant
      Been wondering about ya man. Hope things go well!
      jamieth29
      Participant
      Been wondering about ya man. Hope things go well!
      jamieth29
      Participant
      Been wondering about ya man. Hope things go well!
      Scooby123
      Participant

      Hi D.Feng,

      praying that you have good results with scans, there is a few of us due scans this month I think mine on 29th February but we do not get scans back same day mine will be 26th march so a long 4 week wait.

      Treatments do take it out of you, and you are doing great to continue work. I work 3 days but also a mum and have a dog so it is nice at times just to be on my own with no one wanting anythink lol. 

      Good luck with scans

      scooby123❤️

      Scooby123
      Participant

      Hi D.Feng,

      praying that you have good results with scans, there is a few of us due scans this month I think mine on 29th February but we do not get scans back same day mine will be 26th march so a long 4 week wait.

      Treatments do take it out of you, and you are doing great to continue work. I work 3 days but also a mum and have a dog so it is nice at times just to be on my own with no one wanting anythink lol. 

      Good luck with scans

      scooby123❤️

        jenny22
        Participant

        Hey scooby-

        Wanted to ask, do you really have scan on 2/29 and not get results on March 26th? 

        Why do they make you wait 4 weeks for results?

        that seems inhumane….i would go nuts waiting that long..

        any reason for the long wait?

        Scooby123
        Participant

        Hi jenny22,

        i go next Sunday for MRI on brain and body scan CT yes I do have to wait 4 weeks I think it works out about for results. I think it is bad to have to wait so long it's bad enough when scans are due never mind waiting for results . Not sleeping much with stressing. I think when I have them done I will ask how long for results to get back to consultant if they say less than 4 weeks then I will get on the phone for them. Unfortunately in UK things are at a slow pace. 

        Thanks thou

        scooby123❤️

        Mat
        Participant

        So when we hear politicians in the US talk about single payor healthcare–welcome to the world of 4 week delays in scan results.  Ridiculous.

        Mat
        Participant

        So when we hear politicians in the US talk about single payor healthcare–welcome to the world of 4 week delays in scan results.  Ridiculous.

        Scooby123
        Participant

        Well said matt ❤️

        scooby123❤️

        Scooby123
        Participant

        Well said matt ❤️

        scooby123❤️

        ed williams
        Participant

        I wouldn't judge them all the same way, I have had my scans the weeks before my Oncologist appointment for the last 2.5 years and the results are always completed. I had a ct scan of chest and abdomen every 6 weeks during the first 15 months of the BMS trial and Brain MRI scans every 3 months. The Canadian system has some problems but no one is kept from having access to treatments or care based on their ability to pay for coverage. I must admit waiting a month is crazy or will drive some people to be crazy!!!! Ed

        ed williams
        Participant

        I wouldn't judge them all the same way, I have had my scans the weeks before my Oncologist appointment for the last 2.5 years and the results are always completed. I had a ct scan of chest and abdomen every 6 weeks during the first 15 months of the BMS trial and Brain MRI scans every 3 months. The Canadian system has some problems but no one is kept from having access to treatments or care based on their ability to pay for coverage. I must admit waiting a month is crazy or will drive some people to be crazy!!!! Ed

        Scooby123
        Participant

        Hi ED,

        will be asking after scans when consultant will get results then I will be calling ASAP,  or call my melanoma nurse. Seems a good process scans then appointment booked before. My last scans had to call my nurse due had a really bad chest infection and was worried if my tumours had got worse as well so she had a look and called me so I knew results before seeing consultant. Scans are nervous when due for all but a month for results is a bit too much in our position.. I do like the idea of some on board gets scan and see consultant same day for results, it is different country's which systems are different plus treatments access is easy in some than others too.

        Keep well 

        scooby123❤️

        Scooby123
        Participant

        Hi ED,

        will be asking after scans when consultant will get results then I will be calling ASAP,  or call my melanoma nurse. Seems a good process scans then appointment booked before. My last scans had to call my nurse due had a really bad chest infection and was worried if my tumours had got worse as well so she had a look and called me so I knew results before seeing consultant. Scans are nervous when due for all but a month for results is a bit too much in our position.. I do like the idea of some on board gets scan and see consultant same day for results, it is different country's which systems are different plus treatments access is easy in some than others too.

        Keep well 

        scooby123❤️

        Scooby123
        Participant

        Hi ED,

        will be asking after scans when consultant will get results then I will be calling ASAP,  or call my melanoma nurse. Seems a good process scans then appointment booked before. My last scans had to call my nurse due had a really bad chest infection and was worried if my tumours had got worse as well so she had a look and called me so I knew results before seeing consultant. Scans are nervous when due for all but a month for results is a bit too much in our position.. I do like the idea of some on board gets scan and see consultant same day for results, it is different country's which systems are different plus treatments access is easy in some than others too.

        Keep well 

        scooby123❤️

        ed williams
        Participant

        I wouldn't judge them all the same way, I have had my scans the weeks before my Oncologist appointment for the last 2.5 years and the results are always completed. I had a ct scan of chest and abdomen every 6 weeks during the first 15 months of the BMS trial and Brain MRI scans every 3 months. The Canadian system has some problems but no one is kept from having access to treatments or care based on their ability to pay for coverage. I must admit waiting a month is crazy or will drive some people to be crazy!!!! Ed

        Scooby123
        Participant

        Well said matt ❤️

        scooby123❤️

        MoiraM
        Participant

        I am in the UK being treated on the NHS. I don't see it as a 'delay'. I have my three-monthly appointment at the clinic and my scan is usually one or two weeks before my appointment. That allows the opportunity for the results to be discussed by the team of oncology consultants at the biweekly review of all cases before my appointment if the scan showed anything unexpected.

        The cancer is doing the same if the scan is two days before or two weeks before.

        I get great personalised care, including email access to fabulous specialist nurses. I did not have to worry that my insurance company might not pay up or that there was no access to a melanoma specalist in my area.

        MoiraM
        Participant

        I am in the UK being treated on the NHS. I don't see it as a 'delay'. I have my three-monthly appointment at the clinic and my scan is usually one or two weeks before my appointment. That allows the opportunity for the results to be discussed by the team of oncology consultants at the biweekly review of all cases before my appointment if the scan showed anything unexpected.

        The cancer is doing the same if the scan is two days before or two weeks before.

        I get great personalised care, including email access to fabulous specialist nurses. I did not have to worry that my insurance company might not pay up or that there was no access to a melanoma specalist in my area.

        Scooby123
        Participant

        Hi MoiraM

        Hope you are well, I went to see my consultant for my 3 month review scans ordered got call from hospital to book scans which are just over 2 weeks wait but then don't go back till a month for results I think a month wait is a bit long when you are anxious. Two weeks seems ok but a month when you will be worrying. I will ask  when scans are done how long my consultant will get results and if less than a month I will call. 

        In all from my 3 month review doing scans results is a process of 7 weeks which I feel is long time . Some guys see consultant and gets results same day I know it's different in where you live ect, but just wish it was quicker .

        Do you have scans first then appointment for results or like me see consultant , scans ordered then booked in then appointment for results.

        scooby123❤️

        Scooby123
        Participant

        Hi MoiraM

        Hope you are well, I went to see my consultant for my 3 month review scans ordered got call from hospital to book scans which are just over 2 weeks wait but then don't go back till a month for results I think a month wait is a bit long when you are anxious. Two weeks seems ok but a month when you will be worrying. I will ask  when scans are done how long my consultant will get results and if less than a month I will call. 

        In all from my 3 month review doing scans results is a process of 7 weeks which I feel is long time . Some guys see consultant and gets results same day I know it's different in where you live ect, but just wish it was quicker .

        Do you have scans first then appointment for results or like me see consultant , scans ordered then booked in then appointment for results.

        scooby123❤️

        MoiraM
        Participant

        That does seem like a long time. My process goes like this: (1) I book my next three month appointment on the day I see my specialist at the regular melanoma clinic (2) They order the scan (I'm only getting a CT scan)  (3) the appointment for the CT scan turns up and it is usually about a fortnight before my appointment with the consultant (4) have scan (5) keep the appointment.

        The blood tests are done on the day of the clinic. (1) Report (2) Blood test (3) Weighed (4) Wait (5) Wait (6) Wait (7) See my excellent but massively overworked consutant.

        I confess I think my process seems better than yours.

        I ahve tried sending you a private message but the private messaging does not seem to work. Do you want to communicate off the board. If yes, I could create a 'once-use' email so that we could get in touch.

        MoiraM
        Participant

        That does seem like a long time. My process goes like this: (1) I book my next three month appointment on the day I see my specialist at the regular melanoma clinic (2) They order the scan (I'm only getting a CT scan)  (3) the appointment for the CT scan turns up and it is usually about a fortnight before my appointment with the consultant (4) have scan (5) keep the appointment.

        The blood tests are done on the day of the clinic. (1) Report (2) Blood test (3) Weighed (4) Wait (5) Wait (6) Wait (7) See my excellent but massively overworked consutant.

        I confess I think my process seems better than yours.

        I ahve tried sending you a private message but the private messaging does not seem to work. Do you want to communicate off the board. If yes, I could create a 'once-use' email so that we could get in touch.

        MoiraM
        Participant

        That does seem like a long time. My process goes like this: (1) I book my next three month appointment on the day I see my specialist at the regular melanoma clinic (2) They order the scan (I'm only getting a CT scan)  (3) the appointment for the CT scan turns up and it is usually about a fortnight before my appointment with the consultant (4) have scan (5) keep the appointment.

        The blood tests are done on the day of the clinic. (1) Report (2) Blood test (3) Weighed (4) Wait (5) Wait (6) Wait (7) See my excellent but massively overworked consutant.

        I confess I think my process seems better than yours.

        I ahve tried sending you a private message but the private messaging does not seem to work. Do you want to communicate off the board. If yes, I could create a 'once-use' email so that we could get in touch.

        Scooby123
        Participant

        Hi MoiraM

        Hope you are well, I went to see my consultant for my 3 month review scans ordered got call from hospital to book scans which are just over 2 weeks wait but then don't go back till a month for results I think a month wait is a bit long when you are anxious. Two weeks seems ok but a month when you will be worrying. I will ask  when scans are done how long my consultant will get results and if less than a month I will call. 

        In all from my 3 month review doing scans results is a process of 7 weeks which I feel is long time . Some guys see consultant and gets results same day I know it's different in where you live ect, but just wish it was quicker .

        Do you have scans first then appointment for results or like me see consultant , scans ordered then booked in then appointment for results.

        scooby123❤️

        Scooby123
        Participant

        Sent you a message by email I looked at my profile and on others they have a contact and if you go o that you can send a email direct I sent you one but not sure how to do it on my profile. I have edit things but not sure what you see when on my profile if it says contact like yours.

        scooby123❤️

        Scooby123
        Participant

        Sent you a message by email I looked at my profile and on others they have a contact and if you go o that you can send a email direct I sent you one but not sure how to do it on my profile. I have edit things but not sure what you see when on my profile if it says contact like yours.

        scooby123❤️

        Scooby123
        Participant

        Sent you a message by email I looked at my profile and on others they have a contact and if you go o that you can send a email direct I sent you one but not sure how to do it on my profile. I have edit things but not sure what you see when on my profile if it says contact like yours.

        scooby123❤️

        MoiraM
        Participant

        I am in the UK being treated on the NHS. I don't see it as a 'delay'. I have my three-monthly appointment at the clinic and my scan is usually one or two weeks before my appointment. That allows the opportunity for the results to be discussed by the team of oncology consultants at the biweekly review of all cases before my appointment if the scan showed anything unexpected.

        The cancer is doing the same if the scan is two days before or two weeks before.

        I get great personalised care, including email access to fabulous specialist nurses. I did not have to worry that my insurance company might not pay up or that there was no access to a melanoma specalist in my area.

        Mat
        Participant

        So when we hear politicians in the US talk about single payor healthcare–welcome to the world of 4 week delays in scan results.  Ridiculous.

        Scooby123
        Participant

        Hi jenny22,

        i go next Sunday for MRI on brain and body scan CT yes I do have to wait 4 weeks I think it works out about for results. I think it is bad to have to wait so long it's bad enough when scans are due never mind waiting for results . Not sleeping much with stressing. I think when I have them done I will ask how long for results to get back to consultant if they say less than 4 weeks then I will get on the phone for them. Unfortunately in UK things are at a slow pace. 

        Thanks thou

        scooby123❤️

        Scooby123
        Participant

        Hi jenny22,

        i go next Sunday for MRI on brain and body scan CT yes I do have to wait 4 weeks I think it works out about for results. I think it is bad to have to wait so long it's bad enough when scans are due never mind waiting for results . Not sleeping much with stressing. I think when I have them done I will ask how long for results to get back to consultant if they say less than 4 weeks then I will get on the phone for them. Unfortunately in UK things are at a slow pace. 

        Thanks thou

        scooby123❤️

        jenny22
        Participant

        Hey scooby-

        Wanted to ask, do you really have scan on 2/29 and not get results on March 26th? 

        Why do they make you wait 4 weeks for results?

        that seems inhumane….i would go nuts waiting that long..

        any reason for the long wait?

        jenny22
        Participant

        Hey scooby-

        Wanted to ask, do you really have scan on 2/29 and not get results on March 26th? 

        Why do they make you wait 4 weeks for results?

        that seems inhumane….i would go nuts waiting that long..

        any reason for the long wait?

      Scooby123
      Participant

      Hi D.Feng,

      praying that you have good results with scans, there is a few of us due scans this month I think mine on 29th February but we do not get scans back same day mine will be 26th march so a long 4 week wait.

      Treatments do take it out of you, and you are doing great to continue work. I work 3 days but also a mum and have a dog so it is nice at times just to be on my own with no one wanting anythink lol. 

      Good luck with scans

      scooby123❤️

      jenny22
      Participant

      Sending good wishes for good news on scans…..i just had mine today and getting reusts on about 2 hours!!!!

      NERVOUS….

      please post as soon as you have yours……

      Keeping my fingers crossed or good news for you!

      jenny

      jenny22
      Participant

      Sending good wishes for good news on scans…..i just had mine today and getting reusts on about 2 hours!!!!

      NERVOUS….

      please post as soon as you have yours……

      Keeping my fingers crossed or good news for you!

      jenny

        Scooby123
        Participant

        Hi Jenny22

        wishing you good scan results too Hun,

        scooby123❤️

        Scooby123
        Participant

        Hi Jenny22

        wishing you good scan results too Hun,

        scooby123❤️

        Scooby123
        Participant

        Hi Jenny22

        wishing you good scan results too Hun,

        scooby123❤️

      jenny22
      Participant

      Sending good wishes for good news on scans…..i just had mine today and getting reusts on about 2 hours!!!!

      NERVOUS….

      please post as soon as you have yours……

      Keeping my fingers crossed or good news for you!

      jenny

      DZnDef
      Participant

      Best of luck to you on those scan results Thursday, D. Feng.   And congratulations on your upcoming 1-year anniversary!

      DZnDef
      Participant

      Best of luck to you on those scan results Thursday, D. Feng.   And congratulations on your upcoming 1-year anniversary!

      DZnDef
      Participant

      Best of luck to you on those scan results Thursday, D. Feng.   And congratulations on your upcoming 1-year anniversary!

      Bubbles
      Participant

      Keep on kicking, D. Feng!  You possess an amazing spirit. What trial did you end up participating in? Wishing you my best, Celeste

      Bubbles
      Participant

      Keep on kicking, D. Feng!  You possess an amazing spirit. What trial did you end up participating in? Wishing you my best, Celeste

        dfeng
        Participant

        The trail is IMCgp100 phase 2, for high dose testing.

         

        dfeng
        Participant

        The trail is IMCgp100 phase 2, for high dose testing.

         

        dfeng
        Participant

        The trail is IMCgp100 phase 2, for high dose testing.

         

      Bubbles
      Participant

      Keep on kicking, D. Feng!  You possess an amazing spirit. What trial did you end up participating in? Wishing you my best, Celeste

      _Paul_
      Participant

      I heop you get good results on Thursday D. Feng! I am wishing the best for you!

      – Paul

      _Paul_
      Participant

      I heop you get good results on Thursday D. Feng! I am wishing the best for you!

      – Paul

      _Paul_
      Participant

      I heop you get good results on Thursday D. Feng! I am wishing the best for you!

      – Paul

      dfeng
      Participant

      Thanks everyone, I will keep you updated!

      dfeng
      Participant

      Thanks everyone, I will keep you updated!

      dfeng
      Participant

      Thanks everyone, I will keep you updated!

Viewing 20 reply threads
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