Day 5 since 1st ipi/Nivo Infusion

This topic has 8 replies, 8 voices, and was last updated 5 years, 11 months ago by Sharon93065.

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- May 15, 2018 at 6:18 pm
- Quote
MelanomaMike
Participant
Hi Family, boy this stuff {Opdivo/Yervoy} better be working cuz i feel like poop, like Flu like symptoms, mild nausea that never leads to vomiting {not yet anyways}, achy body, my head pounds when i get up to quickly but then goes away, its just like the flu…Im drinking plenty of water to stay hydrated & my hunger is ok, i get full fairly quicker then normal but thats ok, i wrap it up and reheat for later…I just wanted to share whats going on with me, im off work for a bit {thank god} but may go in tommorrow if i feel better. Ive noticed i feel worse at night….take care ya'all, and if yer feeling the same, well, im right with ya, this sucks but we have to warrior through!…Love ya guys, Mike…

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- - May 15, 2018 at 6:44 pm
  - Quote
  tedtell1
  Participant
  Mike;
  
  Yep, sounds very familiar. I am on opdivo only though. I just went to the once a month and it really kicked my but. My hips are aching all the time now, just worse for the first 5-6 days after treatment. Warrior on!
  
  Ted
  - May 15, 2018 at 9:59 pm
    
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    mandyjill
    Participant
    
    I had severe bone/joint/muscle pain with the opdivo/yervoy trial. But found immediate relief with a small dose prednisone.
- - May 15, 2018 at 8:35 pm
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  Coragirl
  Participant
  Stay strong and keep hydrated! You are in my prayers
- - May 15, 2018 at 9:31 pm
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  GeoTony
  Participant
  Brings back memories, nights were way worse, especially when the night sweats kicked in, my other half referred to it as my menopausal phase, wierd stuff.
  
  I managed 2 sessions then onto pendrisone for 6 weeks, before completing the final session, keep up the fight!
- - May 15, 2018 at 10:38 pm
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  BillB
  Participant
  Keep fighting Mike, you’ve got this! Thanks for checking in was wondering how it was going. Keep us posted.
  
  Bill
  - May 15, 2018 at 11:50 pm
    
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    Coach2u
    Participant
    
    Sorry to hear that, hang in there MIke. You are my source for what’s to come. I started Ipi/nivo yesterday so far no symptoms. Hope it’s working cause Keydruda did not. We have to endure and kill this disease, not ready to die. MIke K.
  - May 18, 2018 at 3:37 am
    
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    Sharon93065
    Participant
    
    Symptoms can sneak in. Mine were hives/rashes. Scalp really itched. And it wiped out my throid. I only had 3 combo treatments due to the liver enzyme levels. But it kept workling…the treatments are working in you when you don't know that they are. Thanks to this forum i can see the other warriors only were able to tolerate maybe 2 treatments and they are doing great. Yes it is working, you will get great Petscan results. I did and am.
- - May 16, 2018 at 1:19 am
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  TexMelanomex
  Participant
  Big Mike! I was starting to worry about you my warrior brother. Sorry to hear about the side effects, you are deep in the battle now. Smart move taking a few days to recoup and let this first round run its course…in this battle sometimes resting is fighting! You take care my friend and Warrior On! #MIKESTRONG
  
  Tex