› Forums › General Melanoma Community › Dabrafenib is working!!
- This topic has 33 replies, 9 voices, and was last updated 9 years, 5 months ago by
aldakota22.
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- November 21, 2013 at 8:21 pm
After cardiac surgery in Sept I went on Dabrafenib. Then added Mekinist. I could not tolerate the Mekinist so I went back to just Dabrafenib. Been on it 8 wks .
Today my onc said it was so clear I was responding and he was thrilled. I even have a patch of vitiligo which he said they have seen with dabrafenib or could be the Ipi I finished a year ago or a combo of dab and the anti pd1 doses I had, who knows? Anyway, just thrilled and thankful to God!
Amy
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- November 21, 2013 at 9:31 pm
Amy,
I am so happy for you. Have you had scans that show shrinking tumors or tumors that are gone?
God Bless
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- November 22, 2013 at 2:29 am
My scans show stable tumors in heart and brain. LDH has dropped from 300s to 101 and the rest of my bloodwork was very good.
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- November 22, 2013 at 2:29 am
My scans show stable tumors in heart and brain. LDH has dropped from 300s to 101 and the rest of my bloodwork was very good.
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- November 22, 2013 at 2:29 am
My scans show stable tumors in heart and brain. LDH has dropped from 300s to 101 and the rest of my bloodwork was very good.
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- November 22, 2013 at 12:04 am
So happy for you!!!! Such great news! Your strength is amazing, Congrats!
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- November 22, 2013 at 3:05 am
That's absoutely fantastic news, Amy! Good for you! I was disappointed when you had to get off the MEK but it looks like you're responding just fine to the dabrafenib alone, which some people do. Keep eating healthfully and get a little exercise and maybe your immune system will now be able to kick mel's butt!
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- November 22, 2013 at 3:05 am
That's absoutely fantastic news, Amy! Good for you! I was disappointed when you had to get off the MEK but it looks like you're responding just fine to the dabrafenib alone, which some people do. Keep eating healthfully and get a little exercise and maybe your immune system will now be able to kick mel's butt!
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- November 22, 2013 at 3:05 am
That's absoutely fantastic news, Amy! Good for you! I was disappointed when you had to get off the MEK but it looks like you're responding just fine to the dabrafenib alone, which some people do. Keep eating healthfully and get a little exercise and maybe your immune system will now be able to kick mel's butt!
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- November 22, 2013 at 6:27 am
Amy so happy for you!!! You go girl!!! So many treatments and to see somethin working is great. The vitiligo is something that happens with PD 1 (My husband has it as a respond to PD 1), I don't know if the other treatments also has that side effect …. but it does not matter which one is causing it as long as YOU ARE RESPONDING YEY
Elenise
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- November 22, 2013 at 11:15 pm
Karen – my side effects were really bad, I was in the hospital for two days, but this is not common. I am BRAF v600D so maybe that's why, I don't know. I had a fever of 102.8, delirium, mouth sores, wasn't eating, severe chills, anemia, and slept all the time. It was a little scary.
Amy
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- November 22, 2013 at 11:15 pm
Karen – my side effects were really bad, I was in the hospital for two days, but this is not common. I am BRAF v600D so maybe that's why, I don't know. I had a fever of 102.8, delirium, mouth sores, wasn't eating, severe chills, anemia, and slept all the time. It was a little scary.
Amy
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- November 22, 2013 at 11:15 pm
Karen – my side effects were really bad, I was in the hospital for two days, but this is not common. I am BRAF v600D so maybe that's why, I don't know. I had a fever of 102.8, delirium, mouth sores, wasn't eating, severe chills, anemia, and slept all the time. It was a little scary.
Amy
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- November 22, 2013 at 6:27 am
Amy so happy for you!!! You go girl!!! So many treatments and to see somethin working is great. The vitiligo is something that happens with PD 1 (My husband has it as a respond to PD 1), I don't know if the other treatments also has that side effect …. but it does not matter which one is causing it as long as YOU ARE RESPONDING YEY
Elenise
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- November 22, 2013 at 6:27 am
Amy so happy for you!!! You go girl!!! So many treatments and to see somethin working is great. The vitiligo is something that happens with PD 1 (My husband has it as a respond to PD 1), I don't know if the other treatments also has that side effect …. but it does not matter which one is causing it as long as YOU ARE RESPONDING YEY
Elenise
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- December 8, 2013 at 2:41 am
Thank God for the good news.Keep that PMA .You will Beat the Beast. Al
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- December 8, 2013 at 2:41 am
Thank God for the good news.Keep that PMA .You will Beat the Beast. Al
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- December 8, 2013 at 2:41 am
Thank God for the good news.Keep that PMA .You will Beat the Beast. Al
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