Hello everyone! It's been awhile since I've visited as I need a break. After Artie passed and I recurred again, things hit me hard…this disease just sucks. I see people are doing well while others are having challenges. I've thought about many of you who've I communicated with in this forum; praying you're doing well. For those who are new and I haven't made your acquaintance…welcome you're in a good place with good people. I did a bit of poking around and saw many familiar names which is great! Special call out to Celeste(Bubbles) who has been a beacon of light and wealth of information!!! I saw a MRF publication in oncologist office with you on the cover and your story!!! Awesome!!!
Not sure where I left off when I took my break but after 4th recurrence (sub q to left arm pit), I didn't have to do the surgery for margins, my surgical onc at Northwestern said not necessary so I started the Nivo in November as adjuvant treatment being NED and believe I'll have my 8th dose next week. Overall, feeling fine with minor side effects; itchy skin (rash) and need to increase synthroid meds. I've had a few things removed…currently waiting on pathology for small bump removed from neck/collarbone area. A little freaked about this one…haven't had the best luck in past. Of course as we all know the waiting and anxiety is overwhelming. Keep asking myself if this is mel….then the Nivo is not working??? Hopefully they have more in the pipeline.
Wishing everyone the best! Keep on fighting!!!
Josh
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