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  • Post
    • July 7, 2012 at 12:58 pm
    Nicky
    Participant

      Hi everyone, I thought I would check in and let you all know that I'm still alive and kicking melanoma.

      I had an annual checkup at the melanoma outpatients here in Brisbane at the Princess Alexandra Hospital this week and I'm pleased to say I am still NED.  The hospital doctor who I haven't seen before was having a hard time reading my history because I've had so many bouts of melanoma and yet here I am nearly my 13th year Stage III and still beating it.

      Hi everyone, I thought I would check in and let you all know that I'm still alive and kicking melanoma.

      I had an annual checkup at the melanoma outpatients here in Brisbane at the Princess Alexandra Hospital this week and I'm pleased to say I am still NED.  The hospital doctor who I haven't seen before was having a hard time reading my history because I've had so many bouts of melanoma and yet here I am nearly my 13th year Stage III and still beating it.

      I have updated my patnet under " Nicky" to help anyone struggling with this disease.  I remain positive and even though I am getting on with life, I always remain vigilant.

      If anyone is new to this disease, it is not necessarily a death sentence, everyone is different.  There are still people surviving melanoma, they are just getting on with their lives and may not necessarily post.

      This board has always been there for me along this journey and I just want to wish you all the best and thank you.

       

    Viewing 8 reply threads
    • Replies
        • July 7, 2012 at 3:07 pm
        Linny
        Participant

          Congratulations on your NED status! Wow! You have been through a lot. It's inspiring to read stories like yours from a fellow Stage III warrior. I pray that NED stays with you. 🙂

          • July 7, 2012 at 3:07 pm
          Linny
          Participant

            Congratulations on your NED status! Wow! You have been through a lot. It's inspiring to read stories like yours from a fellow Stage III warrior. I pray that NED stays with you. 🙂

            • July 7, 2012 at 3:07 pm
            Linny
            Participant

              Congratulations on your NED status! Wow! You have been through a lot. It's inspiring to read stories like yours from a fellow Stage III warrior. I pray that NED stays with you. 🙂

              • July 7, 2012 at 3:58 pm
              hbecker
              Participant

                Nicky,

                   Thanks so much for posting this! We are new here – my husband had a cyst removed that turned out to be melanoma, then had a negative sentinel node biopsy and PET/CT scan. The original path report said "metastatic" because there was no evidence of melanoma on the skin. Technically the negative biopsy and scan means he is NED – but the staging is tricky because the melanoma wasn't on his skin, it was in the dermis. They think this was the primary site but don't know that for sure – but the cyst itself measured 9.5mm – pretty big, and perhaps meaning he is Stage III. Now we are waiting and waiting for appointments to see which clinical trials he should consider …

                   But 13 years Stage III sounds so good to me!! Thank you thank you thank you!

                Hazel

                  • July 7, 2012 at 6:48 pm
                  melanomafighter
                  Participant
                    Congrats on Ned!!! I am Stage IIIB as well didnt have it on my skin either I am NED too!
                    • July 7, 2012 at 8:31 pm
                    Irish girl
                    Participant
                      Tks Nicky for posting, just dx with stage 3 in march 2012 and it’s stories like yours keeps me going!
                      • July 7, 2012 at 8:31 pm
                      Irish girl
                      Participant
                        Tks Nicky for posting, just dx with stage 3 in march 2012 and it’s stories like yours keeps me going!
                        • July 7, 2012 at 8:31 pm
                        Irish girl
                        Participant
                          Tks Nicky for posting, just dx with stage 3 in march 2012 and it’s stories like yours keeps me going!
                          • July 7, 2012 at 6:48 pm
                          melanomafighter
                          Participant
                            Congrats on Ned!!! I am Stage IIIB as well didnt have it on my skin either I am NED too!
                            • July 7, 2012 at 6:48 pm
                            melanomafighter
                            Participant
                              Congrats on Ned!!! I am Stage IIIB as well didnt have it on my skin either I am NED too!
                            • July 7, 2012 at 3:58 pm
                            hbecker
                            Participant

                              Nicky,

                                 Thanks so much for posting this! We are new here – my husband had a cyst removed that turned out to be melanoma, then had a negative sentinel node biopsy and PET/CT scan. The original path report said "metastatic" because there was no evidence of melanoma on the skin. Technically the negative biopsy and scan means he is NED – but the staging is tricky because the melanoma wasn't on his skin, it was in the dermis. They think this was the primary site but don't know that for sure – but the cyst itself measured 9.5mm – pretty big, and perhaps meaning he is Stage III. Now we are waiting and waiting for appointments to see which clinical trials he should consider …

                                 But 13 years Stage III sounds so good to me!! Thank you thank you thank you!

                              Hazel

                              • July 7, 2012 at 3:58 pm
                              hbecker
                              Participant

                                Nicky,

                                   Thanks so much for posting this! We are new here – my husband had a cyst removed that turned out to be melanoma, then had a negative sentinel node biopsy and PET/CT scan. The original path report said "metastatic" because there was no evidence of melanoma on the skin. Technically the negative biopsy and scan means he is NED – but the staging is tricky because the melanoma wasn't on his skin, it was in the dermis. They think this was the primary site but don't know that for sure – but the cyst itself measured 9.5mm – pretty big, and perhaps meaning he is Stage III. Now we are waiting and waiting for appointments to see which clinical trials he should consider …

                                   But 13 years Stage III sounds so good to me!! Thank you thank you thank you!

                                Hazel

                                • July 8, 2012 at 5:45 am
                                JerryfromFauq
                                Participant
                                  Nikky,people like you and Charlie (16 yrs, at stage 4 and not NET), sure shows others there is hope!
                                  • July 8, 2012 at 5:45 am
                                  JerryfromFauq
                                  Participant
                                    Nikky,people like you and Charlie (16 yrs, at stage 4 and not NET), sure shows others there is hope!
                                      • July 13, 2012 at 4:00 pm
                                      Snickers60
                                      Participant

                                        Way to go "NED" – what a fantastic name huh ?    Thank you so much for your post and congrats on your long

                                        term NED results.  YOU GIVE US MUCH HOPE………….

                                         

                                        Nancy (devoted wife of 3 X Warrior Wayne) 

                                        • July 13, 2012 at 4:00 pm
                                        Snickers60
                                        Participant

                                          Way to go "NED" – what a fantastic name huh ?    Thank you so much for your post and congrats on your long

                                          term NED results.  YOU GIVE US MUCH HOPE………….

                                           

                                          Nancy (devoted wife of 3 X Warrior Wayne) 

                                          • July 13, 2012 at 4:00 pm
                                          Snickers60
                                          Participant

                                            Way to go "NED" – what a fantastic name huh ?    Thank you so much for your post and congrats on your long

                                            term NED results.  YOU GIVE US MUCH HOPE………….

                                             

                                            Nancy (devoted wife of 3 X Warrior Wayne) 

                                          • July 8, 2012 at 5:45 am
                                          JerryfromFauq
                                          Participant
                                            Nikky,people like you and Charlie (16 yrs, at stage 4 and not NET), sure shows others there is hope!
                                        Viewing 8 reply threads
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