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brain tumor

Forums General Melanoma Community brain tumor

  • Post
    KellieSue
    Participant
    Well, after a few weeks with what I thought was strep turned out to be a pretty big tumor. I passed out at work and was taken to the ER. They found that I had one tumor in my brain. I pretty much lost feeling in my right arm and leg. I’m out of the hospital now and am doing localized radiation as a outpatient. I’d like to know why my doctor chose to treat it with radiation instead of gamma knife or SRS. I haven’t received a full explanation of my treatment yet. I’m not against it, I’m just confused right now.

    Kellie (from Iowa) stage IV

    Well, after a few weeks with what I thought was strep turned out to be a pretty big tumor. I passed out at work and was taken to the ER. They found that I had one tumor in my brain. I pretty much lost feeling in my right arm and leg. I’m out of the hospital now and am doing localized radiation as a outpatient. I’d like to know why my doctor chose to treat it with radiation instead of gamma knife or SRS. I haven’t received a full explanation of my treatment yet. I’m not against it, I’m just confused right now.

    Kellie (from Iowa) stage IV

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  • Replies
      jmmm
      Participant
      How big was the tumor? It has to be under 3 centimeters to do gamma knife or srs. They found a 5.5 centimeter tumor in my hubby a month ago. A month of Zelboraf shrunk it a tiny bit and he will be going for a craniotomy on Wednesday. His other option was whole brain radiation, to try to shrink it enough for gamma knife. Maybe that’s what your doctor is doing? He opted for the craniotomy because the tumor can fairly easily be accessed and we didn’t want to use WBR yet since it can only be used once. Ask some more questions…brain tumors are scary!

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      jmmm
      Participant
      How big was the tumor? It has to be under 3 centimeters to do gamma knife or srs. They found a 5.5 centimeter tumor in my hubby a month ago. A month of Zelboraf shrunk it a tiny bit and he will be going for a craniotomy on Wednesday. His other option was whole brain radiation, to try to shrink it enough for gamma knife. Maybe that’s what your doctor is doing? He opted for the craniotomy because the tumor can fairly easily be accessed and we didn’t want to use WBR yet since it can only be used once. Ask some more questions…brain tumors are scary!

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      jmmm
      Participant
      How big was the tumor? It has to be under 3 centimeters to do gamma knife or srs. They found a 5.5 centimeter tumor in my hubby a month ago. A month of Zelboraf shrunk it a tiny bit and he will be going for a craniotomy on Wednesday. His other option was whole brain radiation, to try to shrink it enough for gamma knife. Maybe that’s what your doctor is doing? He opted for the craniotomy because the tumor can fairly easily be accessed and we didn’t want to use WBR yet since it can only be used once. Ask some more questions…brain tumors are scary!

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      Vermont_Donna
      Participant

      Hi Kellie,

        I am so sorry to hear about this. I do not have any answers or advice for you, but know that i am thinking of you!

      Hugs,

      Vermont_Donna, stage 3a

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      Vermont_Donna
      Participant

      Hi Kellie,

        I am so sorry to hear about this. I do not have any answers or advice for you, but know that i am thinking of you!

      Hugs,

      Vermont_Donna, stage 3a

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      Vermont_Donna
      Participant

      Hi Kellie,

        I am so sorry to hear about this. I do not have any answers or advice for you, but know that i am thinking of you!

      Hugs,

      Vermont_Donna, stage 3a

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      James from Sydney
      Participant

      Kellie, you need to see what the MRI or CT report said, it could have been a bleeder as Melanoma in the Brain is quite vascular which could explain their broad approach. Still SRS can also be used to mop up Tumor bed in the event of a bleed. Do you know whether Surgery is an option. I am sure your team has your best interests at heart but you need to keep prodding them with questions so you can make informed decisions.

       

      best wishes

      James

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      James from Sydney
      Participant

      Kellie, you need to see what the MRI or CT report said, it could have been a bleeder as Melanoma in the Brain is quite vascular which could explain their broad approach. Still SRS can also be used to mop up Tumor bed in the event of a bleed. Do you know whether Surgery is an option. I am sure your team has your best interests at heart but you need to keep prodding them with questions so you can make informed decisions.

       

      best wishes

      James

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      James from Sydney
      Participant

      Kellie, you need to see what the MRI or CT report said, it could have been a bleeder as Melanoma in the Brain is quite vascular which could explain their broad approach. Still SRS can also be used to mop up Tumor bed in the event of a bleed. Do you know whether Surgery is an option. I am sure your team has your best interests at heart but you need to keep prodding them with questions so you can make informed decisions.

       

      best wishes

      James

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      KellieSue
      Participant
      Indication: Patient with hemorrhagic melanoma mets and new dystonic
      movements.
       
      Technique: Axial CT images of the head were obtained from skullbase to
      vertex without contrast.
       
      Comparison: Head CT 11/19/2011, MRI brain 11/16/2011.
       
      Findings: The hemorrhagic mass in the left insular region is grossly
      stable in size measuring 3.8 x 2.9 cm. There is stable surrounding
      edema with approximately 4 mm contralateral midline shift and
      associated mass effect on the frontal horn left lateral ventricle.
      There are no new intra or extra-axial hemorrhages. No acute large
      vessel distribution ischemia. The ventricles are stable in size.
      Visualized orbits, paranasal sinuses, and mastoid air cells are
      unremarkable. There are no lytic calvarial lesions.
       

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      KellieSue
      Participant
      Indication: Patient with hemorrhagic melanoma mets and new dystonic
      movements.
       
      Technique: Axial CT images of the head were obtained from skullbase to
      vertex without contrast.
       
      Comparison: Head CT 11/19/2011, MRI brain 11/16/2011.
       
      Findings: The hemorrhagic mass in the left insular region is grossly
      stable in size measuring 3.8 x 2.9 cm. There is stable surrounding
      edema with approximately 4 mm contralateral midline shift and
      associated mass effect on the frontal horn left lateral ventricle.
      There are no new intra or extra-axial hemorrhages. No acute large
      vessel distribution ischemia. The ventricles are stable in size.
      Visualized orbits, paranasal sinuses, and mastoid air cells are
      unremarkable. There are no lytic calvarial lesions.
       

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      KellieSue
      Participant
      Indication: Patient with hemorrhagic melanoma mets and new dystonic
      movements.
       
      Technique: Axial CT images of the head were obtained from skullbase to
      vertex without contrast.
       
      Comparison: Head CT 11/19/2011, MRI brain 11/16/2011.
       
      Findings: The hemorrhagic mass in the left insular region is grossly
      stable in size measuring 3.8 x 2.9 cm. There is stable surrounding
      edema with approximately 4 mm contralateral midline shift and
      associated mass effect on the frontal horn left lateral ventricle.
      There are no new intra or extra-axial hemorrhages. No acute large
      vessel distribution ischemia. The ventricles are stable in size.
      Visualized orbits, paranasal sinuses, and mastoid air cells are
      unremarkable. There are no lytic calvarial lesions.
       

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        jmmm
        Participant
        Too big for gamma knife or srs. Maybe the plan is too shrink it with radiation? Maybe ask forneurosurgery consult to see if surgery is a possibility.

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        jmmm
        Participant
        Too big for gamma knife or srs. Maybe the plan is too shrink it with radiation? Maybe ask forneurosurgery consult to see if surgery is a possibility.

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        jmmm
        Participant
        Too big for gamma knife or srs. Maybe the plan is too shrink it with radiation? Maybe ask forneurosurgery consult to see if surgery is a possibility.

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      lhaley
      Participant

      Kellie,

      I've been away for a few days and just saw your post.  I am so sorry that they've found a tumor in the brain.

      Recently with my brain met I was told that I was at about the upper size (mine is 21mm) for SRS (which is what they did), I'm not sure about Gamma knife.  Their first choice was not for a crainectomy because mine is deep and could cause permanent problems – I'll find out in about 2 weeks.  Did they explain if yours is deep or if there is a chance to go in once it shrinks to try do do a crainectomy?

      If you haven't met with a nueruosurgeon you do need to request an appointment. He should have gone over all of your options. I'm sure when you ended up in the hospital they expediated everything but more should have been gone over with options.

      I know you are still on B-raf. How are the rest of the mets going?  I had noticed that you haven't been on the board lately. Think of you often,

      Linda

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      lhaley
      Participant

      Kellie,

      I've been away for a few days and just saw your post.  I am so sorry that they've found a tumor in the brain.

      Recently with my brain met I was told that I was at about the upper size (mine is 21mm) for SRS (which is what they did), I'm not sure about Gamma knife.  Their first choice was not for a crainectomy because mine is deep and could cause permanent problems – I'll find out in about 2 weeks.  Did they explain if yours is deep or if there is a chance to go in once it shrinks to try do do a crainectomy?

      If you haven't met with a nueruosurgeon you do need to request an appointment. He should have gone over all of your options. I'm sure when you ended up in the hospital they expediated everything but more should have been gone over with options.

      I know you are still on B-raf. How are the rest of the mets going?  I had noticed that you haven't been on the board lately. Think of you often,

      Linda

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      lhaley
      Participant

      Kellie,

      I've been away for a few days and just saw your post.  I am so sorry that they've found a tumor in the brain.

      Recently with my brain met I was told that I was at about the upper size (mine is 21mm) for SRS (which is what they did), I'm not sure about Gamma knife.  Their first choice was not for a crainectomy because mine is deep and could cause permanent problems – I'll find out in about 2 weeks.  Did they explain if yours is deep or if there is a chance to go in once it shrinks to try do do a crainectomy?

      If you haven't met with a nueruosurgeon you do need to request an appointment. He should have gone over all of your options. I'm sure when you ended up in the hospital they expediated everything but more should have been gone over with options.

      I know you are still on B-raf. How are the rest of the mets going?  I had noticed that you haven't been on the board lately. Think of you often,

      Linda

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      King
      Participant

      Hi Kellie Sue,

       

      You are frequently in my thoughts and I thought you'd been very quiet.  I was hoping it was because you were out living life and putting mel on the back burner.  I am so sorry to hear this news.  Big sigh….I just hate melanoma.

      Keeping you in my thoughts and prayers.  Keep us updated when you can.  You can beat this….one day at a time.

       

      Stay Strong
      King

      Stage IV 7/05  Liver mets

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      King
      Participant

      Hi Kellie Sue,

       

      You are frequently in my thoughts and I thought you'd been very quiet.  I was hoping it was because you were out living life and putting mel on the back burner.  I am so sorry to hear this news.  Big sigh….I just hate melanoma.

      Keeping you in my thoughts and prayers.  Keep us updated when you can.  You can beat this….one day at a time.

       

      Stay Strong
      King

      Stage IV 7/05  Liver mets

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      King
      Participant

      Hi Kellie Sue,

       

      You are frequently in my thoughts and I thought you'd been very quiet.  I was hoping it was because you were out living life and putting mel on the back burner.  I am so sorry to hear this news.  Big sigh….I just hate melanoma.

      Keeping you in my thoughts and prayers.  Keep us updated when you can.  You can beat this….one day at a time.

       

      Stay Strong
      King

      Stage IV 7/05  Liver mets

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      FormerCaregiver
      Participant

      Kellie, I am sorry to read of this new met. From the report, it looks like you have a tumour that is hemorrhagic (susceptible to bleeding). It is surrounded by a swollen area with excessive accumulation of fluid.

      Therefore, I think that your doctor is being careful in deciding on what to do in this situation. Perhaps localised radiation is the most appropriate treatment for a hemorrhagic brain met?

      Take care

      Frank from Australia

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      FormerCaregiver
      Participant

      Kellie, I am sorry to read of this new met. From the report, it looks like you have a tumour that is hemorrhagic (susceptible to bleeding). It is surrounded by a swollen area with excessive accumulation of fluid.

      Therefore, I think that your doctor is being careful in deciding on what to do in this situation. Perhaps localised radiation is the most appropriate treatment for a hemorrhagic brain met?

      Take care

      Frank from Australia

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      FormerCaregiver
      Participant

      Kellie, I am sorry to read of this new met. From the report, it looks like you have a tumour that is hemorrhagic (susceptible to bleeding). It is surrounded by a swollen area with excessive accumulation of fluid.

      Therefore, I think that your doctor is being careful in deciding on what to do in this situation. Perhaps localised radiation is the most appropriate treatment for a hemorrhagic brain met?

      Take care

      Frank from Australia

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