I am on cycle 13 of the Roche b-raf trial, receiving the b-raf drug. I have been responding the whole time. Recently I have been experiencing a sense of instability in my left leg as well as poor balance because of it. When walk my left foot slaps down and I have been tripping often as if I am not picking up my feet enough. My last scans still showed "response" to the b-raf inhibitor.
I am on cycle 13 of the Roche b-raf trial, receiving the b-raf drug. I have been responding the whole time. Recently I have been experiencing a sense of instability in my left leg as well as poor balance because of it. When walk my left foot slaps down and I have been tripping often as if I am not picking up my feet enough. My last scans still showed "response" to the b-raf inhibitor.
Another side effect that has been bothering me is my arms, hands, and shoulders falling asleep when in any position that I try to sleep. the olnly way I can sleep is with sleeping aides. My range of motion has been reduced drastically for someone who used to work-out a lot. s
Has anyone experienced similar side effects?
Has anyone been on the "responding" list for b-raf and still developed brain mets? My doctor seems to feel this is very unlikely but willing to do a brain MRI if I want one.
Thank you for your help.
Shelly in Switzerland, stage IV
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