Brain Mets and for those who are still kickin’ it a few years later
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Brain Mets and for those who are still kickin’ it a few years later

› Forums › General Melanoma Community › Brain Mets and for those who are still kickin’ it a few years later

  • Post
    • February 13, 2012 at 6:38 pm
    Lisa13
    Participant

    For those who've had brain mets (more than 2) and are still living live 1,2, 3 + years later, I'd really love to know what the reasoning of this could be and the treatment that may have helped.  One woman had 3 and that was 5 years ago and another amazing woman had 15 and that's been 2.5 years! !   I know some tumours keep coming and then stop, or others just keep coming and don't stop.  I know there is hope though, but I supposed I need to understand it a bit.

    For those who've had brain mets (more than 2) and are still living live 1,2, 3 + years later, I'd really love to know what the reasoning of this could be and the treatment that may have helped.  One woman had 3 and that was 5 years ago and another amazing woman had 15 and that's been 2.5 years! !   I know some tumours keep coming and then stop, or others just keep coming and don't stop.  I know there is hope though, but I supposed I need to understand it a bit.

    I had 2 brain mets and then got followed up after 8 weeks and found 2 more – very small and nothing more found in my brain (less than 0.5mm) from the brain mri.   I'll be going every 8 weeks to keep tabs on them which I believe is the best thing possible as well as gamma knife.

    Lisa

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  • Replies
      • February 13, 2012 at 10:39 pm
      Alicia15
      Participant

      Lisa,

      I think I responded to one of your posts a while ago.  I had 2 small brain mets, and mets to several other organs. I have been free of disease for 6 years now.

      In my case the main treatment was surgery (lung, spine and small bowels) and srs (similar to GK) for the brain mets. All my problems stopped once I started Leukine/GM-CSF. Me and my oncos believe that GM-CSF helped my immune system keep the mel under control.

      Keep up the fight!

      Alicia

      • February 13, 2012 at 10:39 pm
      Alicia15
      Participant

      Lisa,

      I think I responded to one of your posts a while ago.  I had 2 small brain mets, and mets to several other organs. I have been free of disease for 6 years now.

      In my case the main treatment was surgery (lung, spine and small bowels) and srs (similar to GK) for the brain mets. All my problems stopped once I started Leukine/GM-CSF. Me and my oncos believe that GM-CSF helped my immune system keep the mel under control.

      Keep up the fight!

      Alicia

        • February 14, 2012 at 1:54 am
        Lisa13
        Participant
        hi Alicia,

        Thank you so much for responding. You give me so much hope and truly wish to be just like you.

        lisa

        • February 14, 2012 at 1:54 am
        Lisa13
        Participant
        hi Alicia,

        Thank you so much for responding. You give me so much hope and truly wish to be just like you.

        lisa

        • February 14, 2012 at 1:54 am
        Lisa13
        Participant
        hi Alicia,

        Thank you so much for responding. You give me so much hope and truly wish to be just like you.

        lisa

      • February 13, 2012 at 10:39 pm
      Alicia15
      Participant

      Lisa,

      I think I responded to one of your posts a while ago.  I had 2 small brain mets, and mets to several other organs. I have been free of disease for 6 years now.

      In my case the main treatment was surgery (lung, spine and small bowels) and srs (similar to GK) for the brain mets. All my problems stopped once I started Leukine/GM-CSF. Me and my oncos believe that GM-CSF helped my immune system keep the mel under control.

      Keep up the fight!

      Alicia

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