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Brain Mets and for those who are still kickin’ it a few years later
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Brain Mets and for those who are still kickin’ it a few years later

› Forums › General Melanoma Community › Brain Mets and for those who are still kickin’ it a few years later

  • Post
    • February 13, 2012 at 6:38 pm
    Lisa13
    Participant

      For those who've had brain mets (more than 2) and are still living live 1,2, 3 + years later, I'd really love to know what the reasoning of this could be and the treatment that may have helped.  One woman had 3 and that was 5 years ago and another amazing woman had 15 and that's been 2.5 years! !   I know some tumours keep coming and then stop, or others just keep coming and don't stop.  I know there is hope though, but I supposed I need to understand it a bit.

      For those who've had brain mets (more than 2) and are still living live 1,2, 3 + years later, I'd really love to know what the reasoning of this could be and the treatment that may have helped.  One woman had 3 and that was 5 years ago and another amazing woman had 15 and that's been 2.5 years! !   I know some tumours keep coming and then stop, or others just keep coming and don't stop.  I know there is hope though, but I supposed I need to understand it a bit.

      I had 2 brain mets and then got followed up after 8 weeks and found 2 more – very small and nothing more found in my brain (less than 0.5mm) from the brain mri.   I'll be going every 8 weeks to keep tabs on them which I believe is the best thing possible as well as gamma knife.

      Lisa

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    • Replies
        • February 13, 2012 at 10:39 pm
        Alicia15
        Participant

          Lisa,

          I think I responded to one of your posts a while ago.  I had 2 small brain mets, and mets to several other organs. I have been free of disease for 6 years now.

          In my case the main treatment was surgery (lung, spine and small bowels) and srs (similar to GK) for the brain mets. All my problems stopped once I started Leukine/GM-CSF. Me and my oncos believe that GM-CSF helped my immune system keep the mel under control.

          Keep up the fight!

          Alicia

            • February 14, 2012 at 1:54 am
            Lisa13
            Participant
              hi Alicia,

              Thank you so much for responding. You give me so much hope and truly wish to be just like you.

              lisa

              • February 14, 2012 at 1:54 am
              Lisa13
              Participant
                hi Alicia,

                Thank you so much for responding. You give me so much hope and truly wish to be just like you.

                lisa

                • February 14, 2012 at 1:54 am
                Lisa13
                Participant
                  hi Alicia,

                  Thank you so much for responding. You give me so much hope and truly wish to be just like you.

                  lisa

                • February 13, 2012 at 10:39 pm
                Alicia15
                Participant

                  Lisa,

                  I think I responded to one of your posts a while ago.  I had 2 small brain mets, and mets to several other organs. I have been free of disease for 6 years now.

                  In my case the main treatment was surgery (lung, spine and small bowels) and srs (similar to GK) for the brain mets. All my problems stopped once I started Leukine/GM-CSF. Me and my oncos believe that GM-CSF helped my immune system keep the mel under control.

                  Keep up the fight!

                  Alicia

                  • February 13, 2012 at 10:39 pm
                  Alicia15
                  Participant

                    Lisa,

                    I think I responded to one of your posts a while ago.  I had 2 small brain mets, and mets to several other organs. I have been free of disease for 6 years now.

                    In my case the main treatment was surgery (lung, spine and small bowels) and srs (similar to GK) for the brain mets. All my problems stopped once I started Leukine/GM-CSF. Me and my oncos believe that GM-CSF helped my immune system keep the mel under control.

                    Keep up the fight!

                    Alicia

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