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Brain Mets

› Forums › General Melanoma Community › Brain Mets

  • Post
    • August 28, 2013 at 8:50 pm
    NYKaren
    Participant
      Hi everyone,
      I just came back from the onc and all is good. I am having a pretty remarkable response to the Trafilnar, my ear, all my scalp mets, etc. are clearing up nicely. My blood work is good.
      The brain mets are having the pretty standard effect, anger, etc. and I really didn’t have a clue about where I was (my husband was driving) until he drove right up to the door. I know the office is going to be looking into some kind of neuro-psychologist who might help me navigate things better. My work won’t clear me for at least 2 more weeks, but I know that’s a good thing.
      Karen

      Hi everyone,
      I just came back from the onc and all is good. I am having a pretty remarkable response to the Trafilnar, my ear, all my scalp mets, etc. are clearing up nicely. My blood work is good.
      The brain mets are having the pretty standard effect, anger, etc. and I really didn’t have a clue about where I was (my husband was driving) until he drove right up to the door. I know the office is going to be looking into some kind of neuro-psychologist who might help me navigate things better. My work won’t clear me for at least 2 more weeks, but I know that’s a good thing.
      Karen

    Viewing 21 reply threads
    • Replies
        • August 28, 2013 at 9:35 pm
        Richard_K
        Participant
          Way to go Karen!!!
          • August 28, 2013 at 9:35 pm
          Richard_K
          Participant
            Way to go Karen!!!
            • August 28, 2013 at 9:35 pm
            Richard_K
            Participant
              Way to go Karen!!!
              • August 28, 2013 at 9:56 pm
              awillett1991
              Participant
                Way to go girl! Good to hear from you! Sounds like you need to rest and take care of Karen!
                • August 28, 2013 at 9:56 pm
                awillett1991
                Participant
                  Way to go girl! Good to hear from you! Sounds like you need to rest and take care of Karen!
                  • August 28, 2013 at 9:56 pm
                  awillett1991
                  Participant
                    Way to go girl! Good to hear from you! Sounds like you need to rest and take care of Karen!
                    • August 29, 2013 at 12:53 am
                    JerryfromFauq
                    Participant

                      YES !

                      • August 29, 2013 at 12:53 am
                      JerryfromFauq
                      Participant

                        YES !

                        • August 29, 2013 at 12:53 am
                        JerryfromFauq
                        Participant

                          YES !

                          • August 29, 2013 at 2:52 am
                          vivian
                          Participant

                            Yay, Karen!  Keep up the good work!

                            • August 29, 2013 at 3:33 am
                            POW
                            Participant

                              Wonderful news, Karen! If Traflinar (dabrafenib) is working on your body, it is probably working on your brain, too. It just takes longer. 

                              I seem to recall that you took Zelboraf and it worked for you. You are one of the first who is post zelboraf and now on dabrafenib. It's so exciting to see that you are having such a good response!

                              Keep on keepin' on, Karen! You're doing great!

                              • August 29, 2013 at 3:33 am
                              POW
                              Participant

                                Wonderful news, Karen! If Traflinar (dabrafenib) is working on your body, it is probably working on your brain, too. It just takes longer. 

                                I seem to recall that you took Zelboraf and it worked for you. You are one of the first who is post zelboraf and now on dabrafenib. It's so exciting to see that you are having such a good response!

                                Keep on keepin' on, Karen! You're doing great!

                                • August 29, 2013 at 3:33 am
                                POW
                                Participant

                                  Wonderful news, Karen! If Traflinar (dabrafenib) is working on your body, it is probably working on your brain, too. It just takes longer. 

                                  I seem to recall that you took Zelboraf and it worked for you. You are one of the first who is post zelboraf and now on dabrafenib. It's so exciting to see that you are having such a good response!

                                  Keep on keepin' on, Karen! You're doing great!

                                  • August 29, 2013 at 10:59 am
                                  aldakota22
                                  Participant

                                    Happy for you that "T" is working .May it give you a long lasting response .Now just find a way to calm down your angry brain mets. Beat the Beast.  Al

                                    • August 29, 2013 at 10:59 am
                                    aldakota22
                                    Participant

                                      Happy for you that "T" is working .May it give you a long lasting response .Now just find a way to calm down your angry brain mets. Beat the Beast.  Al

                                      • August 29, 2013 at 10:59 am
                                      aldakota22
                                      Participant

                                        Happy for you that "T" is working .May it give you a long lasting response .Now just find a way to calm down your angry brain mets. Beat the Beast.  Al

                                        • August 31, 2013 at 2:51 am
                                        JerryfromFauq
                                        Participant

                                          Onward !!

                                          • August 31, 2013 at 2:51 am
                                          JerryfromFauq
                                          Participant

                                            Onward !!

                                            • August 31, 2013 at 2:51 am
                                            JerryfromFauq
                                            Participant

                                              Onward !!

                                              • August 31, 2013 at 9:09 pm
                                              Tina D
                                              Participant

                                                Sounds very encouraging!! Glad to hear your good report! I hope the other effects become less noticable by the day!

                                                Tina

                                                • August 31, 2013 at 9:09 pm
                                                Tina D
                                                Participant

                                                  Sounds very encouraging!! Glad to hear your good report! I hope the other effects become less noticable by the day!

                                                  Tina

                                                  • August 31, 2013 at 9:09 pm
                                                  Tina D
                                                  Participant

                                                    Sounds very encouraging!! Glad to hear your good report! I hope the other effects become less noticable by the day!

                                                    Tina

                                                    • August 29, 2013 at 2:52 am
                                                    vivian
                                                    Participant

                                                      Yay, Karen!  Keep up the good work!

                                                      • August 29, 2013 at 2:52 am
                                                      vivian
                                                      Participant

                                                        Yay, Karen!  Keep up the good work!

                                                    Viewing 21 reply threads
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