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Braftovi/mektovi with IPI/nivo

Forums General Melanoma Community Braftovi/mektovi with IPI/nivo

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      I'm wondering if anyone else is doing that combo and what your side effects are like?

      I did Taf/Mek for a year before I developed leptomeningeal disease this summer.  I did whole brain radiation which we were told didn't work.  I then developed hydrocephalus which almost killed me.  When I stabilized I did two doses of IPI/Nivo.  I think we got some benefit.  While I was on IPI/Nivo I was accepted into a trial at Md Anderson where they inject the nivo directly into the brain via a port, exciting stuff!  Unfortunately, I got kicked out after the first treatment.  I'm feeling really well all things considered and I'm just looking for some hope with all of these treatments together.




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          Caitlin, I'm glad to hear that you're feeling well and have a good plan.  


              Caitlin,  I did Braftovi/Mektovi for about 6 months and had to wash out for 1 week before starting Ipi/Nivo.  My Dr. said cannot give me all 4 although I wish they could.  Good luck and I will keep you in my thoughts.



              How are you doing? I have been thinking about you?


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