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I'm wondering if anyone else is doing that combo and what your side effects are like?
I did Taf/Mek for a year before I developed leptomeningeal disease this summer. I did whole brain radiation which we were told didn't work. I then developed hydrocephalus which almost killed me. When I stabilized I did two doses of IPI/Nivo. I think we got some benefit. While I was on IPI/Nivo I was accepted into a trial at Md Anderson where they inject the nivo directly into the brain via a port, exciting stuff! Unfortunately, I got kicked out after the first treatment. I'm feeling really well all things considered and I'm just looking for some hope with all of these treatments together.
Caitlin, I did Braftovi/Mektovi for about 6 months and had to wash out for 1 week before starting Ipi/Nivo. My Dr. said cannot give me all 4 although I wish they could. Good luck and I will keep you in my thoughts.
How are you doing? I have been thinking about you?
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