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BRAF

  • Post
    carol b
    Participant

    Well i got to see Doc at Vanderbilt today.. i go next Monday for a pet scan to see if  mel has spread anywhere else in my body. then the following Monday i go for my 3rd biopsy to  see if i am BRAF positive. Then the Monday after that i go to get results. If i am Braf positive i will start my treatment 3 weeks after that.. if I'm not BRAF positive its back to the Interluekin2 in Memphis..quality or quantity of my life is my thoughts of that treatment. i haven't decided to do that yet.. my cancer is growing fast and the pain is getting worse by the day.

    Well i got to see Doc at Vanderbilt today.. i go next Monday for a pet scan to see if  mel has spread anywhere else in my body. then the following Monday i go for my 3rd biopsy to  see if i am BRAF positive. Then the Monday after that i go to get results. If i am Braf positive i will start my treatment 3 weeks after that.. if I'm not BRAF positive its back to the Interluekin2 in Memphis..quality or quantity of my life is my thoughts of that treatment. i haven't decided to do that yet.. my cancer is growing fast and the pain is getting worse by the day. I'm gonna fight as long as i can but sometimes quality is more comforting to me..I dont know ..sorry i sound whinny tonite.. its starting to take its toll om my body..more pain pills this week than last week..next is oxy something. i want to remember my last year off life…………..

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  • Replies

      I understand completely.  Don't apologize for whining.  We all do it and it is a necessary part of all that we deal with.  It's kind of like crying don't you think?  Get it off your chest and it feels so good you can move on. 

      I pray that you are b-raf positive.  I have just had great news this week from my scans.  I am still responding to the b-raf and it has been 7 months!  The side effects have been extremely doable.  At first they were more severe compared to what they are now.  But even then, I had enjoyed an awesome summer of visiting family and travel.  Now the side effects seem to come and go, mainly the arthritic pain and iritis, they are a monthly occurrence.  They seem to be hormone related. 

      Again, I pray that you are b-raf positive and that you can start the treatment quickly.   Hang in there.  The waiting is tough.

      Sending positive light and love,

      Shelly

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      I understand completely.  Don't apologize for whining.  We all do it and it is a necessary part of all that we deal with.  It's kind of like crying don't you think?  Get it off your chest and it feels so good you can move on. 

      I pray that you are b-raf positive.  I have just had great news this week from my scans.  I am still responding to the b-raf and it has been 7 months!  The side effects have been extremely doable.  At first they were more severe compared to what they are now.  But even then, I had enjoyed an awesome summer of visiting family and travel.  Now the side effects seem to come and go, mainly the arthritic pain and iritis, they are a monthly occurrence.  They seem to be hormone related. 

      Again, I pray that you are b-raf positive and that you can start the treatment quickly.   Hang in there.  The waiting is tough.

      Sending positive light and love,

      Shelly

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      Fen
      Participant

      Praying that you get results soon and that you are BRAF positive, but understand your concerns about quality.  Don't hold back on the pain meds when you need them – I really think they help us stay healthy……and you're not whining at all.     Fen

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      Fen
      Participant

      Praying that you get results soon and that you are BRAF positive, but understand your concerns about quality.  Don't hold back on the pain meds when you need them – I really think they help us stay healthy……and you're not whining at all.     Fen

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      King
      Participant

      Carol,

      I didn't see your post as whining at all.  I vote for quality, too.  One day at a time.  I hope that you are able to get your BRAF results in a week after the biopsy and I hope you are BRAF positive.  Keep doing your research so you will feel confident when it's time to make a treatment decision.

      Try to stay comfortable.

       

      Stay Strong
      King

      Stage IV 7/05 Liver mets

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      King
      Participant

      Carol,

      I didn't see your post as whining at all.  I vote for quality, too.  One day at a time.  I hope that you are able to get your BRAF results in a week after the biopsy and I hope you are BRAF positive.  Keep doing your research so you will feel confident when it's time to make a treatment decision.

      Try to stay comfortable.

       

      Stay Strong
      King

      Stage IV 7/05 Liver mets

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      LynnLuc
      Participant

      Hi Carol, Have they offered you Ipi ? Hope you do well and get the Braf results soon

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      LynnLuc
      Participant

      Hi Carol, Have they offered you Ipi ? Hope you do well and get the Braf results soon

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      triciad
      Participant

      Carol,

      I am so sorry to hear all that you are going through.  Please know that we are all praying for good news for you…BRAF positive!  You can do this!!!

      Tricia

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      triciad
      Participant

      Carol,

      I am so sorry to hear all that you are going through.  Please know that we are all praying for good news for you…BRAF positive!  You can do this!!!

      Tricia

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