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Braf trial and side effects
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Braf trial and side effects

› Forums › General Melanoma Community › Braf trial and side effects

  • Post
    • April 17, 2011 at 6:01 pm
    Erinmay22
    Participant
      I am hoping to get in a braf trial (if they can ever finally get my tissue sampled…) and was curious what folks are experiencing for side effects?

      I was confirmed stage 4 in march with mets to the lungs. Having brain MRI and ct scans done on Tuesday. Let the scanxiety begin!

      My boss has been asking me if I will have any restrictions. I haven’t really taken any time off of work thru all this, but find it harder and harder to concentrate lately at work. Plus I do a fair amount of traveling every now and then and worry that flying and not sleeping well isn’t great for my immune system while on these treatments and drugs. When not traveling I am just at an office type job all day so it’s not too hard on the body.

      just curious how folks handle their jobs and melanoma stress! Somedays are easier than others!

    Viewing 5 reply threads
    • Replies
        • April 17, 2011 at 11:04 pm
        theonlydrea
        Participant
          My husband on braf no restriction outside of the norm on being home for check ups. Good luck!
          • April 17, 2011 at 11:04 pm
          theonlydrea
          Participant
            My husband on braf no restriction outside of the norm on being home for check ups. Good luck!
            • April 18, 2011 at 10:27 am
            FormerCaregiver
            Participant

              Although I don't have any specific info about the side effects of BRAF
              inhibitors, I thought that I would say a bit about stress and stage 4. I am
              familiar with the feelings associated with scanxiety from a caregiver's
              viewpoint.

              I feel that fighting melanoma and attempting to keep it from spreading further
              is now of the highest priority. At stage 4 it is expected that most people will
              find it quite difficult to concentrate on work and some everyday tasks. However,
              this doesn't apply to everyone as some will try to take their mind off things by
              attempting to be workaholics.

              Obviously one should be aware that all treatments have side effects. Expect
              to have more than one type of treatment. The stress of all that is happening can
              sometimes be a real problem in itself.

              Therefore, I have some questions to for you to think about. Are you able
              to reduce your working hours at all? How much sick leave can you take if
              you are feeling unwell? Can you work from home at all? Do you have
              someone to help you if needed?

              Good luck with your scans on Tuesday.

              Frank from Australia

              • April 18, 2011 at 10:27 am
              FormerCaregiver
              Participant

                Although I don't have any specific info about the side effects of BRAF
                inhibitors, I thought that I would say a bit about stress and stage 4. I am
                familiar with the feelings associated with scanxiety from a caregiver's
                viewpoint.

                I feel that fighting melanoma and attempting to keep it from spreading further
                is now of the highest priority. At stage 4 it is expected that most people will
                find it quite difficult to concentrate on work and some everyday tasks. However,
                this doesn't apply to everyone as some will try to take their mind off things by
                attempting to be workaholics.

                Obviously one should be aware that all treatments have side effects. Expect
                to have more than one type of treatment. The stress of all that is happening can
                sometimes be a real problem in itself.

                Therefore, I have some questions to for you to think about. Are you able
                to reduce your working hours at all? How much sick leave can you take if
                you are feeling unwell? Can you work from home at all? Do you have
                someone to help you if needed?

                Good luck with your scans on Tuesday.

                Frank from Australia

                • April 18, 2011 at 1:35 pm
                mrsmarilyn
                Participant

                  Hi -My brother had a fever and a rash – that lasted about 3 days during the first week-but other than that he felt great-and the Braf was extremely effective – with 40% reduction withing the first three months.  Best of luck!

                  MrsMarilyn

                    • April 18, 2011 at 9:31 pm
                    theonlydrea
                    Participant

                      my husband got full release. so far side effects minimal. He is stage 4, his docs just said to let them know before hand.

                      • April 18, 2011 at 9:31 pm
                      theonlydrea
                      Participant

                        my husband got full release. so far side effects minimal. He is stage 4, his docs just said to let them know before hand.

                      • April 18, 2011 at 1:35 pm
                      mrsmarilyn
                      Participant

                        Hi -My brother had a fever and a rash – that lasted about 3 days during the first week-but other than that he felt great-and the Braf was extremely effective – with 40% reduction withing the first three months.  Best of luck!

                        MrsMarilyn

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