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Braf trial and side effects

Forums General Melanoma Community Braf trial and side effects

  • Post
    Erinmay22
    Participant
    I am hoping to get in a braf trial (if they can ever finally get my tissue sampled…) and was curious what folks are experiencing for side effects?

    I was confirmed stage 4 in march with mets to the lungs. Having brain MRI and ct scans done on Tuesday. Let the scanxiety begin!

    My boss has been asking me if I will have any restrictions. I haven’t really taken any time off of work thru all this, but find it harder and harder to concentrate lately at work. Plus I do a fair amount of traveling every now and then and worry that flying and not sleeping well isn’t great for my immune system while on these treatments and drugs. When not traveling I am just at an office type job all day so it’s not too hard on the body.

    just curious how folks handle their jobs and melanoma stress! Somedays are easier than others!

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  • Replies
      theonlydrea
      Participant
      My husband on braf no restriction outside of the norm on being home for check ups. Good luck!

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      theonlydrea
      Participant
      My husband on braf no restriction outside of the norm on being home for check ups. Good luck!

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      FormerCaregiver
      Participant

      Although I don't have any specific info about the side effects of BRAF
      inhibitors, I thought that I would say a bit about stress and stage 4. I am
      familiar with the feelings associated with scanxiety from a caregiver's
      viewpoint.

      I feel that fighting melanoma and attempting to keep it from spreading further
      is now of the highest priority. At stage 4 it is expected that most people will
      find it quite difficult to concentrate on work and some everyday tasks. However,
      this doesn't apply to everyone as some will try to take their mind off things by
      attempting to be workaholics.

      Obviously one should be aware that all treatments have side effects. Expect
      to have more than one type of treatment. The stress of all that is happening can
      sometimes be a real problem in itself.

      Therefore, I have some questions to for you to think about. Are you able
      to reduce your working hours at all? How much sick leave can you take if
      you are feeling unwell? Can you work from home at all? Do you have
      someone to help you if needed?

      Good luck with your scans on Tuesday.

      Frank from Australia

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      FormerCaregiver
      Participant

      Although I don't have any specific info about the side effects of BRAF
      inhibitors, I thought that I would say a bit about stress and stage 4. I am
      familiar with the feelings associated with scanxiety from a caregiver's
      viewpoint.

      I feel that fighting melanoma and attempting to keep it from spreading further
      is now of the highest priority. At stage 4 it is expected that most people will
      find it quite difficult to concentrate on work and some everyday tasks. However,
      this doesn't apply to everyone as some will try to take their mind off things by
      attempting to be workaholics.

      Obviously one should be aware that all treatments have side effects. Expect
      to have more than one type of treatment. The stress of all that is happening can
      sometimes be a real problem in itself.

      Therefore, I have some questions to for you to think about. Are you able
      to reduce your working hours at all? How much sick leave can you take if
      you are feeling unwell? Can you work from home at all? Do you have
      someone to help you if needed?

      Good luck with your scans on Tuesday.

      Frank from Australia

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      mrsmarilyn
      Participant

      Hi -My brother had a fever and a rash – that lasted about 3 days during the first week-but other than that he felt great-and the Braf was extremely effective – with 40% reduction withing the first three months.  Best of luck!

      MrsMarilyn

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        theonlydrea
        Participant

        my husband got full release. so far side effects minimal. He is stage 4, his docs just said to let them know before hand.

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        theonlydrea
        Participant

        my husband got full release. so far side effects minimal. He is stage 4, his docs just said to let them know before hand.

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      mrsmarilyn
      Participant

      Hi -My brother had a fever and a rash – that lasted about 3 days during the first week-but other than that he felt great-and the Braf was extremely effective – with 40% reduction withing the first three months.  Best of luck!

      MrsMarilyn

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