› Forums › General Melanoma Community › BRAF/MEK GREAT SCANS YEA:)!!!!!
- This topic has 24 replies, 10 voices, and was last updated 13 years, 4 months ago by
LynnLuc.
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- April 30, 2011 at 9:47 am
So after a very loooong day at Moffitt ( I know I don't have to tell anyone how that goes) and a day and a half of just flat out to busy to think, I finally have time to sit down and post about my scans on Thursday. I had my first set of scans since starting the GSK BRAF/MEK trial – while I am not NED yet π there was a 20+% shrinkage π ! I WILL TAKE IT! It made me very happy. Thank you to all of you who posted your thoughts about my scanxiety, said prayers and gave me a patron saint to pray to (Mike
So after a very loooong day at Moffitt ( I know I don't have to tell anyone how that goes) and a day and a half of just flat out to busy to think, I finally have time to sit down and post about my scans on Thursday. I had my first set of scans since starting the GSK BRAF/MEK trial – while I am not NED yet π there was a 20+% shrinkage π ! I WILL TAKE IT! It made me very happy. Thank you to all of you who posted your thoughts about my scanxiety, said prayers and gave me a patron saint to pray to (Mike π ) – It helped me tremendously – especially when I was sitting and waiting for her to come in and discuss the results. Felt like I was two seconds from a massive heart attack – and she wonders why I have days when I need a anxiety pill. Just wanted to share the news and again Thanks to everyone.
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- April 30, 2011 at 10:33 am
Congratulations on the great news! I am very happy for you!
Frank from Australia
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- April 30, 2011 at 10:33 am
Congratulations on the great news! I am very happy for you!
Frank from Australia
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- April 30, 2011 at 12:21 pm
Wonderful Hallelujah moment Dawn! Happy dance!
Lord, thank you. Amen.
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- April 30, 2011 at 12:21 pm
Wonderful Hallelujah moment Dawn! Happy dance!
Lord, thank you. Amen.
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- April 30, 2011 at 12:53 pm
That's wonderful news and I'm praying that it just keeps getting better and better!
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- April 30, 2011 at 12:53 pm
That's wonderful news and I'm praying that it just keeps getting better and better!
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- May 1, 2011 at 6:28 pm
Absolutely WONDERFUL news, Dawn! Every time i'm at Moffitt i wonder if i'm passing you in the hall π I too received great news last week. Total tumor masses shrunk by 50% with previous smaller nodules around my lungs completely disappeared! YIPPEE for both of us – and continued success on this trial!!!
-Kate (Wisconsin)
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- May 1, 2011 at 6:28 pm
Absolutely WONDERFUL news, Dawn! Every time i'm at Moffitt i wonder if i'm passing you in the hall π I too received great news last week. Total tumor masses shrunk by 50% with previous smaller nodules around my lungs completely disappeared! YIPPEE for both of us – and continued success on this trial!!!
-Kate (Wisconsin)
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- May 1, 2011 at 11:05 pm
Kate that is absolutely wonderful!!!! I am soooooo happy for you! I always wonder the same thing – am I passing Kate somewhere?- I even asked Trish if you where around when I was there! I almost asked Lettie if you where a happy camper this week but I figured she couldn't tell me. We are definetly going to have to try and coordinate!
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- May 1, 2011 at 11:05 pm
Kate that is absolutely wonderful!!!! I am soooooo happy for you! I always wonder the same thing – am I passing Kate somewhere?- I even asked Trish if you where around when I was there! I almost asked Lettie if you where a happy camper this week but I figured she couldn't tell me. We are definetly going to have to try and coordinate!
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- May 3, 2011 at 10:30 am
Hey Dawn! That is grrrreat news! I will let my brother Gary know! Although he had a great reduction as well – he is not feeling good at all. Very fatiqued and high fever. How are you feeling?
Glad you made it through "scanxiety"!!!!!
Congrats again!
MrsMarilyn
Sister of gary (stage Iv)
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- May 3, 2011 at 11:06 am
Hello MrsMarilyn
I am feeling well- Gary needs to discuss the fevers further with his drs. They have told me that they are very common if it gets to be to much for him let them know. As far as the fatigue goes I have my moments – I REFUSE to let it get the better of me. I still go non-stop with my kids. I will say that I do get joint pain and muscle fatigue in my legs. We have gone different places the last 3 or 4 weekends where I am walking quite a bit and I tend to feel it for the next 2 or 3 days. I did relay the info to my Dr. and she asked me if it was interfering with my life – I said no but I am considering asking for something the next time I go to see her – I know on Sunday when we where out and about it was becoming difficult to walk. In fact I would like to know if any of my BRAF/MEK friends are having the same problems?
Lots of Luck to you
Hugs and Smiles
Dawn
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- May 3, 2011 at 12:04 pm
Great news Dawn! Scanxiety is very common around here, so glad you got through it without any panic attacks, etc. How old are your kids??
Keep up the good work!
Vermont_Donna, stage 3a
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- May 3, 2011 at 12:04 pm
Great news Dawn! Scanxiety is very common around here, so glad you got through it without any panic attacks, etc. How old are your kids??
Keep up the good work!
Vermont_Donna, stage 3a
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- May 3, 2011 at 11:06 am
Hello MrsMarilyn
I am feeling well- Gary needs to discuss the fevers further with his drs. They have told me that they are very common if it gets to be to much for him let them know. As far as the fatigue goes I have my moments – I REFUSE to let it get the better of me. I still go non-stop with my kids. I will say that I do get joint pain and muscle fatigue in my legs. We have gone different places the last 3 or 4 weekends where I am walking quite a bit and I tend to feel it for the next 2 or 3 days. I did relay the info to my Dr. and she asked me if it was interfering with my life – I said no but I am considering asking for something the next time I go to see her – I know on Sunday when we where out and about it was becoming difficult to walk. In fact I would like to know if any of my BRAF/MEK friends are having the same problems?
Lots of Luck to you
Hugs and Smiles
Dawn
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- May 3, 2011 at 10:30 am
Hey Dawn! That is grrrreat news! I will let my brother Gary know! Although he had a great reduction as well – he is not feeling good at all. Very fatiqued and high fever. How are you feeling?
Glad you made it through "scanxiety"!!!!!
Congrats again!
MrsMarilyn
Sister of gary (stage Iv)
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