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BRAF-GSK-Another Great Scan!
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BRAF-GSK-Another Great Scan!

› Forums › General Melanoma Community › BRAF-GSK-Another Great Scan!

  • Post
    • August 20, 2010 at 4:37 pm
    mrsmarilyn
    Participant

      Hello everyone – I havent been on here since the new format.  Not sure I like it!!!  Just wanted to check in with everyone and let you know that my brother – on GSK Braf inhibitor – still showing shrinkage – with no progression.  He has been on GSK Braf – ihibitor for about 7 months.   If anyone out there wants further information – please feel free to email me.  This has been a miracle drug so far – his stage IV melanoma was progressing fast.

      Best wishes and stay hopeful.

      Mrs.Marilyn

      (sister of brother Gary stage IV)

      Hello everyone – I havent been on here since the new format.  Not sure I like it!!!  Just wanted to check in with everyone and let you know that my brother – on GSK Braf inhibitor – still showing shrinkage – with no progression.  He has been on GSK Braf – ihibitor for about 7 months.   If anyone out there wants further information – please feel free to email me.  This has been a miracle drug so far – his stage IV melanoma was progressing fast.

      Best wishes and stay hopeful.

      Mrs.Marilyn

      (sister of brother Gary stage IV)

    Viewing 4 reply threads
    • Replies
        • August 20, 2010 at 5:00 pm
        killmel
        Participant

          such great news..does he experience any side effects?

            • August 20, 2010 at 6:14 pm
            mrsmarilyn
            Participant

              Hi-During the first or second week, his joints hurt and he was flu like.  That went away and never came back.  He does get little skin tag growths-he had to have removed once.  But he feels great.  He has been thru IL-2 – high dosages, Interluekin, and this has been ez with the most effective results!  He can exhale a little now!  thanks for asking!

            • August 20, 2010 at 5:51 pm
            jag
            Participant

              very happy to hear this news.  May he continue to show shrinkage.

                • August 20, 2010 at 6:17 pm
                mrsmarilyn
                Participant

                  Thanks-love the joe dirt quote-hilarious!!!

                • August 21, 2010 at 3:40 am
                JuleFL
                Participant

                  Great news!

                  • August 21, 2010 at 9:59 pm
                  Little Pat
                  Participant

                    It is so nice that there are finally some new treatments out there to be excited about.  Congrats on the good news. Keep us posted.

                    • August 22, 2010 at 4:02 am
                    Tracey FL
                    Participant

                      Hi

                      I am so encouraged by your post.  It is great to hear that some things are helping in this battle.

                      That might be one of my moms next choices if the PD-1 does not work.  She is Stage IV and failed the first trial of vaccines.  Now we are on to the second and newer one.  Did they take a tumor off for the BRAF to test it?  She has two large ones that would be easy to get to.  Like 2 inch by 1 3/4 inch.  Are these large? 

                      Tracey

                        • August 22, 2010 at 4:13 am
                        Sharon in Reno
                        Participant

                          This is just great news…tell him we are still praying for his continued success and I am doing the happy dancecheeky…thanks for the great new…love, Sharon in Reno StageIV

                    Viewing 4 reply threads
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