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BRAF-GSK-Another Great Scan!

Forums General Melanoma Community BRAF-GSK-Another Great Scan!

  • Post
    mrsmarilyn
    Participant

    Hello everyone – I havent been on here since the new format.  Not sure I like it!!!  Just wanted to check in with everyone and let you know that my brother – on GSK Braf inhibitor – still showing shrinkage – with no progression.  He has been on GSK Braf – ihibitor for about 7 months.   If anyone out there wants further information – please feel free to email me.  This has been a miracle drug so far – his stage IV melanoma was progressing fast.

    Best wishes and stay hopeful.

    Mrs.Marilyn

    (sister of brother Gary stage IV)

    Hello everyone – I havent been on here since the new format.  Not sure I like it!!!  Just wanted to check in with everyone and let you know that my brother – on GSK Braf inhibitor – still showing shrinkage – with no progression.  He has been on GSK Braf – ihibitor for about 7 months.   If anyone out there wants further information – please feel free to email me.  This has been a miracle drug so far – his stage IV melanoma was progressing fast.

    Best wishes and stay hopeful.

    Mrs.Marilyn

    (sister of brother Gary stage IV)

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  • Replies
      killmel
      Participant

      such great news..does he experience any side effects?

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        mrsmarilyn
        Participant

        Hi-During the first or second week, his joints hurt and he was flu like.  That went away and never came back.  He does get little skin tag growths-he had to have removed once.  But he feels great.  He has been thru IL-2 – high dosages, Interluekin, and this has been ez with the most effective results!  He can exhale a little now!  thanks for asking!

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      jag
      Participant

      very happy to hear this news.  May he continue to show shrinkage.

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        mrsmarilyn
        Participant

        Thanks-love the joe dirt quote-hilarious!!!

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      JuleFL
      Participant

      Great news!

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      Little Pat
      Participant

      It is so nice that there are finally some new treatments out there to be excited about.  Congrats on the good news. Keep us posted.

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      Tracey FL
      Participant

      Hi

      I am so encouraged by your post.  It is great to hear that some things are helping in this battle.

      That might be one of my moms next choices if the PD-1 does not work.  She is Stage IV and failed the first trial of vaccines.  Now we are on to the second and newer one.  Did they take a tumor off for the BRAF to test it?  She has two large ones that would be easy to get to.  Like 2 inch by 1 3/4 inch.  Are these large? 

      Tracey

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        Sharon in Reno
        Participant

        This is just great news…tell him we are still praying for his continued success and I am doing the happy dancecheeky…thanks for the great new…love, Sharon in Reno StageIV

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