The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Blindsided

Forums General Melanoma Community Blindsided

  • Post
    Suz
    Participant
      So I had an itchy mole removed.  Shave biopsy showed to be .7 deep, non ulcerated.  Surgeon didn’t think we needed to do SLB since it was only .7.  He was confident it was a one and done situation.  Have WLE last Monday.  Wednesday get path report back that shows that it is nodular, 2.2 m deep, and mitotic rate of 8.  Pathology labeled it a 3a (which I also don’t understand because we don’t know if it is in lymph nodes yet)

      Now surgeon wants to go back in to get more margin and do SLB.  I’m reading that we should have done that first.

      Considering going to MDA.

      I’m just feeling overwhelmed and totally freaked.  I don’t even know what questions I have or what to say.

    Viewing 0 reply threads
    • Replies
        MelWave
        Participant
          Hi Suz,

          I am sorry you are finding yourself in this situation.

          3a refers to just the pathology of the excised tumor. 3 says what layer of skin the tumor reached (in your case it was quite deep) and a is that it was non-ulcerated. Your melanoma stage will be determined after SLNB and CT/MRI scan. It will be 2 or higher because of your tumor depth.

          Mitotic rate of 8 is high. It is more common in nodular melanomas like yours.

          It still doesn’t mean that your melanoma had spread but it is concerning. Please take it seriously. In this situation, yes, I would go to the best center available to you, and you need a second opinion ASAP. I would guess you still need to do SLNB (or maybe even a full dissection given that it wasn’t done at the same time as WLE? I think SLNB is more likely but it is a question for an experienced surgeon.).

          Because of your mitotic rate I personally would take as aggressive treatment path as they offer. There is immunotherapy treatment available for stage three melanoma that is being trialed for stage 2 patients (pembrolizumab or nivolumab are the names of the drugs – they are essentially the same drug). If you are stage 2 ask your treating physician in depth about possibility of getting this through trial, or otherwise, especially given the fact that your SLNB was not done at the same time as your WLE so the result is less reliable if negative.

      Viewing 0 reply threads
      • You must be logged in to reply to this topic.
      About the MRF Patient Forum

      The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

      The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.