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Arthritis after multiple immunotherapy treatments

Forums General Melanoma Community Arthritis after multiple immunotherapy treatments

  • Post
    MaryD
    Participant

      I am fortunate to be long term Stage IV survivor (7 years since last recurrence) and over a period of 8 years, did multiple treatments (INF, vaccine trial, Ipi, pulsed IL-2).

      While I'm certainly not getting any younger (61), I've really noticed more joint pain and osteoarthritis in my feet and hands.    A lot of this seemed to come on  after the pulsed IL-2 treatment but it may well be the result of cumulative treatments over time.  

      I was wondering if anyone else has experienced this after doing multiple immunotherapy treatments.  

      Thank you,

      Mary

    Viewing 2 reply threads
    • Replies
        Jubes
        Participant

          Hi mary

          i had a severe sponyloarthritis after 2 ipi and 6 months keytruda. Remicade seems to be the solution as it seems to be an inflammatory effect of the drugs but we are treating it with ketoprofen and plaquenil and steroids but reducing steroids slowly over months until I have all the screening done for remicade. 

          Anne-Louise 

            Bubbles
            Participant

              Hey Anne-Louise!

              Just mentioned you in a post above…hadn't seen this comment was posted twice!  Hope you are feeling better.  Does your comment mean you are heading toward doing remicade after all?  Think of you often, c

              Bubbles
              Participant

                Hey Anne-Louise!

                Just mentioned you in a post above…hadn't seen this comment was posted twice!  Hope you are feeling better.  Does your comment mean you are heading toward doing remicade after all?  Think of you often, c

                Bubbles
                Participant

                  Hey Anne-Louise!

                  Just mentioned you in a post above…hadn't seen this comment was posted twice!  Hope you are feeling better.  Does your comment mean you are heading toward doing remicade after all?  Think of you often, c

                Jubes
                Participant

                  Hi mary

                  i had a severe sponyloarthritis after 2 ipi and 6 months keytruda. Remicade seems to be the solution as it seems to be an inflammatory effect of the drugs but we are treating it with ketoprofen and plaquenil and steroids but reducing steroids slowly over months until I have all the screening done for remicade. 

                  Anne-Louise 

                  Jubes
                  Participant

                    Hi mary

                    i had a severe sponyloarthritis after 2 ipi and 6 months keytruda. Remicade seems to be the solution as it seems to be an inflammatory effect of the drugs but we are treating it with ketoprofen and plaquenil and steroids but reducing steroids slowly over months until I have all the screening done for remicade. 

                    Anne-Louise 

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