MRF-Logo2019-Horizontal-RGB
Anxious week
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Anxious week

› Forums › General Melanoma Community › Anxious week

  • Post
    • September 25, 2013 at 2:50 am
    aquamak
    Participant

      I haven’t posted for a while but I wanted to update everyone.  This week is a tough one for me as I am scheduled for 6-month follow-up scans.  I have a brain MRI scheduled for Wednesday AM and a full-body PET scan scheduled for Friday AM.  I see my oncologist Friday afternoon for the results.  As most of us, I have has all kinds of aches and pains, especially after my total neck dissection and parotidectomy.  Of course, I am nervous and scared of the results.  The bright side is that after my MRI on Wednesday, I get my 1st dendritic cell vaccine on the clinical trial.  After that, I will get 4 more vaccines (in up to 10 locations on my body) with close clinical follow-up afterwards for side effects or reactions.  If the trial goes as planned, the dendritic cells will boost my immune system and potentially go after any rogue melanoma cells if they exist.  I’ll keep everyone posted.

    Viewing 11 reply threads
    • Replies
        • September 25, 2013 at 3:04 am
        SABKLYN
        Participant
          I completed that trial (Drs Young and Chung) last year. Other than a little itching and a couple,of hive-like welts at the injection sites, I tolerated it very well. I think everyone can relate to the pre-scan anxiety so hang in there and look at it as one more to put in the rear view mirror. Good luck!
          • September 25, 2013 at 3:04 am
          SABKLYN
          Participant
            I completed that trial (Drs Young and Chung) last year. Other than a little itching and a couple,of hive-like welts at the injection sites, I tolerated it very well. I think everyone can relate to the pre-scan anxiety so hang in there and look at it as one more to put in the rear view mirror. Good luck!
            • September 25, 2013 at 3:04 am
            SABKLYN
            Participant
              I completed that trial (Drs Young and Chung) last year. Other than a little itching and a couple,of hive-like welts at the injection sites, I tolerated it very well. I think everyone can relate to the pre-scan anxiety so hang in there and look at it as one more to put in the rear view mirror. Good luck!
              • September 25, 2013 at 3:11 am
              JoshF
              Participant
                Oh scanxiety! One of the worst things to deal with outside of the nasty Mel word. I’ve just been diagnosed with recurrence and have same set of scans as you tomorrow, so I empathize what you’re going through. Sending positive thoughts your way and will be praying for you!

                Josh

                • September 25, 2013 at 3:11 am
                JoshF
                Participant
                  Oh scanxiety! One of the worst things to deal with outside of the nasty Mel word. I’ve just been diagnosed with recurrence and have same set of scans as you tomorrow, so I empathize what you’re going through. Sending positive thoughts your way and will be praying for you!

                  Josh

                  • September 25, 2013 at 3:11 am
                  JoshF
                  Participant
                    Oh scanxiety! One of the worst things to deal with outside of the nasty Mel word. I’ve just been diagnosed with recurrence and have same set of scans as you tomorrow, so I empathize what you’re going through. Sending positive thoughts your way and will be praying for you!

                    Josh

                    • September 25, 2013 at 3:23 am
                    Harry in Fair Oaks
                    Participant

                      For what it's worth, I had a neck dissection and parotidectomy a while ago – in 1997.  I had many many scans since.  Still around and kicking….  Good luck with the vaccine, hope it works.

                      Best wishes,

                      Harry

                      • September 25, 2013 at 3:23 am
                      Harry in Fair Oaks
                      Participant

                        For what it's worth, I had a neck dissection and parotidectomy a while ago – in 1997.  I had many many scans since.  Still around and kicking….  Good luck with the vaccine, hope it works.

                        Best wishes,

                        Harry

                        • September 25, 2013 at 3:23 am
                        Harry in Fair Oaks
                        Participant

                          For what it's worth, I had a neck dissection and parotidectomy a while ago – in 1997.  I had many many scans since.  Still around and kicking….  Good luck with the vaccine, hope it works.

                          Best wishes,

                          Harry

                          • September 28, 2013 at 1:41 am
                          aquamak
                          Participant

                            Thank you all for your kind words and support –
                            6-month PET scan and brain MRI clear-NED!

                            • September 28, 2013 at 1:41 am
                            aquamak
                            Participant

                              Thank you all for your kind words and support –
                              6-month PET scan and brain MRI clear-NED!

                              • September 28, 2013 at 1:41 am
                              aquamak
                              Participant

                                Thank you all for your kind words and support –
                                6-month PET scan and brain MRI clear-NED!

                            Viewing 11 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics