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Anti-PDL1 trials
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Anti-PDL1 trials

› Forums › General Melanoma Community › Anti-PDL1 trials

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      • June 1, 2012 at 1:53 pm
      JC
      Participant

        Sorry, I'm not answering your question; but, I read your profile and it's very scary to think that this happens – about the pathologist missing the melanoma in 2006.  Since my melanoma I've probably had 20-25 biopsies done – many of which came back as mildly atypical, Clarks Nevus, etc…. and since there are so many I don't get second opinions on all of these.  But, if just one is wrong or missed. . it's just scary to think that happens.

        • June 1, 2012 at 1:53 pm
        JC
        Participant

          Sorry, I'm not answering your question; but, I read your profile and it's very scary to think that this happens – about the pathologist missing the melanoma in 2006.  Since my melanoma I've probably had 20-25 biopsies done – many of which came back as mildly atypical, Clarks Nevus, etc…. and since there are so many I don't get second opinions on all of these.  But, if just one is wrong or missed. . it's just scary to think that happens.

          • June 1, 2012 at 1:53 pm
          JC
          Participant

            Sorry, I'm not answering your question; but, I read your profile and it's very scary to think that this happens – about the pathologist missing the melanoma in 2006.  Since my melanoma I've probably had 20-25 biopsies done – many of which came back as mildly atypical, Clarks Nevus, etc…. and since there are so many I don't get second opinions on all of these.  But, if just one is wrong or missed. . it's just scary to think that happens.

            • June 1, 2012 at 3:26 pm
            lhaley
            Participant

              I know that the anti-pd1 trial that is listed in NC (about 30 min from Charlotte) is recruiting.  I have a friend that was just accepted into the trial.  I'm not sure where you are located.  This cancer center is about 20 min (I think) from Charlotte's airport.  

              If you would like to contact my friend I'd be glad to connect you to him, I've never seen him on this site.  Send me an e-mail.

              Linda

                • June 2, 2012 at 12:48 am
                s Mom
                Participant

                  Will do – thanks 🙂

                  Bridgette (Jeff's Mom)

                  • June 2, 2012 at 12:48 am
                  s Mom
                  Participant

                    Will do – thanks 🙂

                    Bridgette (Jeff's Mom)

                    • June 2, 2012 at 12:48 am
                    s Mom
                    Participant

                      Will do – thanks 🙂

                      Bridgette (Jeff's Mom)

                    • June 1, 2012 at 3:26 pm
                    lhaley
                    Participant

                      I know that the anti-pd1 trial that is listed in NC (about 30 min from Charlotte) is recruiting.  I have a friend that was just accepted into the trial.  I'm not sure where you are located.  This cancer center is about 20 min (I think) from Charlotte's airport.  

                      If you would like to contact my friend I'd be glad to connect you to him, I've never seen him on this site.  Send me an e-mail.

                      Linda

                      • June 1, 2012 at 3:26 pm
                      lhaley
                      Participant

                        I know that the anti-pd1 trial that is listed in NC (about 30 min from Charlotte) is recruiting.  I have a friend that was just accepted into the trial.  I'm not sure where you are located.  This cancer center is about 20 min (I think) from Charlotte's airport.  

                        If you would like to contact my friend I'd be glad to connect you to him, I've never seen him on this site.  Send me an e-mail.

                        Linda

                        • June 1, 2012 at 3:36 pm
                        killmel
                        Participant

                          How is Jeff doing? If I remember is he doing Braf???

                          Did Braf stop working for Jeff and now you are looking for another treatment. I think that you told us he was going to California to get a second opionion, as well as, seeing Dr. Weber.

                          Has Jeff picked a doctor to manage his care??

                          Best of Luck to Jeff.

                          Beth

                            • June 2, 2012 at 12:30 am
                            s Mom
                            Participant

                              Hi Beth,

                              He's doing well on Zelboraf.  Last scan was excellent – 90% reduction in liver tumors and lung mets gone!  He saw Ribas and Hamid out in California and Hodi in Boston.  One oncologist suggested doing a wash and seeing if he would qualify for an anti-pdL  trial (immunotherapy).  We are thinking about it and wanted to know if any folks have had success on the anti-pdL (ligand) trial.  All the docs were great – really helpful and hopeful…liked all of them.

                              Thanks for the kind words…we're fighting!

                              Bridgette (Jeff's Mom)

                               

                               

                              • June 2, 2012 at 12:30 am
                              s Mom
                              Participant

                                Hi Beth,

                                He's doing well on Zelboraf.  Last scan was excellent – 90% reduction in liver tumors and lung mets gone!  He saw Ribas and Hamid out in California and Hodi in Boston.  One oncologist suggested doing a wash and seeing if he would qualify for an anti-pdL  trial (immunotherapy).  We are thinking about it and wanted to know if any folks have had success on the anti-pdL (ligand) trial.  All the docs were great – really helpful and hopeful…liked all of them.

                                Thanks for the kind words…we're fighting!

                                Bridgette (Jeff's Mom)

                                 

                                 

                                • June 2, 2012 at 12:30 am
                                s Mom
                                Participant

                                  Hi Beth,

                                  He's doing well on Zelboraf.  Last scan was excellent – 90% reduction in liver tumors and lung mets gone!  He saw Ribas and Hamid out in California and Hodi in Boston.  One oncologist suggested doing a wash and seeing if he would qualify for an anti-pdL  trial (immunotherapy).  We are thinking about it and wanted to know if any folks have had success on the anti-pdL (ligand) trial.  All the docs were great – really helpful and hopeful…liked all of them.

                                  Thanks for the kind words…we're fighting!

                                  Bridgette (Jeff's Mom)

                                   

                                   

                                  • June 3, 2012 at 9:52 pm
                                  awillett1991
                                  Participant
                                    Hi Beth. I’ve been lurking out here for awhile and never posted. I see Dr Sosman at Vandy. He is the best. He tried to get me into the Genentech anti pdl1 trial but they won’t take me because I have a cardiac met. I assume you are talking about MPDL 8280a. Last I’d heard from him the jury was still out on if it was working. I do know a person who already progressed out, but she has Lung cancer. No idea if they are recruiting still. Try to ask for Serena Rucker at e clinical trials number. She was great with me, just wasn’t meant to be.
                                    • June 3, 2012 at 9:52 pm
                                    awillett1991
                                    Participant
                                      Hi Beth. I’ve been lurking out here for awhile and never posted. I see Dr Sosman at Vandy. He is the best. He tried to get me into the Genentech anti pdl1 trial but they won’t take me because I have a cardiac met. I assume you are talking about MPDL 8280a. Last I’d heard from him the jury was still out on if it was working. I do know a person who already progressed out, but she has Lung cancer. No idea if they are recruiting still. Try to ask for Serena Rucker at e clinical trials number. She was great with me, just wasn’t meant to be.
                                      • June 3, 2012 at 9:52 pm
                                      awillett1991
                                      Participant
                                        Hi Beth. I’ve been lurking out here for awhile and never posted. I see Dr Sosman at Vandy. He is the best. He tried to get me into the Genentech anti pdl1 trial but they won’t take me because I have a cardiac met. I assume you are talking about MPDL 8280a. Last I’d heard from him the jury was still out on if it was working. I do know a person who already progressed out, but she has Lung cancer. No idea if they are recruiting still. Try to ask for Serena Rucker at e clinical trials number. She was great with me, just wasn’t meant to be.
                                      • June 1, 2012 at 3:36 pm
                                      killmel
                                      Participant

                                        How is Jeff doing? If I remember is he doing Braf???

                                        Did Braf stop working for Jeff and now you are looking for another treatment. I think that you told us he was going to California to get a second opionion, as well as, seeing Dr. Weber.

                                        Has Jeff picked a doctor to manage his care??

                                        Best of Luck to Jeff.

                                        Beth

                                        • June 1, 2012 at 3:36 pm
                                        killmel
                                        Participant

                                          How is Jeff doing? If I remember is he doing Braf???

                                          Did Braf stop working for Jeff and now you are looking for another treatment. I think that you told us he was going to California to get a second opionion, as well as, seeing Dr. Weber.

                                          Has Jeff picked a doctor to manage his care??

                                          Best of Luck to Jeff.

                                          Beth

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