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Anti-PD1 trials
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Anti-PD1 trials

› Forums › General Melanoma Community › Anti-PD1 trials

  • Post
    • February 13, 2013 at 6:44 pm
    dian in spokane
    Participant

      can anyone tell me where they are doing anti pd1 trials? I'm willing to travel some, but I'd prefer something on the western side of the US.

       

      thanks,

       

      dian in spokane

      can anyone tell me where they are doing anti pd1 trials? I'm willing to travel some, but I'd prefer something on the western side of the US.

       

      thanks,

       

      dian in spokane

    Viewing 2 reply threads
    • Replies
        • February 13, 2013 at 9:30 pm
        mbaelaporte
        Participant

          Anti – PD1 clinical trial  ;  Vannak Cheng  ; U of W ;  Seattle Care Alliance  ;  206 288 7219

          I just came aboard here to see what others have to say about this therapy – and I just received paperwork to review for consideration of this trial

          All the best

            • February 14, 2013 at 3:02 pm
            dian in spokane
            Participant

              hmmm.. I am looking at a DIFFERENT (I think) anti pd1 trial at SCCA, lead investigator is Dr. Chow. I don't think I found yours during my search ( I don't seem to have the numbers handy) The one I am looking at uses the anti pd 1 drug in combo with IL 21

               

              Is that the same one you are looking at?

               

              thanks,

              dian

              • February 14, 2013 at 4:58 pm
              killmel
              Participant

                yes

                • February 14, 2013 at 9:50 pm
                dian in spokane
                Participant

                  I think there's a waiting list for that trial

                  • February 14, 2013 at 10:23 pm
                  mbaelaporte
                  Participant

                    Hello  dian…the trial you are refering to appears to be a different trial ( and one I will look into )

                    The one I'm refering to is not in combo ;  just the Anti PD1 and Dr. Chow does not show on the prospectus.

                    The  trial is protocol   #BMS CA209-038  and the info in prior post mentions other essentials.

                       After responding to your post & completing my reading of prospectus I called the Coordinator and he said one of the requirements is that one's insurance co. has knowledge & supports the trial aspect –  he had already made the call to my co. and they denied coverage & do not participate in trials – especially at stage one.  My needle phobic self had been considering all the testing , scans and biopsies etc. ( and potential efficacy ) and hadn't even considered possibilty of not being accepted – quite a blow.

                      Without my even notifying my oncologist she had heard the unfortunate news & mailed me a message that sounded kind of closed also ( and very considerate ).  This morning was very full getting my daughter off to midwife school in El Paso so in time I will pursue & ask of different avenues – if one can participate if self financed to receiving help from foundations that might participate in the founding of good medicine.  Can't help but think this may be a common problem both for patients & drug companies involved in trials & hopefully there are organizations ready to step up & support this research –  think I will post a query  of this very subject.

                      For all readers I am one who has been through BRAF therapy in trial phase and through two treatments ( four infusions in three months / treatment )  about 7,8 months apart of Yervoy – any questions?  ask away

                    All the best,  john

                    • February 14, 2013 at 10:23 pm
                    mbaelaporte
                    Participant

                      Hello  dian…the trial you are refering to appears to be a different trial ( and one I will look into )

                      The one I'm refering to is not in combo ;  just the Anti PD1 and Dr. Chow does not show on the prospectus.

                      The  trial is protocol   #BMS CA209-038  and the info in prior post mentions other essentials.

                         After responding to your post & completing my reading of prospectus I called the Coordinator and he said one of the requirements is that one's insurance co. has knowledge & supports the trial aspect –  he had already made the call to my co. and they denied coverage & do not participate in trials – especially at stage one.  My needle phobic self had been considering all the testing , scans and biopsies etc. ( and potential efficacy ) and hadn't even considered possibilty of not being accepted – quite a blow.

                        Without my even notifying my oncologist she had heard the unfortunate news & mailed me a message that sounded kind of closed also ( and very considerate ).  This morning was very full getting my daughter off to midwife school in El Paso so in time I will pursue & ask of different avenues – if one can participate if self financed to receiving help from foundations that might participate in the founding of good medicine.  Can't help but think this may be a common problem both for patients & drug companies involved in trials & hopefully there are organizations ready to step up & support this research –  think I will post a query  of this very subject.

                        For all readers I am one who has been through BRAF therapy in trial phase and through two treatments ( four infusions in three months / treatment )  about 7,8 months apart of Yervoy – any questions?  ask away

                      All the best,  john

                      • February 14, 2013 at 10:23 pm
                      mbaelaporte
                      Participant

                        Hello  dian…the trial you are refering to appears to be a different trial ( and one I will look into )

                        The one I'm refering to is not in combo ;  just the Anti PD1 and Dr. Chow does not show on the prospectus.

                        The  trial is protocol   #BMS CA209-038  and the info in prior post mentions other essentials.

                           After responding to your post & completing my reading of prospectus I called the Coordinator and he said one of the requirements is that one's insurance co. has knowledge & supports the trial aspect –  he had already made the call to my co. and they denied coverage & do not participate in trials – especially at stage one.  My needle phobic self had been considering all the testing , scans and biopsies etc. ( and potential efficacy ) and hadn't even considered possibilty of not being accepted – quite a blow.

                          Without my even notifying my oncologist she had heard the unfortunate news & mailed me a message that sounded kind of closed also ( and very considerate ).  This morning was very full getting my daughter off to midwife school in El Paso so in time I will pursue & ask of different avenues – if one can participate if self financed to receiving help from foundations that might participate in the founding of good medicine.  Can't help but think this may be a common problem both for patients & drug companies involved in trials & hopefully there are organizations ready to step up & support this research –  think I will post a query  of this very subject.

                          For all readers I am one who has been through BRAF therapy in trial phase and through two treatments ( four infusions in three months / treatment )  about 7,8 months apart of Yervoy – any questions?  ask away

                        All the best,  john

                        • February 14, 2013 at 9:50 pm
                        dian in spokane
                        Participant

                          I think there's a waiting list for that trial

                          • February 14, 2013 at 9:50 pm
                          dian in spokane
                          Participant

                            I think there's a waiting list for that trial

                            • February 14, 2013 at 4:58 pm
                            killmel
                            Participant

                              yes

                              • February 14, 2013 at 4:58 pm
                              killmel
                              Participant

                                yes

                                • February 14, 2013 at 3:02 pm
                                dian in spokane
                                Participant

                                  hmmm.. I am looking at a DIFFERENT (I think) anti pd1 trial at SCCA, lead investigator is Dr. Chow. I don't think I found yours during my search ( I don't seem to have the numbers handy) The one I am looking at uses the anti pd 1 drug in combo with IL 21

                                   

                                  Is that the same one you are looking at?

                                   

                                  thanks,

                                  dian

                                  • February 14, 2013 at 3:02 pm
                                  dian in spokane
                                  Participant

                                    hmmm.. I am looking at a DIFFERENT (I think) anti pd1 trial at SCCA, lead investigator is Dr. Chow. I don't think I found yours during my search ( I don't seem to have the numbers handy) The one I am looking at uses the anti pd 1 drug in combo with IL 21

                                     

                                    Is that the same one you are looking at?

                                     

                                    thanks,

                                    dian

                                  • February 13, 2013 at 9:30 pm
                                  mbaelaporte
                                  Participant

                                    Anti – PD1 clinical trial  ;  Vannak Cheng  ; U of W ;  Seattle Care Alliance  ;  206 288 7219

                                    I just came aboard here to see what others have to say about this therapy – and I just received paperwork to review for consideration of this trial

                                    All the best

                                    • February 13, 2013 at 9:30 pm
                                    mbaelaporte
                                    Participant

                                      Anti – PD1 clinical trial  ;  Vannak Cheng  ; U of W ;  Seattle Care Alliance  ;  206 288 7219

                                      I just came aboard here to see what others have to say about this therapy – and I just received paperwork to review for consideration of this trial

                                      All the best

                                  Viewing 2 reply threads
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