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anti pd 1
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anti pd 1

› Forums › General Melanoma Community › anti pd 1

  • Post
    • February 12, 2013 at 11:47 am
    sharmon
    Participant

      brent has failed the anti pd 1 trial.   there is a doctor in area suggesting temador along with radiation.  I need an input plllease.  he is at hospice now trying to get pain under control.

      sharonl

      brent has failed the anti pd 1 trial.   there is a doctor in area suggesting temador along with radiation.  I need an input plllease.  he is at hospice now trying to get pain under control.

      sharonl

    Viewing 11 reply threads
    • Replies
        • February 12, 2013 at 1:14 pm
        susanr
        Participant

          Did he fail per. the doctors because of pain? Has he progressed?  What are the doctors saying is next step.?  Is this doctor suggesting temador and rad. tx with Brent's current doctors/team at Md Anderson or is he at another practice?  I understand what you are going through 1,000%.  If his current doctors are saying that they can't do anymore and this other doctor is offering another plan…..then go for it.

          You probably know that Temodor. like most chemo is not 100%.  Radiation works sometimes. Don't think of the stats… It may work for Brent. There are many on this forum that have had a response to this combo.  The positive thing is that the doctor has another plan/next step for Brent.  If there are options….fight !!!!!  If Brent wants to fight….then fight hard for him !!!!! 

           

          My prayers and thoughts are with you and your family.

          • February 12, 2013 at 1:14 pm
          susanr
          Participant

            Did he fail per. the doctors because of pain? Has he progressed?  What are the doctors saying is next step.?  Is this doctor suggesting temador and rad. tx with Brent's current doctors/team at Md Anderson or is he at another practice?  I understand what you are going through 1,000%.  If his current doctors are saying that they can't do anymore and this other doctor is offering another plan…..then go for it.

            You probably know that Temodor. like most chemo is not 100%.  Radiation works sometimes. Don't think of the stats… It may work for Brent. There are many on this forum that have had a response to this combo.  The positive thing is that the doctor has another plan/next step for Brent.  If there are options….fight !!!!!  If Brent wants to fight….then fight hard for him !!!!! 

             

            My prayers and thoughts are with you and your family.

              • February 12, 2013 at 1:22 pm
              sharmon
              Participant

                god bless for you for your encouragement.  I am so alone with this.  his turmors grew.  The big hospitals are done.  this is a small town guy we saw for pain management for bone met.  brent wants to fight.  he wants to live.  the big hospitals say get him up and around and bring him in.  there may be another trial.   this doctors says the cost is $6,000.00 a month.  I can do that but not for long maybe 2 months. 

                • February 12, 2013 at 3:06 pm
                POW
                Participant

                  For what it's worth, Dr. Gibney at Moffitt told my brother (stage IV with brain mets) that if the newer treatments didn't work, the only other thing he could try would be temodar. It has a low response rate but at least it does get into the brain.  

                  • February 12, 2013 at 3:06 pm
                  POW
                  Participant

                    For what it's worth, Dr. Gibney at Moffitt told my brother (stage IV with brain mets) that if the newer treatments didn't work, the only other thing he could try would be temodar. It has a low response rate but at least it does get into the brain.  

                    • February 12, 2013 at 3:06 pm
                    POW
                    Participant

                      For what it's worth, Dr. Gibney at Moffitt told my brother (stage IV with brain mets) that if the newer treatments didn't work, the only other thing he could try would be temodar. It has a low response rate but at least it does get into the brain.  

                      • February 12, 2013 at 1:22 pm
                      sharmon
                      Participant

                        god bless for you for your encouragement.  I am so alone with this.  his turmors grew.  The big hospitals are done.  this is a small town guy we saw for pain management for bone met.  brent wants to fight.  he wants to live.  the big hospitals say get him up and around and bring him in.  there may be another trial.   this doctors says the cost is $6,000.00 a month.  I can do that but not for long maybe 2 months. 

                        • February 12, 2013 at 1:22 pm
                        sharmon
                        Participant

                          god bless for you for your encouragement.  I am so alone with this.  his turmors grew.  The big hospitals are done.  this is a small town guy we saw for pain management for bone met.  brent wants to fight.  he wants to live.  the big hospitals say get him up and around and bring him in.  there may be another trial.   this doctors says the cost is $6,000.00 a month.  I can do that but not for long maybe 2 months. 

                        • February 12, 2013 at 1:14 pm
                        susanr
                        Participant

                          Did he fail per. the doctors because of pain? Has he progressed?  What are the doctors saying is next step.?  Is this doctor suggesting temador and rad. tx with Brent's current doctors/team at Md Anderson or is he at another practice?  I understand what you are going through 1,000%.  If his current doctors are saying that they can't do anymore and this other doctor is offering another plan…..then go for it.

                          You probably know that Temodor. like most chemo is not 100%.  Radiation works sometimes. Don't think of the stats… It may work for Brent. There are many on this forum that have had a response to this combo.  The positive thing is that the doctor has another plan/next step for Brent.  If there are options….fight !!!!!  If Brent wants to fight….then fight hard for him !!!!! 

                           

                          My prayers and thoughts are with you and your family.

                          • February 12, 2013 at 4:05 pm
                          aldakota22
                          Participant

                            Sorry that Brent did not get into trial.As long as  he is up to the fight ahead of him  use the  doc who has a plan .The only person who has good odds against melanoma is the person who does not have it.Keeping you both in my prayers.Beat the Beast.   Al

                            • February 12, 2013 at 4:05 pm
                            aldakota22
                            Participant

                              Sorry that Brent did not get into trial.As long as  he is up to the fight ahead of him  use the  doc who has a plan .The only person who has good odds against melanoma is the person who does not have it.Keeping you both in my prayers.Beat the Beast.   Al

                              • February 12, 2013 at 4:05 pm
                              aldakota22
                              Participant

                                Sorry that Brent did not get into trial.As long as  he is up to the fight ahead of him  use the  doc who has a plan .The only person who has good odds against melanoma is the person who does not have it.Keeping you both in my prayers.Beat the Beast.   Al

                                • February 13, 2013 at 3:51 am
                                awillett1991
                                Participant
                                  Don’t have any knowledge of Temodar, but just wanted to say I’m sorry he failed the trial, but glad you are on top of a plan for getting the pain under control. Please don’t feel you are ever alone. Melanoma is such a mystery still and many prayers for peace and a plan you are comfortable with, coming your way.
                                  • February 13, 2013 at 3:51 am
                                  awillett1991
                                  Participant
                                    Don’t have any knowledge of Temodar, but just wanted to say I’m sorry he failed the trial, but glad you are on top of a plan for getting the pain under control. Please don’t feel you are ever alone. Melanoma is such a mystery still and many prayers for peace and a plan you are comfortable with, coming your way.
                                    • February 13, 2013 at 3:51 am
                                    awillett1991
                                    Participant
                                      Don’t have any knowledge of Temodar, but just wanted to say I’m sorry he failed the trial, but glad you are on top of a plan for getting the pain under control. Please don’t feel you are ever alone. Melanoma is such a mystery still and many prayers for peace and a plan you are comfortable with, coming your way.
                                      • February 13, 2013 at 4:52 am
                                      Josh
                                      Participant

                                        Sending out healing energy to Brent. 

                                        • February 13, 2013 at 4:52 am
                                        Josh
                                        Participant

                                          Sending out healing energy to Brent. 

                                          • February 13, 2013 at 4:52 am
                                          Josh
                                          Participant

                                            Sending out healing energy to Brent. 

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