Anne-Louise update
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Anne-Louise update

› Forums › General Melanoma Community › Anne-Louise update

  • Post
    • December 8, 2015 at 11:23 am
    Jubes
    Participant

    Hi all

    had my 3 monthly Pet and ct scans yesterday and my lung tumour has shrunk and SUV decreased from 10.2 a year ago to 4.5 in September to 3.5 this time. This is great as I had to stop pembro in August after 11 months  due to really painful spondylitis through my whole body. Meanwhile for the spondylitis I have been on a combination of steroids and anti inflammatories ( ketoprofen and plaquenil) and am gradually weaning off prednisone. The oncologist is really happy and rheumatologist is going slow on the side effects and will only pull out the infliximab if all else fails. Thanks to all of you who have helped me with info and moral support!!

    anne-Louise 

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  • Replies
      • December 9, 2015 at 1:48 am
      BrianP
      Participant

      That's fantastic.  Thanks for sharing.  It is so great to hear about patients getting benefits long after treatment has stopped.

      Brian

      • December 9, 2015 at 1:48 am
      BrianP
      Participant

      That's fantastic.  Thanks for sharing.  It is so great to hear about patients getting benefits long after treatment has stopped.

      Brian

      • December 9, 2015 at 1:48 am
      BrianP
      Participant

      That's fantastic.  Thanks for sharing.  It is so great to hear about patients getting benefits long after treatment has stopped.

      Brian

      • December 9, 2015 at 2:40 am
      Bubbles
      Participant

      Oh Anne Louise! 

      So glad to hear of continued shrinkage! That's wonderful. Hopefully arthralgia shrinkage will continue too! C

      • December 9, 2015 at 2:40 am
      Bubbles
      Participant

      Oh Anne Louise! 

      So glad to hear of continued shrinkage! That's wonderful. Hopefully arthralgia shrinkage will continue too! C

      • December 9, 2015 at 2:40 am
      Bubbles
      Participant

      Oh Anne Louise! 

      So glad to hear of continued shrinkage! That's wonderful. Hopefully arthralgia shrinkage will continue too! C

        • December 9, 2015 at 10:23 am
        Jubes
        Participant

        Hi Celeste, I will let you know if we end up taking remicade. I am doing all the pre drug screening (bloods and chest x ray and TB check)so we are ready to go when the time may come. But for now giving the plaquenil a chance to work. 

        • December 9, 2015 at 10:23 am
        Jubes
        Participant

        Hi Celeste, I will let you know if we end up taking remicade. I am doing all the pre drug screening (bloods and chest x ray and TB check)so we are ready to go when the time may come. But for now giving the plaquenil a chance to work. 

        • December 9, 2015 at 10:23 am
        Jubes
        Participant

        Hi Celeste, I will let you know if we end up taking remicade. I am doing all the pre drug screening (bloods and chest x ray and TB check)so we are ready to go when the time may come. But for now giving the plaquenil a chance to work. 

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