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Amelanotic melanoma
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Amelanotic melanoma

› Forums › General Melanoma Community › Amelanotic melanoma

  • Post
    • June 29, 2015 at 8:57 pm
    Thumosity
    Participant

      I was diagnosed(6/17/15) with Amelanotic melanoma on my left forearm.I have a Breslow thickness of at least 1.1 and at least a Clark's Level III.I will have a wide excision surgery on 7/13/15 with Sentinel node biopsy.Also I have Hemophilia Factor VIII so I'm a little more concerned about the surgery(I am definitely having the surgery!)and the potential wound issues.

      My dermatologist said that she didn't have any major concerns when she biopsied the round eraser shaped/eraser colored growth on my arm(more of a cosmetic thing I guess)so it came as a pretty strong shock that it was melanoma!Thank God she did the biopsy.I guess until I know what stage I am I need to just chill…it's a little hard to relax right now.

       

    Viewing 5 reply threads
    • Replies
        • June 29, 2015 at 11:00 pm
        Jubes
        Participant

          I had an amelanotic hutchinsons freckle removed from my arm in 2003. Next thing I knew I was stage 4 with mets in lung and chest nodes in 2014. Make sure you keep monitoring. I don't want to panic you but melanoma is a sneaky disease and I hope you have stopped it in its tracks. 

          • June 29, 2015 at 11:00 pm
          Jubes
          Participant

            I had an amelanotic hutchinsons freckle removed from my arm in 2003. Next thing I knew I was stage 4 with mets in lung and chest nodes in 2014. Make sure you keep monitoring. I don't want to panic you but melanoma is a sneaky disease and I hope you have stopped it in its tracks. 

            • June 29, 2015 at 11:00 pm
            Jubes
            Participant

              I had an amelanotic hutchinsons freckle removed from my arm in 2003. Next thing I knew I was stage 4 with mets in lung and chest nodes in 2014. Make sure you keep monitoring. I don't want to panic you but melanoma is a sneaky disease and I hope you have stopped it in its tracks. 

              • June 30, 2015 at 1:56 am
              Colleen66
              Participant

                Mine was Nodular Amelanotic Melanoma.  My Doc wasn't worried about it.  a few months later I had it removed because it was a neuscince and I kept whacking it and making it bleed.  4.5 Breslow.  I had a node come back positive.  Had surface nodes removed in groin.  Did HD Interferon.  I have been holding steady at Stage 3B and I'm 3 years out. 

                Try not to panic too much.  Keep your mind occupied.  Try not to google.  And yes, I know, very hard to do 🙂

                Good luck, Colleen

                  • June 30, 2015 at 11:21 am
                  Thumosity
                  Participant

                    Colleen I'm here because I will not Google.

                    • June 30, 2015 at 12:11 pm
                    Colleen66
                    Participant

                      So glad your here instead of google.  That's half the battle in the beginning of a diagnosis.  Bravo !  We are all here to help.  Welcome 🙂

                      Colleen

                      • June 30, 2015 at 12:11 pm
                      Colleen66
                      Participant

                        So glad your here instead of google.  That's half the battle in the beginning of a diagnosis.  Bravo !  We are all here to help.  Welcome 🙂

                        Colleen

                        • June 30, 2015 at 12:11 pm
                        Colleen66
                        Participant

                          So glad your here instead of google.  That's half the battle in the beginning of a diagnosis.  Bravo !  We are all here to help.  Welcome 🙂

                          Colleen

                          • July 1, 2015 at 12:52 am
                          Squash
                          Participant

                            Why are you against google?

                            It is very important to be able to research your options.

                            I would encourage people to google to ensure that the advice they are getting is sound and that they are able to ask the right questions from their medical team.

                             

                             

                            • July 1, 2015 at 12:52 am
                            Squash
                            Participant

                              Why are you against google?

                              It is very important to be able to research your options.

                              I would encourage people to google to ensure that the advice they are getting is sound and that they are able to ask the right questions from their medical team.

                               

                               

                              • July 1, 2015 at 11:22 am
                              Colleen66
                              Participant

                                The member has not had the WLE/SNB yet.  At this point in the diagnosis I believe that googling about Melanoma can encourage the mind to assume the worst.  This does not mean that upon having a firm diagnosis you should not be as well informed as possible.

                                Colleen

                                • July 1, 2015 at 11:22 am
                                Colleen66
                                Participant

                                  The member has not had the WLE/SNB yet.  At this point in the diagnosis I believe that googling about Melanoma can encourage the mind to assume the worst.  This does not mean that upon having a firm diagnosis you should not be as well informed as possible.

                                  Colleen

                                  • July 2, 2015 at 1:35 am
                                  Thumosity
                                  Participant

                                    I will keep checking in and will post after my WLE/SNB and again after staging.All of the responses have helped…waiting sucks.

                                    Bill

                                    • July 2, 2015 at 1:35 am
                                    Thumosity
                                    Participant

                                      I will keep checking in and will post after my WLE/SNB and again after staging.All of the responses have helped…waiting sucks.

                                      Bill

                                      • July 2, 2015 at 1:35 am
                                      Thumosity
                                      Participant

                                        I will keep checking in and will post after my WLE/SNB and again after staging.All of the responses have helped…waiting sucks.

                                        Bill

                                        • July 1, 2015 at 11:22 am
                                        Colleen66
                                        Participant

                                          The member has not had the WLE/SNB yet.  At this point in the diagnosis I believe that googling about Melanoma can encourage the mind to assume the worst.  This does not mean that upon having a firm diagnosis you should not be as well informed as possible.

                                          Colleen

                                          • July 1, 2015 at 12:52 am
                                          Squash
                                          Participant

                                            Why are you against google?

                                            It is very important to be able to research your options.

                                            I would encourage people to google to ensure that the advice they are getting is sound and that they are able to ask the right questions from their medical team.

                                             

                                             

                                            • June 30, 2015 at 11:21 am
                                            Thumosity
                                            Participant

                                              Colleen I'm here because I will not Google.

                                              • June 30, 2015 at 11:21 am
                                              Thumosity
                                              Participant

                                                Colleen I'm here because I will not Google.

                                              • June 30, 2015 at 1:56 am
                                              Colleen66
                                              Participant

                                                Mine was Nodular Amelanotic Melanoma.  My Doc wasn't worried about it.  a few months later I had it removed because it was a neuscince and I kept whacking it and making it bleed.  4.5 Breslow.  I had a node come back positive.  Had surface nodes removed in groin.  Did HD Interferon.  I have been holding steady at Stage 3B and I'm 3 years out. 

                                                Try not to panic too much.  Keep your mind occupied.  Try not to google.  And yes, I know, very hard to do 🙂

                                                Good luck, Colleen

                                                • June 30, 2015 at 1:56 am
                                                Colleen66
                                                Participant

                                                  Mine was Nodular Amelanotic Melanoma.  My Doc wasn't worried about it.  a few months later I had it removed because it was a neuscince and I kept whacking it and making it bleed.  4.5 Breslow.  I had a node come back positive.  Had surface nodes removed in groin.  Did HD Interferon.  I have been holding steady at Stage 3B and I'm 3 years out. 

                                                  Try not to panic too much.  Keep your mind occupied.  Try not to google.  And yes, I know, very hard to do 🙂

                                                  Good luck, Colleen

                                              Viewing 5 reply threads
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