Allowed to stay on Roche braf study! Yahoo!

The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Allowed to stay on Roche braf study! Yahoo!

This topic has 4 replies, 2 voices, and was last updated 13 years, 8 months ago by Vermont_Donna.

Post

- March 19, 2011 at 9:51 am
- Quote
Shelly in Switzerland
Participant
The Roche study committee has decided to allow me to go back to the Brim -3 study after I finish with my WBR! This is great news since the Braf was holding the chest tumors at bay. I did progress to having 5 brain mets. I have just finished with a third of the WBR and today I have woken up with more strong side effects, effecting my left side. I slouch and trip. Doc said the WBR would cause more swelling and the symptoms would increase for some time. The steroids are drving me crazy with feeling like I've had WAY too much caffeine and hungry ALL the t

The Roche study committee has decided to allow me to go back to the Brim -3 study after I finish with my WBR! This is great news since the Braf was holding the chest tumors at bay. I did progress to having 5 brain mets. I have just finished with a third of the WBR and today I have woken up with more strong side effects, effecting my left side. I slouch and trip. Doc said the WBR would cause more swelling and the symptoms would increase for some time. The steroids are drving me crazy with feeling like I've had WAY too much caffeine and hungry ALL the time!

Viewing 1 reply thread

Replies

- - March 19, 2011 at 6:59 pm
  - Quote
  MichaelFL
  Participant
  Glad you could stay on. Rest now. Get off the computer.
  
  Michael
  - March 19, 2011 at 10:24 pm
    
    Quote
    Vermont_Donna
    Participant
    
    Shelley,
    That is GREAT news. I am sure you feel good about this news. Please be careful and dont fall and hurt yourself. I know what you mean about the ravenous hunger and jittery-ness with steroids, but oh man did I love the energy boost!
    Hugs from Vermont…we are in “sugaring season”!
    Vermont_Donna, stage 3a
  - March 19, 2011 at 10:24 pm
    
    Quote
    Vermont_Donna
    Participant
    
    Shelley,
    That is GREAT news. I am sure you feel good about this news. Please be careful and dont fall and hurt yourself. I know what you mean about the ravenous hunger and jittery-ness with steroids, but oh man did I love the energy boost!
    Hugs from Vermont…we are in “sugaring season”!
    Vermont_Donna, stage 3a
- - March 19, 2011 at 6:59 pm
  - Quote
  MichaelFL
  Participant
  Glad you could stay on. Rest now. Get off the computer.
  
  Michael

Viewing 1 reply thread

You must be logged in to reply to this topic.

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.