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Ages of Stage 4 Diagnosis?

Forums General Melanoma Community Ages of Stage 4 Diagnosis?

  • Post
    sweetaugust
    Participant

    Hi there,

    Just curious on your ages out there….what age were you diagnosed with stage 4 and how old you are now?

    I was diagnosed with my primary melanoma (stage 2) at 26 years old, then went stage 4 at 38 years old and now just turned 40.  I'm doing great.  Just wondering how many of you out there are around the same age range? 

    Laurie

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  • Replies
      starletwoman2007
      Participant

      I was diagnosed with stage 4 at 32 and am now 33 x 

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      starletwoman2007
      Participant

      I was diagnosed with stage 4 at 32 and am now 33 x 

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      starletwoman2007
      Participant

      I was diagnosed with stage 4 at 32 and am now 33 x 

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      tcell
      Participant

      Diagnosed with stage IV 3 months ago, primary unknown. I am 35 years old.

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        sofistef
        Participant

        I was diagnosed with stage 3A in April 2012 at 36. I'm now 38 and stage 4 since Oct. 2013!

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        sofistef
        Participant

        I was diagnosed with stage 3A in April 2012 at 36. I'm now 38 and stage 4 since Oct. 2013!

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        sofistef
        Participant

        I was diagnosed with stage 3A in April 2012 at 36. I'm now 38 and stage 4 since Oct. 2013!

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      tcell
      Participant

      Diagnosed with stage IV 3 months ago, primary unknown. I am 35 years old.

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      tcell
      Participant

      Diagnosed with stage IV 3 months ago, primary unknown. I am 35 years old.

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      sweetaugust
      Participant

      I'm sorry we are all forced to deal with this.  Did you all go out in the sun all the time for years?  Did you do tanning beds?  I know what I did.  I burnt myself to a crisp with yearly vacations on the beach.  And I used tanning beds for 10 years non-stop. 

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      sweetaugust
      Participant

      I'm sorry we are all forced to deal with this.  Did you all go out in the sun all the time for years?  Did you do tanning beds?  I know what I did.  I burnt myself to a crisp with yearly vacations on the beach.  And I used tanning beds for 10 years non-stop. 

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        tcell
        Participant

        Never. Got lots of moles, was always very cautious with sun, always used at least upf 30, mostly 50, checks at dermatologist on a regular basis. In february they found mets on all major organs and some bones…

        Guess my genetic disposition and / or not enough sports, too much stress may have done the job for me. Or whatever else they do not know of that might cause melanoma.

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        tcell
        Participant

        Never. Got lots of moles, was always very cautious with sun, always used at least upf 30, mostly 50, checks at dermatologist on a regular basis. In february they found mets on all major organs and some bones…

        Guess my genetic disposition and / or not enough sports, too much stress may have done the job for me. Or whatever else they do not know of that might cause melanoma.

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        JC
        Participant

        Lots of really really bad sunburns as a kid and young adult. . and having very fair skin that burns very easily in short time

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        JC
        Participant

        Lots of really really bad sunburns as a kid and young adult. . and having very fair skin that burns very easily in short time

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        JC
        Participant

        Lots of really really bad sunburns as a kid and young adult. . and having very fair skin that burns very easily in short time

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        tcell
        Participant

        Never. Got lots of moles, was always very cautious with sun, always used at least upf 30, mostly 50, checks at dermatologist on a regular basis. In february they found mets on all major organs and some bones…

        Guess my genetic disposition and / or not enough sports, too much stress may have done the job for me. Or whatever else they do not know of that might cause melanoma.

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      sweetaugust
      Participant

      I'm sorry we are all forced to deal with this.  Did you all go out in the sun all the time for years?  Did you do tanning beds?  I know what I did.  I burnt myself to a crisp with yearly vacations on the beach.  And I used tanning beds for 10 years non-stop. 

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      kpcollins31
      Participant

      First diagnosed stage IIC at 37. Now stage IV at 40. Working full time. Gym several times a week. Life goes on and I feel really good. No treatment other than surgery (NED after surgery).

      Relative to the comments about sun exposure, not all melanomas are caused by overexposure to UV rays. I really doubt that mine was caused by the sun as I was not a tanner and I have had an indoor desk job my whole life. No doubt that many are caused by overexposure to the sun so you still need to be careful. At stage IV though, I am not too concerned about the sun anymore… I put on sunscreen, wear a hat, and drive my convertible :).

      Kevin

        

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      kpcollins31
      Participant

      First diagnosed stage IIC at 37. Now stage IV at 40. Working full time. Gym several times a week. Life goes on and I feel really good. No treatment other than surgery (NED after surgery).

      Relative to the comments about sun exposure, not all melanomas are caused by overexposure to UV rays. I really doubt that mine was caused by the sun as I was not a tanner and I have had an indoor desk job my whole life. No doubt that many are caused by overexposure to the sun so you still need to be careful. At stage IV though, I am not too concerned about the sun anymore… I put on sunscreen, wear a hat, and drive my convertible :).

      Kevin

        

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        sofistef
        Participant

        I don't think mine was sun related, I grew up in Romania where melanoma is not that prevalent and I never used a tanning bed, it started when I was pregnant with my second child, missdiagnosted for 2 years when I insisted to take it out I was stage 3!:(((

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        sofistef
        Participant

        I don't think mine was sun related, I grew up in Romania where melanoma is not that prevalent and I never used a tanning bed, it started when I was pregnant with my second child, missdiagnosted for 2 years when I insisted to take it out I was stage 3!:(((

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        sweetaugust
        Participant

        So frustrating for you Sofistef.  I have a few friends that while they were pregnant, I noticed that a couple moles on them had changed.  I told them to talk to their Derm.  They did, and the Derms said they were fine, that moles can change a bit during pregnancy.  And for my friends, those moles did return to looking more normal after pregnancy, and just knowing my history with moles and melanoma, they had them removed after surgery anyway, and they were fine. 

        I know what it is like to beg for a mole to be removed.  My first melanoma was amelanotic (meaning it wasn't the typical dark ugly colors but it lacked pigment and was red.)  I went to 5 doctors and they wouldn't remove it.  I finally got a doctor to remove it, and I got the call two days later that it was 2mm melanoma.  That was my first of 4 melanomas.  Since then, the doctors remove everything I point out.  :)

        Laurie

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        sweetaugust
        Participant

        So frustrating for you Sofistef.  I have a few friends that while they were pregnant, I noticed that a couple moles on them had changed.  I told them to talk to their Derm.  They did, and the Derms said they were fine, that moles can change a bit during pregnancy.  And for my friends, those moles did return to looking more normal after pregnancy, and just knowing my history with moles and melanoma, they had them removed after surgery anyway, and they were fine. 

        I know what it is like to beg for a mole to be removed.  My first melanoma was amelanotic (meaning it wasn't the typical dark ugly colors but it lacked pigment and was red.)  I went to 5 doctors and they wouldn't remove it.  I finally got a doctor to remove it, and I got the call two days later that it was 2mm melanoma.  That was my first of 4 melanomas.  Since then, the doctors remove everything I point out.  :)

        Laurie

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        sweetaugust
        Participant

        So frustrating for you Sofistef.  I have a few friends that while they were pregnant, I noticed that a couple moles on them had changed.  I told them to talk to their Derm.  They did, and the Derms said they were fine, that moles can change a bit during pregnancy.  And for my friends, those moles did return to looking more normal after pregnancy, and just knowing my history with moles and melanoma, they had them removed after surgery anyway, and they were fine. 

        I know what it is like to beg for a mole to be removed.  My first melanoma was amelanotic (meaning it wasn't the typical dark ugly colors but it lacked pigment and was red.)  I went to 5 doctors and they wouldn't remove it.  I finally got a doctor to remove it, and I got the call two days later that it was 2mm melanoma.  That was my first of 4 melanomas.  Since then, the doctors remove everything I point out.  :)

        Laurie

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        sofistef
        Participant

        I don't think mine was sun related, I grew up in Romania where melanoma is not that prevalent and I never used a tanning bed, it started when I was pregnant with my second child, missdiagnosted for 2 years when I insisted to take it out I was stage 3!:(((

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      kpcollins31
      Participant

      First diagnosed stage IIC at 37. Now stage IV at 40. Working full time. Gym several times a week. Life goes on and I feel really good. No treatment other than surgery (NED after surgery).

      Relative to the comments about sun exposure, not all melanomas are caused by overexposure to UV rays. I really doubt that mine was caused by the sun as I was not a tanner and I have had an indoor desk job my whole life. No doubt that many are caused by overexposure to the sun so you still need to be careful. At stage IV though, I am not too concerned about the sun anymore… I put on sunscreen, wear a hat, and drive my convertible :).

      Kevin

        

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      BrianP
      Participant

      Stage IA at 38 years old

      Stage IIIB at 43 years old

      Stage IV at 45 years old

      NED at TBD

       

      Brian

       

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      BrianP
      Participant

      Stage IA at 38 years old

      Stage IIIB at 43 years old

      Stage IV at 45 years old

      NED at TBD

       

      Brian

       

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        hdevlin
        Participant

        I was diagnosed stage 1 in February, 2010, age 38. Diagnosed stage 4 September, 2011, age 39. I was in the sun as much as I could be as a young person and used tanning beds on a very regular basis between 15-25. I had several blistering, peeling burns before age 18.

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        hdevlin
        Participant

        I was diagnosed stage 1 in February, 2010, age 38. Diagnosed stage 4 September, 2011, age 39. I was in the sun as much as I could be as a young person and used tanning beds on a very regular basis between 15-25. I had several blistering, peeling burns before age 18.

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        hdevlin
        Participant

        I was diagnosed stage 1 in February, 2010, age 38. Diagnosed stage 4 September, 2011, age 39. I was in the sun as much as I could be as a young person and used tanning beds on a very regular basis between 15-25. I had several blistering, peeling burns before age 18.

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      BrianP
      Participant

      Stage IA at 38 years old

      Stage IIIB at 43 years old

      Stage IV at 45 years old

      NED at TBD

       

      Brian

       

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      Mary from Aus
      Participant

      I was diagnosed with Stage 1A back in August 2007 and with Stage IV in September 2013 at the age of 40. 

      I've had one round of ipi (from Nov 13 to Jan 14) and have responded well with some tumours disappearing and others shrinking or stable. I had some surgery last week to get rid of one of the bigger remaining ones and also a small one that was growing.

       

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      Mary from Aus
      Participant

      I was diagnosed with Stage 1A back in August 2007 and with Stage IV in September 2013 at the age of 40. 

      I've had one round of ipi (from Nov 13 to Jan 14) and have responded well with some tumours disappearing and others shrinking or stable. I had some surgery last week to get rid of one of the bigger remaining ones and also a small one that was growing.

       

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        JC
        Participant

        It's scary to see the multiple stories of initial Stage I or IA that became IV.  This is why I scoff at the doctors that keep saying "low risk" and "you're good to go" etc… 

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        JC
        Participant

        It's scary to see the multiple stories of initial Stage I or IA that became IV.  This is why I scoff at the doctors that keep saying "low risk" and "you're good to go" etc… 

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        SBeattie
        Participant

        Stage 2a (albeit scalp…lots of blood vessels in which the sneaky mel can take a swim; lymph nodes clear) 8.2011, age 58…local recurrence 2.2012; stage IV with lung met 8.2013, removed; recurrent lung  mets 12.2013…on ipi/nivo trial since 1.2014…ha, like Brian P…NED TBA!

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        SBeattie
        Participant

        Stage 2a (albeit scalp…lots of blood vessels in which the sneaky mel can take a swim; lymph nodes clear) 8.2011, age 58…local recurrence 2.2012; stage IV with lung met 8.2013, removed; recurrent lung  mets 12.2013…on ipi/nivo trial since 1.2014…ha, like Brian P…NED TBA!

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        SBeattie
        Participant

        Stage 2a (albeit scalp…lots of blood vessels in which the sneaky mel can take a swim; lymph nodes clear) 8.2011, age 58…local recurrence 2.2012; stage IV with lung met 8.2013, removed; recurrent lung  mets 12.2013…on ipi/nivo trial since 1.2014…ha, like Brian P…NED TBA!

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        JC
        Participant

        It's scary to see the multiple stories of initial Stage I or IA that became IV.  This is why I scoff at the doctors that keep saying "low risk" and "you're good to go" etc… 

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      Mary from Aus
      Participant

      I was diagnosed with Stage 1A back in August 2007 and with Stage IV in September 2013 at the age of 40. 

      I've had one round of ipi (from Nov 13 to Jan 14) and have responded well with some tumours disappearing and others shrinking or stable. I had some surgery last week to get rid of one of the bigger remaining ones and also a small one that was growing.

       

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      sweetaugust
      Participant

      I am always trying to figure out why it spreads and how to slow it down.  I am noticing that some of your melanomas were spreading from stage 1 to stage 4 in a year or a few years.  With my stage 2 it took 12 years to spread from my left arm to my lymph nodes throughout my arm pits and chest area.  Why was mine so much slower to advance?  And once mine did advance to stage 4, it doubled in size in 3 months and was growing so fast.  Until 6 months into my treatment on MK-3475 that is.  Then it started shrinking and it appears to be almost gone. 

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      sweetaugust
      Participant

      I am always trying to figure out why it spreads and how to slow it down.  I am noticing that some of your melanomas were spreading from stage 1 to stage 4 in a year or a few years.  With my stage 2 it took 12 years to spread from my left arm to my lymph nodes throughout my arm pits and chest area.  Why was mine so much slower to advance?  And once mine did advance to stage 4, it doubled in size in 3 months and was growing so fast.  Until 6 months into my treatment on MK-3475 that is.  Then it started shrinking and it appears to be almost gone. 

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        JC
        Participant

        so is it a matter of when, not if?

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        JC
        Participant

        so is it a matter of when, not if?

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        JC
        Participant

        so is it a matter of when, not if?

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      sweetaugust
      Participant

      I am always trying to figure out why it spreads and how to slow it down.  I am noticing that some of your melanomas were spreading from stage 1 to stage 4 in a year or a few years.  With my stage 2 it took 12 years to spread from my left arm to my lymph nodes throughout my arm pits and chest area.  Why was mine so much slower to advance?  And once mine did advance to stage 4, it doubled in size in 3 months and was growing so fast.  Until 6 months into my treatment on MK-3475 that is.  Then it started shrinking and it appears to be almost gone. 

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      Mat
      Participant

      May 2003 (29) – Stage I, .5MM (signs of regression to .7MM).  Wide excision and sentinel lymph node testing all clear.  Followed by melanoma specialist for 10 years of uneventful appointments.

      June/July 2013 (39) – Stage IV with relatively few symptoms but metastasis to multiple organs, including 15 or so liver tumors.  (Presently doing well with a reduced tumor burden primarily due to the GSK combo).

      So, yes, for the anonymous poster who questioned the prevailing wisdom about Stage I and the passage of time–it can happen (though it usually does not).

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      Mat
      Participant

      May 2003 (29) – Stage I, .5MM (signs of regression to .7MM).  Wide excision and sentinel lymph node testing all clear.  Followed by melanoma specialist for 10 years of uneventful appointments.

      June/July 2013 (39) – Stage IV with relatively few symptoms but metastasis to multiple organs, including 15 or so liver tumors.  (Presently doing well with a reduced tumor burden primarily due to the GSK combo).

      So, yes, for the anonymous poster who questioned the prevailing wisdom about Stage I and the passage of time–it can happen (though it usually does not).

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        JC
        Participant

        could have been a different primary, not diagnosed – deeper than the initial one

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        JC
        Participant

        could have been a different primary, not diagnosed – deeper than the initial one

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        JC
        Participant

        they do lymph node testing for 0.5mm?

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        JC
        Participant

        they do lymph node testing for 0.5mm?

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        JC
        Participant

        they do lymph node testing for 0.5mm?

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        JC
        Participant

        could have been a different primary, not diagnosed – deeper than the initial one

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      Mat
      Participant

      May 2003 (29) – Stage I, .5MM (signs of regression to .7MM).  Wide excision and sentinel lymph node testing all clear.  Followed by melanoma specialist for 10 years of uneventful appointments.

      June/July 2013 (39) – Stage IV with relatively few symptoms but metastasis to multiple organs, including 15 or so liver tumors.  (Presently doing well with a reduced tumor burden primarily due to the GSK combo).

      So, yes, for the anonymous poster who questioned the prevailing wisdom about Stage I and the passage of time–it can happen (though it usually does not).

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      arthurjedi007
      Participant

      Stage 4 June 21 2013 age 46  did maybe a dozen or so tan booth times in my mid 20s, had some sun burns as a kid, had awful cystic acne as a teen and finally did acutane when I was 20

      Actually though first symptom was Oct 2012 when a couple times for a moment I couldn't stand but doc thought it was back muscle spasms.

      Finally spread out of my bones to lymph node in April 23 2014 pet scan.

       

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      arthurjedi007
      Participant

      Stage 4 June 21 2013 age 46  did maybe a dozen or so tan booth times in my mid 20s, had some sun burns as a kid, had awful cystic acne as a teen and finally did acutane when I was 20

      Actually though first symptom was Oct 2012 when a couple times for a moment I couldn't stand but doc thought it was back muscle spasms.

      Finally spread out of my bones to lymph node in April 23 2014 pet scan.

       

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      arthurjedi007
      Participant

      Stage 4 June 21 2013 age 46  did maybe a dozen or so tan booth times in my mid 20s, had some sun burns as a kid, had awful cystic acne as a teen and finally did acutane when I was 20

      Actually though first symptom was Oct 2012 when a couple times for a moment I couldn't stand but doc thought it was back muscle spasms.

      Finally spread out of my bones to lymph node in April 23 2014 pet scan.

       

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      mau
      Participant

      primary 1995  (31 years old)

      NED 1995 -2000

      Stage iv 2001   (37yo)

      NED 2003 -2011

      2011 – present  …. as Charlie S. says, "not dead yet"

      Just turned 50!  In 2000, as a single mom with two small kids, when disease progressed to stage3, was told I wouldn't make it to 40.  What do "they" know? Both kids are wonderful young adults and I am very thankful to have grown them up and pray daily that I will know my grandkids. (which aren't due any sooner than 5 years from now!)

      Irish white skin always sunburned before tanning.  Back in the 70's we used sun tan lotion, not sunscreen!

      Learned to swim at 3 and spent every momnet of every summer outside if I could.

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      mau
      Participant

      primary 1995  (31 years old)

      NED 1995 -2000

      Stage iv 2001   (37yo)

      NED 2003 -2011

      2011 – present  …. as Charlie S. says, "not dead yet"

      Just turned 50!  In 2000, as a single mom with two small kids, when disease progressed to stage3, was told I wouldn't make it to 40.  What do "they" know? Both kids are wonderful young adults and I am very thankful to have grown them up and pray daily that I will know my grandkids. (which aren't due any sooner than 5 years from now!)

      Irish white skin always sunburned before tanning.  Back in the 70's we used sun tan lotion, not sunscreen!

      Learned to swim at 3 and spent every momnet of every summer outside if I could.

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      mau
      Participant

      primary 1995  (31 years old)

      NED 1995 -2000

      Stage iv 2001   (37yo)

      NED 2003 -2011

      2011 – present  …. as Charlie S. says, "not dead yet"

      Just turned 50!  In 2000, as a single mom with two small kids, when disease progressed to stage3, was told I wouldn't make it to 40.  What do "they" know? Both kids are wonderful young adults and I am very thankful to have grown them up and pray daily that I will know my grandkids. (which aren't due any sooner than 5 years from now!)

      Irish white skin always sunburned before tanning.  Back in the 70's we used sun tan lotion, not sunscreen!

      Learned to swim at 3 and spent every momnet of every summer outside if I could.

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      Treesie
      Participant

      My husband went from having three malignant melanomas removed 8 years ago with clear margins and nothing else done to him now being 58 and stage IV.  Involvement is lung, colon, stomach, gallbladder, lymphnodes, adrenal gland and 12 brain lesions.

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      Treesie
      Participant

      My husband went from having three malignant melanomas removed 8 years ago with clear margins and nothing else done to him now being 58 and stage IV.  Involvement is lung, colon, stomach, gallbladder, lymphnodes, adrenal gland and 12 brain lesions.

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      Treesie
      Participant

      My husband went from having three malignant melanomas removed 8 years ago with clear margins and nothing else done to him now being 58 and stage IV.  Involvement is lung, colon, stomach, gallbladder, lymphnodes, adrenal gland and 12 brain lesions.

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      DZnDef
      Participant

      I was Stage IV in July 2012 but misdiagnosed as lung cancer (carcinoid) at that time.  Had a lobectomy and went on with life.  New mets in other lung discovered January 2014.  No mets anywhere else.  Lung needle biopsy in March determined metastatic melanoma unknown primary.  Weighing options now.  I'm 48 (was 46 when it first showed up).

      Had a couple of sunburns as a child and one tanning bed experience as an adult (did not like it).  I was always told I tanned beautifully so I kept it up with minimal sunscreen.  Now I have cancer and wrinkles to show for it.  Oh well.  I also have loads of moles.

      Maggie

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      DZnDef
      Participant

      I was Stage IV in July 2012 but misdiagnosed as lung cancer (carcinoid) at that time.  Had a lobectomy and went on with life.  New mets in other lung discovered January 2014.  No mets anywhere else.  Lung needle biopsy in March determined metastatic melanoma unknown primary.  Weighing options now.  I'm 48 (was 46 when it first showed up).

      Had a couple of sunburns as a child and one tanning bed experience as an adult (did not like it).  I was always told I tanned beautifully so I kept it up with minimal sunscreen.  Now I have cancer and wrinkles to show for it.  Oh well.  I also have loads of moles.

      Maggie

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        Brendan
        Participant

        Stage I at 36

        Stage IV at 39

        Currently 42 (telling myself that I am thisclose to NED)

         

        Good luck!

        Brendan

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        Brendan
        Participant

        Stage I at 36

        Stage IV at 39

        Currently 42 (telling myself that I am thisclose to NED)

         

        Good luck!

        Brendan

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        Brendan
        Participant

        Stage I at 36

        Stage IV at 39

        Currently 42 (telling myself that I am thisclose to NED)

         

        Good luck!

        Brendan

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      DZnDef
      Participant

      I was Stage IV in July 2012 but misdiagnosed as lung cancer (carcinoid) at that time.  Had a lobectomy and went on with life.  New mets in other lung discovered January 2014.  No mets anywhere else.  Lung needle biopsy in March determined metastatic melanoma unknown primary.  Weighing options now.  I'm 48 (was 46 when it first showed up).

      Had a couple of sunburns as a child and one tanning bed experience as an adult (did not like it).  I was always told I tanned beautifully so I kept it up with minimal sunscreen.  Now I have cancer and wrinkles to show for it.  Oh well.  I also have loads of moles.

      Maggie

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      Tina D
      Participant

      Diagnosed initial mole at 37y/o. Became stage IV at age 40 and just turned 50 last month :-)

      Tina

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      Tina D
      Participant

      Diagnosed initial mole at 37y/o. Became stage IV at age 40 and just turned 50 last month :-)

      Tina

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        sweetaugust
        Participant

        Tina D,

        From reading your profile I see that you and I have a few things in common.  My primary was also amelanotic.  Just as you discribed…it was raised and looked like a pink pencil eraser.  I went to five doctors before one of them agreed to remove it.  I didn't even know that skin cancer existed at that time (I was 26 years old.)  So when my doctor called me two days later with the results, I was unaware of this word melanoma. 

        I too am on the Merck MK-3475 trial.  I have been on it for 1.5 years.  I am very thankful for it, as I am doing great and am what I believe is almost NED.  So I hope to be posting when I turn 50 like you.  :)

        Much luck to you,

        Laurie

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        sweetaugust
        Participant

        Tina D,

        From reading your profile I see that you and I have a few things in common.  My primary was also amelanotic.  Just as you discribed…it was raised and looked like a pink pencil eraser.  I went to five doctors before one of them agreed to remove it.  I didn't even know that skin cancer existed at that time (I was 26 years old.)  So when my doctor called me two days later with the results, I was unaware of this word melanoma. 

        I too am on the Merck MK-3475 trial.  I have been on it for 1.5 years.  I am very thankful for it, as I am doing great and am what I believe is almost NED.  So I hope to be posting when I turn 50 like you.  :)

        Much luck to you,

        Laurie

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        sweetaugust
        Participant

        Tina D,

        From reading your profile I see that you and I have a few things in common.  My primary was also amelanotic.  Just as you discribed…it was raised and looked like a pink pencil eraser.  I went to five doctors before one of them agreed to remove it.  I didn't even know that skin cancer existed at that time (I was 26 years old.)  So when my doctor called me two days later with the results, I was unaware of this word melanoma. 

        I too am on the Merck MK-3475 trial.  I have been on it for 1.5 years.  I am very thankful for it, as I am doing great and am what I believe is almost NED.  So I hope to be posting when I turn 50 like you.  :)

        Much luck to you,

        Laurie

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        magnus31
        Participant

        Over 10 years NED at stage IV is just fantastic! I am so happy for you.

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        magnus31
        Participant

        Over 10 years NED at stage IV is just fantastic! I am so happy for you.

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        magnus31
        Participant

        Over 10 years NED at stage IV is just fantastic! I am so happy for you.

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        rick1981
        Participant

        My wife was 32 went her mole first got ithcy & bleedy (September 2013) – but because the family doctor burnt away the mole (!) no definitive stage or Breslow depth could be established.

        They then diagnosed her with melanoma in January 2014 – sentinal node done, armpit biopsies whilst the primary was removed with a large diameter (6x10cm). Most likely stage 3xxx.

        Proclaimed "clean" but then metastases in June 2014 – Stage 4. Just before her 33rd birthday.

        But she claimed the other day she will turn 88 anyhow, let's hope for that :D

         

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        rick1981
        Participant

        My wife was 32 went her mole first got ithcy & bleedy (September 2013) – but because the family doctor burnt away the mole (!) no definitive stage or Breslow depth could be established.

        They then diagnosed her with melanoma in January 2014 – sentinal node done, armpit biopsies whilst the primary was removed with a large diameter (6x10cm). Most likely stage 3xxx.

        Proclaimed "clean" but then metastases in June 2014 – Stage 4. Just before her 33rd birthday.

        But she claimed the other day she will turn 88 anyhow, let's hope for that :D

         

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        rick1981
        Participant

        My wife was 32 went her mole first got ithcy & bleedy (September 2013) – but because the family doctor burnt away the mole (!) no definitive stage or Breslow depth could be established.

        They then diagnosed her with melanoma in January 2014 – sentinal node done, armpit biopsies whilst the primary was removed with a large diameter (6x10cm). Most likely stage 3xxx.

        Proclaimed "clean" but then metastases in June 2014 – Stage 4. Just before her 33rd birthday.

        But she claimed the other day she will turn 88 anyhow, let's hope for that :D

         

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      Tina D
      Participant

      Diagnosed initial mole at 37y/o. Became stage IV at age 40 and just turned 50 last month :-)

      Tina

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