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Adjuvant therapy for stage 3b
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Adjuvant therapy for stage 3b

› Forums › General Melanoma Community › Adjuvant therapy for stage 3b

  • Post
    • December 1, 2016 at 3:00 am
    Kimmie82
    Participant

      Hi all…I'm seeking some advice for adjuvant therapy after my latest diagnosis of an in transient metastasis. Luckily my scans were clear everywhere else so I went from a stage IIIa (which was my orginial diagnosis) to now a stage IIIb. It's been 7 years I was disease free and then it decided to rear its ugly head agsin! I recently had wide excision and now contemplating immunotherapy. So my question is to yervoy or not yervoy? 

      any thoughts or experiences greatly appreciated! 

      <3 Kim 

    Viewing 8 reply threads
    • Replies
        • December 1, 2016 at 4:45 am
        jennunicorn
        Participant

          I did Yervoy in the adjuvant setting, I was diagnosed 3b a year ago. I did all the main doses and a couple of maintenance doses, with minimal side effects. Unfortunately it didn't work for me, and I am now 3c and doing Yervoy/Opdivo combo treatment. 

          It's a personal choice, whether you feel you have to "do something" by doing treatment or if you're comfortable with watch and wait. Some people get freaked out about side effects.. I always say no one can predict what side effects they may or may not encounter since everyone's body reacts differently. There are also trials for adjuvant stage 3 using the more effective immunotherapy drugs, that could be something to look into as well.

          Sorry you have to be back in the world of melanoma, but if it was going to come back, at least it's during a time of great advancements in treatment.

          If you want to read more about my journey, side effects, etc check out my profile.

          All the best,

          • December 1, 2016 at 4:45 am
          jennunicorn
          Participant

            I did Yervoy in the adjuvant setting, I was diagnosed 3b a year ago. I did all the main doses and a couple of maintenance doses, with minimal side effects. Unfortunately it didn't work for me, and I am now 3c and doing Yervoy/Opdivo combo treatment. 

            It's a personal choice, whether you feel you have to "do something" by doing treatment or if you're comfortable with watch and wait. Some people get freaked out about side effects.. I always say no one can predict what side effects they may or may not encounter since everyone's body reacts differently. There are also trials for adjuvant stage 3 using the more effective immunotherapy drugs, that could be something to look into as well.

            Sorry you have to be back in the world of melanoma, but if it was going to come back, at least it's during a time of great advancements in treatment.

            If you want to read more about my journey, side effects, etc check out my profile.

            All the best,

            • December 1, 2016 at 4:45 am
            jennunicorn
            Participant

              I did Yervoy in the adjuvant setting, I was diagnosed 3b a year ago. I did all the main doses and a couple of maintenance doses, with minimal side effects. Unfortunately it didn't work for me, and I am now 3c and doing Yervoy/Opdivo combo treatment. 

              It's a personal choice, whether you feel you have to "do something" by doing treatment or if you're comfortable with watch and wait. Some people get freaked out about side effects.. I always say no one can predict what side effects they may or may not encounter since everyone's body reacts differently. There are also trials for adjuvant stage 3 using the more effective immunotherapy drugs, that could be something to look into as well.

              Sorry you have to be back in the world of melanoma, but if it was going to come back, at least it's during a time of great advancements in treatment.

              If you want to read more about my journey, side effects, etc check out my profile.

              All the best,

              • December 1, 2016 at 4:49 am
              gregor913
              Participant
                I did yervoy and tolerated it well. A year later i did just find out that i might have a recurrance. I saw a freckle on my wle that tested positive for melanoma. How did your intransient present. Mine just found was in situ. During my yervoy treatment i used probiotics and goats milk for the itching. The decision is up to you but at stage 3 theres not many drugs approved. A little more information on your reoccurance might be beneficial to post. Was it many? How deep was it? What did it look like? Glad your pet scan was clear.
                  • December 5, 2016 at 2:01 am
                  Kimmie82
                  Participant

                    Thank you for your response. 🙂 My reoccurrence was just up from my primary as an in situ…clear margins with surgery and no residual but did measure 2mm? How long was it between your primary and your reoccurrence? 

                    Kim 

                    • December 5, 2016 at 2:01 am
                    Kimmie82
                    Participant

                      Thank you for your response. 🙂 My reoccurrence was just up from my primary as an in situ…clear margins with surgery and no residual but did measure 2mm? How long was it between your primary and your reoccurrence? 

                      Kim 

                      • December 5, 2016 at 2:03 am
                      Kimmie82
                      Participant

                        I forgot to post what it looked like. It looked like a blackhead. My onco told me he wouldn't of even of went to dr over it…crazy?! 

                        • December 5, 2016 at 2:03 am
                        Kimmie82
                        Participant

                          I forgot to post what it looked like. It looked like a blackhead. My onco told me he wouldn't of even of went to dr over it…crazy?! 

                          • December 5, 2016 at 2:03 am
                          Kimmie82
                          Participant

                            I forgot to post what it looked like. It looked like a blackhead. My onco told me he wouldn't of even of went to dr over it…crazy?! 

                            • December 5, 2016 at 2:01 am
                            Kimmie82
                            Participant

                              Thank you for your response. 🙂 My reoccurrence was just up from my primary as an in situ…clear margins with surgery and no residual but did measure 2mm? How long was it between your primary and your reoccurrence? 

                              Kim 

                            • December 1, 2016 at 4:49 am
                            gregor913
                            Participant
                              I did yervoy and tolerated it well. A year later i did just find out that i might have a recurrance. I saw a freckle on my wle that tested positive for melanoma. How did your intransient present. Mine just found was in situ. During my yervoy treatment i used probiotics and goats milk for the itching. The decision is up to you but at stage 3 theres not many drugs approved. A little more information on your reoccurance might be beneficial to post. Was it many? How deep was it? What did it look like? Glad your pet scan was clear.
                              • December 1, 2016 at 4:49 am
                              gregor913
                              Participant
                                I did yervoy and tolerated it well. A year later i did just find out that i might have a recurrance. I saw a freckle on my wle that tested positive for melanoma. How did your intransient present. Mine just found was in situ. During my yervoy treatment i used probiotics and goats milk for the itching. The decision is up to you but at stage 3 theres not many drugs approved. A little more information on your reoccurance might be beneficial to post. Was it many? How deep was it? What did it look like? Glad your pet scan was clear.
                                • December 1, 2016 at 7:25 am
                                SOLE
                                Participant

                                  You might want to try this

                                  https://clinicaltrials.gov/ct2/show/NCT02656706

                                  This is what I m looking at right now if I can get in

                                    • December 1, 2016 at 9:53 pm
                                    dmturner
                                    Participant

                                      I did 3 10 mg Yervoy infusions and was scheduled to do the last one.  I had a reoccurence (satellite) close to the primary right before my 4th.  So stopped Yervoy.  Now we are looking to do Keytruda.  I have my 2nd PET scan on the 14th. 

                                      Crazy they said NED and watch and wait and now saying Keytruda.

                                      Best of luck!!  No looking back.

                                      Donna

                                      • December 1, 2016 at 9:53 pm
                                      dmturner
                                      Participant

                                        I did 3 10 mg Yervoy infusions and was scheduled to do the last one.  I had a reoccurence (satellite) close to the primary right before my 4th.  So stopped Yervoy.  Now we are looking to do Keytruda.  I have my 2nd PET scan on the 14th. 

                                        Crazy they said NED and watch and wait and now saying Keytruda.

                                        Best of luck!!  No looking back.

                                        Donna

                                        • December 1, 2016 at 9:53 pm
                                        dmturner
                                        Participant

                                          I did 3 10 mg Yervoy infusions and was scheduled to do the last one.  I had a reoccurence (satellite) close to the primary right before my 4th.  So stopped Yervoy.  Now we are looking to do Keytruda.  I have my 2nd PET scan on the 14th. 

                                          Crazy they said NED and watch and wait and now saying Keytruda.

                                          Best of luck!!  No looking back.

                                          Donna

                                          • December 5, 2016 at 1:58 am
                                          Kimmie82
                                          Participant

                                            Thank you for your response. How much time was their between your first primary and the satellite reoccurrence? 

                                            Best of luck with Keytruda! Look at Jimmy Carter! 😉 

                                            Kim 

                                            • December 5, 2016 at 1:58 am
                                            Kimmie82
                                            Participant

                                              Thank you for your response. How much time was their between your first primary and the satellite reoccurrence? 

                                              Best of luck with Keytruda! Look at Jimmy Carter! 😉 

                                              Kim 

                                              • December 5, 2016 at 1:58 am
                                              Kimmie82
                                              Participant

                                                Thank you for your response. How much time was their between your first primary and the satellite reoccurrence? 

                                                Best of luck with Keytruda! Look at Jimmy Carter! 😉 

                                                Kim 

                                              • December 1, 2016 at 7:25 am
                                              SOLE
                                              Participant

                                                You might want to try this

                                                https://clinicaltrials.gov/ct2/show/NCT02656706

                                                This is what I m looking at right now if I can get in

                                                • December 1, 2016 at 7:25 am
                                                SOLE
                                                Participant

                                                  You might want to try this

                                                  https://clinicaltrials.gov/ct2/show/NCT02656706

                                                  This is what I m looking at right now if I can get in

                                              Viewing 8 reply threads
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