A good christmas and precious time
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A good christmas and precious time

› Forums › General Melanoma Community › A good christmas and precious time

  • Post
    • December 29, 2013 at 5:08 am
    hdelancey23
    Participant
    I am up visiting my mom for Christmas. And it has been a great time. My mom is doing as well as can be expected. The morphine is really helping in managing her pain at home. She does okay through the day but it is the mornings that are the worst on her. It is hard for her to get up out of bed and very painful for her. I guess it is from the morphine wearing off through the night and it seems like her body is very very stiff. She has consultation for WBR next week and will start next week as well. I am nervous to see how she takes a second dose of it. I am just praying that it might buy some more time to get into the pd1 trials. At this point for me any more Tim that we can get is very precious. She is such a fighter and so strong. Her doctors told her last December that she only had three to six months and now here we are a year later. To all those that are fighting this horrible disease and to family members that are watching their loved ones struggle you can’t always go by what the doctors say. Keep fighting and keep hoping.
Viewing 20 reply threads
  • Replies
      • December 29, 2013 at 6:43 am
      Jahendry12
      Participant

      Keeping you, your mom & your family in my prayers. 

      • December 29, 2013 at 6:43 am
      Jahendry12
      Participant

      Keeping you, your mom & your family in my prayers. 

        • December 29, 2013 at 12:52 pm
        MichaelFL
        Participant

        I am glad that you have the chance to spend some time with her over the holidays. May she continue to be as pain free as possible during this difficult time.

        • December 29, 2013 at 12:52 pm
        MichaelFL
        Participant

        I am glad that you have the chance to spend some time with her over the holidays. May she continue to be as pain free as possible during this difficult time.

        • December 29, 2013 at 12:52 pm
        MichaelFL
        Participant

        I am glad that you have the chance to spend some time with her over the holidays. May she continue to be as pain free as possible during this difficult time.

      • December 29, 2013 at 6:43 am
      Jahendry12
      Participant

      Keeping you, your mom & your family in my prayers. 

      • December 29, 2013 at 3:24 pm
      casagrayson
      Participant

      Hang on to that fighting spirit, Denise!  heart

      • December 29, 2013 at 3:24 pm
      casagrayson
      Participant

      Hang on to that fighting spirit, Denise!  heart

      • December 29, 2013 at 3:24 pm
      casagrayson
      Participant

      Hang on to that fighting spirit, Denise!  heart

      • December 29, 2013 at 7:58 pm
      BrianP
      Participant

      Heather,

      I pray for you mom daily.  Having served 20+ years in the Marine Corps I've known some pretty tough people but your mom is the toughest I've ever known.  I don't know if she logs on here much any more but please let her know her MPIP family is pulling for her.

      Brian

      • December 29, 2013 at 7:58 pm
      BrianP
      Participant

      Heather,

      I pray for you mom daily.  Having served 20+ years in the Marine Corps I've known some pretty tough people but your mom is the toughest I've ever known.  I don't know if she logs on here much any more but please let her know her MPIP family is pulling for her.

      Brian

      • December 29, 2013 at 7:58 pm
      BrianP
      Participant

      Heather,

      I pray for you mom daily.  Having served 20+ years in the Marine Corps I've known some pretty tough people but your mom is the toughest I've ever known.  I don't know if she logs on here much any more but please let her know her MPIP family is pulling for her.

      Brian

      • December 30, 2013 at 1:25 am
      Linny
      Participant

      Your mom is one tough and determined lady. I think of her every day and pray that she will beat this.

      • December 30, 2013 at 1:25 am
      Linny
      Participant

      Your mom is one tough and determined lady. I think of her every day and pray that she will beat this.

      • December 30, 2013 at 1:25 am
      Linny
      Participant

      Your mom is one tough and determined lady. I think of her every day and pray that she will beat this.

      • December 30, 2013 at 3:44 am
      POW
      Participant

      Heather, thank you for the update. I am so pleased to hear that you and your mother and the rest of the family actually got to have a nice Christmas together. That's just wonderful. Denise's strength and determination are amazing!

      If anybody could tolerate a second round of WBT and hand in there long enough for a longer-acting medication to become available, it would be her. Please give her a big hug from us and tell her that we are rooting for her every single day. 

      • December 30, 2013 at 3:44 am
      POW
      Participant

      Heather, thank you for the update. I am so pleased to hear that you and your mother and the rest of the family actually got to have a nice Christmas together. That's just wonderful. Denise's strength and determination are amazing!

      If anybody could tolerate a second round of WBT and hand in there long enough for a longer-acting medication to become available, it would be her. Please give her a big hug from us and tell her that we are rooting for her every single day. 

      • December 30, 2013 at 3:44 am
      POW
      Participant

      Heather, thank you for the update. I am so pleased to hear that you and your mother and the rest of the family actually got to have a nice Christmas together. That's just wonderful. Denise's strength and determination are amazing!

      If anybody could tolerate a second round of WBT and hand in there long enough for a longer-acting medication to become available, it would be her. Please give her a big hug from us and tell her that we are rooting for her every single day. 

      • December 30, 2013 at 11:34 am
      GAngel
      Participant

      Dear Heather,

      Please tell your mom that she has been in my thoughts and prayers every day and give her a big hug from me. I am also praying for you and your family that you are able to be strong for her during this battle for her life. Melanoma is without a doubt a  horrible beast but your mom has a strong will to live and if anyone can beat the odds, she can.  Please pray with her and ask that the Lord take away any fears that she may have. Remind her that she has nothing to fear and that the Lord is always with her, she will never be alone.  I know that she is going to be okay no matter what and I pray that you also know this too.

      God Bless you sweetie.

      Love,

      Gina

      • December 30, 2013 at 11:34 am
      GAngel
      Participant

      Dear Heather,

      Please tell your mom that she has been in my thoughts and prayers every day and give her a big hug from me. I am also praying for you and your family that you are able to be strong for her during this battle for her life. Melanoma is without a doubt a  horrible beast but your mom has a strong will to live and if anyone can beat the odds, she can.  Please pray with her and ask that the Lord take away any fears that she may have. Remind her that she has nothing to fear and that the Lord is always with her, she will never be alone.  I know that she is going to be okay no matter what and I pray that you also know this too.

      God Bless you sweetie.

      Love,

      Gina

        • December 30, 2013 at 5:30 pm
        NYKaren
        Participant

        Hi Heather,

        Your mom shouldn't be surrering like this.  The Fentnyl patch is designed for someone just like her–she won't wake up with pain.  I've taken it along with hydrocodone for breakthrough pain.  That stuff really works, as it is supposed to.

        We're here and so grateful for the posts.  I pray that the neurologist will find something that will help your mom.  Sorry if this a dumb question, but has she consulted with a top mel. doc?  I know that for a while your mem was seeing another specialist, I think.

        Love you both a lot,

        Karen

        • December 30, 2013 at 5:30 pm
        NYKaren
        Participant

        Hi Heather,

        Your mom shouldn't be surrering like this.  The Fentnyl patch is designed for someone just like her–she won't wake up with pain.  I've taken it along with hydrocodone for breakthrough pain.  That stuff really works, as it is supposed to.

        We're here and so grateful for the posts.  I pray that the neurologist will find something that will help your mom.  Sorry if this a dumb question, but has she consulted with a top mel. doc?  I know that for a while your mem was seeing another specialist, I think.

        Love you both a lot,

        Karen

        • December 30, 2013 at 5:30 pm
        NYKaren
        Participant

        Hi Heather,

        Your mom shouldn't be surrering like this.  The Fentnyl patch is designed for someone just like her–she won't wake up with pain.  I've taken it along with hydrocodone for breakthrough pain.  That stuff really works, as it is supposed to.

        We're here and so grateful for the posts.  I pray that the neurologist will find something that will help your mom.  Sorry if this a dumb question, but has she consulted with a top mel. doc?  I know that for a while your mem was seeing another specialist, I think.

        Love you both a lot,

        Karen

        • December 31, 2013 at 4:23 am
        hdelancey23
        Participant
        Thank you so much Karen. I told my mom to ask her doctor about the patches. I know that she has a melanoma specialist in San Francisco but she hasn’t seen him in a while.
        • December 31, 2013 at 4:23 am
        hdelancey23
        Participant
        Thank you so much Karen. I told my mom to ask her doctor about the patches. I know that she has a melanoma specialist in San Francisco but she hasn’t seen him in a while.
        • December 31, 2013 at 4:23 am
        hdelancey23
        Participant
        Thank you so much Karen. I told my mom to ask her doctor about the patches. I know that she has a melanoma specialist in San Francisco but she hasn’t seen him in a while.
      • December 30, 2013 at 11:34 am
      GAngel
      Participant

      Dear Heather,

      Please tell your mom that she has been in my thoughts and prayers every day and give her a big hug from me. I am also praying for you and your family that you are able to be strong for her during this battle for her life. Melanoma is without a doubt a  horrible beast but your mom has a strong will to live and if anyone can beat the odds, she can.  Please pray with her and ask that the Lord take away any fears that she may have. Remind her that she has nothing to fear and that the Lord is always with her, she will never be alone.  I know that she is going to be okay no matter what and I pray that you also know this too.

      God Bless you sweetie.

      Love,

      Gina

      • December 30, 2013 at 8:05 pm
      Brendan
      Participant

      Hi Heather,

      Thanks for the update.  Your mother is in my thoughts and prayers.

       

      • December 30, 2013 at 8:05 pm
      Brendan
      Participant

      Hi Heather,

      Thanks for the update.  Your mother is in my thoughts and prayers.

       

      • December 30, 2013 at 8:05 pm
      Brendan
      Participant

      Hi Heather,

      Thanks for the update.  Your mother is in my thoughts and prayers.

       

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