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A bit of a situation here.

Forums General Melanoma Community A bit of a situation here.

  • Post
    Colleen66
    Participant

      Hi all.

      I'll be brief.  I'm 3b after surgeries and Interferon, stable at two years this month.  Last chest x-ray in Nov. clear.  

      In the last 3 weeks I have developed issues with my breasts.  Sequence of events are:  Swelliing left breast, at least a cup size, then pain in entire breast.  unusual puckering extending a bit downward from areola.  large masses of tissue formed, it's hard to describe but like a quarter breast would be very thick. the mass is very lumpy and the size of the masses will increase and decrease over a period of time.  I can feel at least 5 nodes in my neck but the area at the outside breast toward armpit is too lumpy and swollen to feel anything accurately.  The right side breast has followed the same evolution but with a two day delay. 

      My Onc. scheduled a Diagnostic Mam and US for tomorrow.  I don't know whether to think that this is Mel or Breast Cancer.  Most benign issues of the breast involve breastfeeding etc.  I'll be 49 next month and had a hysterectomy in 1995 but still have ovaries.  No signs of menopause yet so I don't suspect this is Hormonal.  I scanned some breast cancer types and Inflammatory Breast Cancer fits.  I'm not convinced it's melanoma because of area and the pain, swelling and large masses involved.  

      I know it's unusual to have biopsies during scan appointments but I feel like I can't leave that appointment without at least some type of biopsy.  Is this something they could possible do?  Should I become Miss Bitch and demand it?  With this evolving so quickly I don't thing a week between scans, biopsies, etc. is appropriate.  

      I'm getting the tests done at the Comprehensive Breast Center (Stephanie Speilman Center) part of OSU Cancer Centers.  My Onc is at the James Cancer Center so it's all connected and I'm comfortable with that. 

      This has happened so suddenly and quite frankly, I'm beyond concerned and pretty darn scared.

      Any thoughts on this at all are welcome.  

      Colleen

    Viewing 11 reply threads
    • Replies
        Linny
        Participant

          If your surgeries involved an axillary dissection, I'm wondering if you could be developing lymphedema in your breast? But you will definitely need that Mammo and US to rule out breast cancer.

          Linny
          Participant

            If your surgeries involved an axillary dissection, I'm wondering if you could be developing lymphedema in your breast? But you will definitely need that Mammo and US to rule out breast cancer.

            Linny
            Participant

              If your surgeries involved an axillary dissection, I'm wondering if you could be developing lymphedema in your breast? But you will definitely need that Mammo and US to rule out breast cancer.

              Colleen66
              Participant

                Thanks for commenting guys…

                Pretty sure iit's not hormonal.  Hormones all normal at testing 6 months ago.  Have no other symptoms on any hormonal issues.

                My lymphandectomy was in my left groin.  Surface node mass only.  Do have mild lymphedema in leg from time to time.  I really can't connect the two though.

                I know I won't have any answers until tomorrow.  Having a hard time waiting with such severe changes in my breasts.  

                Colleen

                  JustMeInCA
                  Participant

                    Don't rule out the hormones just yet. I had those tests done last year when several other symptoms made it seem like perimenopause was coming. My PCP ordered the tests, which came back normal. Then I later saw my gynecologist who said that those tests aren't worth a whole lot. She said that symptoms are much more indicative (like heavy periods, thickened cervical mucus, being able to 'feel' when eggs are released during ovulation, etc.)  It would certainly be the preferable reason at least!

                    Colleen66
                    Participant

                      That would definately be preferable!

                      Colleen

                      Colleen66
                      Participant

                        That would definately be preferable!

                        Colleen

                        Colleen66
                        Participant

                          That would definately be preferable!

                          Colleen

                          JustMeInCA
                          Participant

                            Don't rule out the hormones just yet. I had those tests done last year when several other symptoms made it seem like perimenopause was coming. My PCP ordered the tests, which came back normal. Then I later saw my gynecologist who said that those tests aren't worth a whole lot. She said that symptoms are much more indicative (like heavy periods, thickened cervical mucus, being able to 'feel' when eggs are released during ovulation, etc.)  It would certainly be the preferable reason at least!

                            JustMeInCA
                            Participant

                              Don't rule out the hormones just yet. I had those tests done last year when several other symptoms made it seem like perimenopause was coming. My PCP ordered the tests, which came back normal. Then I later saw my gynecologist who said that those tests aren't worth a whole lot. She said that symptoms are much more indicative (like heavy periods, thickened cervical mucus, being able to 'feel' when eggs are released during ovulation, etc.)  It would certainly be the preferable reason at least!

                            Colleen66
                            Participant

                              Thanks for commenting guys…

                              Pretty sure iit's not hormonal.  Hormones all normal at testing 6 months ago.  Have no other symptoms on any hormonal issues.

                              My lymphandectomy was in my left groin.  Surface node mass only.  Do have mild lymphedema in leg from time to time.  I really can't connect the two though.

                              I know I won't have any answers until tomorrow.  Having a hard time waiting with such severe changes in my breasts.  

                              Colleen

                              Colleen66
                              Participant

                                Thanks for commenting guys…

                                Pretty sure iit's not hormonal.  Hormones all normal at testing 6 months ago.  Have no other symptoms on any hormonal issues.

                                My lymphandectomy was in my left groin.  Surface node mass only.  Do have mild lymphedema in leg from time to time.  I really can't connect the two though.

                                I know I won't have any answers until tomorrow.  Having a hard time waiting with such severe changes in my breasts.  

                                Colleen

                                Momrn5
                                Participant

                                  Hoping for you that it could be a bad case of mastitis. I have had s friend at age 50 develop mastitis over the time of just a couple of days.  But certainly also has hallmarks of inflammatory breast cancer.  You are doing the right thing and the only thing you can do. Getting it checked ASAP.  Hang in here. Pulling for you.

                                   

                                  Momrn5
                                  Participant

                                    Hoping for you that it could be a bad case of mastitis. I have had s friend at age 50 develop mastitis over the time of just a couple of days.  But certainly also has hallmarks of inflammatory breast cancer.  You are doing the right thing and the only thing you can do. Getting it checked ASAP.  Hang in here. Pulling for you.

                                     

                                    Momrn5
                                    Participant

                                      Hoping for you that it could be a bad case of mastitis. I have had s friend at age 50 develop mastitis over the time of just a couple of days.  But certainly also has hallmarks of inflammatory breast cancer.  You are doing the right thing and the only thing you can do. Getting it checked ASAP.  Hang in here. Pulling for you.

                                       

                                      casagrayson
                                      Participant

                                        Colleen,

                                        What did you find out?

                                        casagrayson
                                        Participant

                                          Colleen,

                                          What did you find out?

                                          casagrayson
                                          Participant

                                            Colleen,

                                            What did you find out?

                                        Viewing 11 reply threads
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