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6 year Anniversary of NED

Forums General Melanoma Community 6 year Anniversary of NED

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      July is my 6th Year Anniversary of being NED.

      Started at Stage 3b with a 10.5 mm diagnosis in Jan. 2008, then after 4 more surgeries I had progressed to Stage 4 in Oct. 2010.  I had an unresectable lesion at the C1 – C2 spinal area, lesions in the lungs and the liver.  I went into a clinical trial for Ipi (Yervoy) 10 mg/kg and GMCSF (self injections for 14 days then 7 days off.  I did the initial 12 weeks of every 3 weeks of both drugs and then went into maintenance doses of Ipi every 12 weeks but stayed on the GMCSF with the 14 days of injections and 7 days off.  In July 2012 became NED and remained on the maintenance doses until Dec. 2013.

      If you would like to read more about my journey you can read my profile.


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          So fantastic! Congrats and thanks for sharing! Here’s to many more! 


            Happy HAPPY anniversary – such great news, thank you. Celebrate!



              Congrats! Fantastic news and exactly what we all love to read on here and what we are all fighting for. Coming up on three months NED next week and looking forward to posting 6 years later just like you!

              Warrior On!!



                  Great News!   Thanks for providing us with hope!!!!!!!!!!!!!!!


                  Happy Feet123


                  I read  your profile, thank you for sharing.  I met a man in Kaiser Woodland Hills who is NED after being diagnosed with state 4 metastatic melanoma a little over a year ago.  All the hair on his arms is white now.

                  You give the rest of us hope.  Sharon 

                  Julie in SoCal

                    Fantastic Gene!  Good news always welcome!

                    One legged happy dancing here in HOT SoCal for you today!



                      Wonderful!  Thanks for sharing your treatment and success story, Gene!!!

                        Great news! Happy anniversary and thank you for giving us hope!!!

                          Congrats Gene on this milestone!  Such great news!


                          -Rocco, Stage IV, NED since Feb 2009, IPI 10MG/KG responder

                          sister of patient

                            Just fabulous!!! Enjoy your summer and thanks for sharing. Best wishes!!


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