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6 year Anniversary of NED
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6 year Anniversary of NED

› Forums › General Melanoma Community › 6 year Anniversary of NED

  • Post
    • July 7, 2018 at 12:46 pm
    Gene_S
    Participant

      July is my 6th Year Anniversary of being NED.

      Started at Stage 3b with a 10.5 mm diagnosis in Jan. 2008, then after 4 more surgeries I had progressed to Stage 4 in Oct. 2010.  I had an unresectable lesion at the C1 – C2 spinal area, lesions in the lungs and the liver.  I went into a clinical trial for Ipi (Yervoy) 10 mg/kg and GMCSF (self injections for 14 days then 7 days off.  I did the initial 12 weeks of every 3 weeks of both drugs and then went into maintenance doses of Ipi every 12 weeks but stayed on the GMCSF with the 14 days of injections and 7 days off.  In July 2012 became NED and remained on the maintenance doses until Dec. 2013.

      If you would like to read more about my journey you can read my profile.

      Gene

    Viewing 8 reply threads
    • Replies
        • July 7, 2018 at 1:25 pm
        Happy_girl
        Participant

          So fantastic! Congrats and thanks for sharing! Here’s to many more! 

          • July 7, 2018 at 2:32 pm
          bjeans
          Participant

            Happy HAPPY anniversary – such great news, thank you. Celebrate!

            Beth

            • July 7, 2018 at 4:11 pm
            TexMelanomex
            Participant

              Congrats! Fantastic news and exactly what we all love to read on here and what we are all fighting for. Coming up on three months NED next week and looking forward to posting 6 years later just like you!

              Warrior On!!

               

                • July 7, 2018 at 4:55 pm
                happyfeet123
                Participant

                  Great News!   Thanks for providing us with hope!!!!!!!!!!!!!!!

                   

                  Happy Feet123

                • July 7, 2018 at 6:11 pm
                Sharon93065
                Participant

                  I read  your profile, thank you for sharing.  I met a man in Kaiser Woodland Hills who is NED after being diagnosed with state 4 metastatic melanoma a little over a year ago.  All the hair on his arms is white now.

                  You give the rest of us hope.  Sharon 

                  • July 7, 2018 at 6:15 pm
                  Julie in SoCal
                  Participant

                    Fantastic Gene!  Good news always welcome!

                    One legged happy dancing here in HOT SoCal for you today!

                    Julie

                    • July 7, 2018 at 6:16 pm
                    Bubbles
                    Participant

                      Wonderful!  Thanks for sharing your treatment and success story, Gene!!!

                      • July 7, 2018 at 8:25 pm
                      Tracyyy
                      Participant
                        Great news! Happy anniversary and thank you for giving us hope!!!
                        • July 8, 2018 at 11:04 pm
                        Rocco
                        Participant

                          Congrats Gene on this milestone!  Such great news!

                           

                          -Rocco, Stage IV, NED since Feb 2009, IPI 10MG/KG responder

                          • July 10, 2018 at 3:52 am
                          sister of patient
                          Participant

                            Just fabulous!!! Enjoy your summer and thanks for sharing. Best wishes!!

                            Barb

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