6 year Anniversary of NED
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

6 year Anniversary of NED

› Forums › General Melanoma Community › 6 year Anniversary of NED

  • Post
    • July 7, 2018 at 12:46 pm
    Gene_S
    Participant

    July is my 6th Year Anniversary of being NED.

    Started at Stage 3b with a 10.5 mm diagnosis in Jan. 2008, then after 4 more surgeries I had progressed to Stage 4 in Oct. 2010.  I had an unresectable lesion at the C1 – C2 spinal area, lesions in the lungs and the liver.  I went into a clinical trial for Ipi (Yervoy) 10 mg/kg and GMCSF (self injections for 14 days then 7 days off.  I did the initial 12 weeks of every 3 weeks of both drugs and then went into maintenance doses of Ipi every 12 weeks but stayed on the GMCSF with the 14 days of injections and 7 days off.  In July 2012 became NED and remained on the maintenance doses until Dec. 2013.

    If you would like to read more about my journey you can read my profile.

    Gene

Viewing 8 reply threads
  • Replies
      • July 7, 2018 at 1:25 pm
      Happy_girl
      Participant

      So fantastic! Congrats and thanks for sharing! Here’s to many more! 

      • July 7, 2018 at 2:32 pm
      bjeans
      Participant

      Happy HAPPY anniversary – such great news, thank you. Celebrate!

      Beth

      • July 7, 2018 at 4:11 pm
      TexMelanomex
      Participant

      Congrats! Fantastic news and exactly what we all love to read on here and what we are all fighting for. Coming up on three months NED next week and looking forward to posting 6 years later just like you!

      Warrior On!!

       

        • July 7, 2018 at 4:55 pm
        happyfeet123
        Participant

        Great News!   Thanks for providing us with hope!!!!!!!!!!!!!!!

         

        Happy Feet123

      • July 7, 2018 at 6:11 pm
      Sharon93065
      Participant

      I read  your profile, thank you for sharing.  I met a man in Kaiser Woodland Hills who is NED after being diagnosed with state 4 metastatic melanoma a little over a year ago.  All the hair on his arms is white now.

      You give the rest of us hope.  Sharon 

      • July 7, 2018 at 6:15 pm
      Julie in SoCal
      Participant

      Fantastic Gene!  Good news always welcome!

      One legged happy dancing here in HOT SoCal for you today!

      Julie

      • July 7, 2018 at 6:16 pm
      Bubbles
      Participant

      Wonderful!  Thanks for sharing your treatment and success story, Gene!!!

      • July 7, 2018 at 8:25 pm
      Tracyyy
      Participant
      Great news! Happy anniversary and thank you for giving us hope!!!
      • July 8, 2018 at 11:04 pm
      Rocco
      Participant

      Congrats Gene on this milestone!  Such great news!

       

      -Rocco, Stage IV, NED since Feb 2009, IPI 10MG/KG responder

      • July 10, 2018 at 3:52 am
      sister of patient
      Participant

      Just fabulous!!! Enjoy your summer and thanks for sharing. Best wishes!!

      Barb

Viewing 8 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics