The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

3 years NED!

Forums Caregiver Community 3 years NED!

  • Post
    Jim M.
    Participant

      Hi everyone,

      Hi everyone,

       My recent scan two weeks ago came back negative!! Three years ago on 11/1 I had an LND to the right axillary and I've been NED since. I give thanks and praise to God. Miracles are happening every day. I thank so many of you for your guidance, knowledge and support. You are the wind beneath my wings. I thank my wonderful medical team, for their caring, expertise and passion to help others. I don't know where I'd be without my dear wife who loves me through the good times and the rough times. Our 2 children are such a special blessing and they keep me going. My prayers go out to all warriors, caregivers and loved ones.

       God Bless to all,

       Jim M.

      Stage 3C

      LND (unknown primary)

      radiation 6 weeks

      Ipilimumab and peptide vaccines: 3/08-10/08

    Viewing 23 reply threads
    • Replies
        Wendi Lynn
        Participant

          Congratulations Jim!   It's always wonderful to hear great news like this!

          Wendi

          Wendi Lynn
          Participant

            Congratulations Jim!   It's always wonderful to hear great news like this!

            Wendi

            ValinMtl
            Participant

              Dear Jim,  I always get so excited when I hear wonderful news. In particular this time, because of the guidance you gave me at an earlier stage.  While I believe ipi most likely had a strong impact on your NED, I just want to let you know that a young friend had an unknown primary near his neck over 10 years ago and he's still going strong, living and loving!! God bless you and yours….and here' s to forever NED.  Val xx (currently on compassionate ipi)

                ValinMtl
                Participant

                  P.S. I meant surgery was on his neck…but the primary was unknown.

                  ValinMtl
                  Participant

                    P.S. I meant surgery was on his neck…but the primary was unknown.

                  ValinMtl
                  Participant

                    Dear Jim,  I always get so excited when I hear wonderful news. In particular this time, because of the guidance you gave me at an earlier stage.  While I believe ipi most likely had a strong impact on your NED, I just want to let you know that a young friend had an unknown primary near his neck over 10 years ago and he's still going strong, living and loving!! God bless you and yours….and here' s to forever NED.  Val xx (currently on compassionate ipi)

                    Valentine
                    Participant

                      Congratulations!  I love hearing these stories.  Always gives me hope.

                      Valentine
                      Participant

                        Congratulations!  I love hearing these stories.  Always gives me hope.

                        Jim in Denver
                        Participant

                          Hi Jim,

                          Thanks for your post – there are many encouraging stories here, and yours is wonderful to know.  Your gratitude and faith are inspiring and heartfelt.  May you have many more years ahead!

                          Best,

                          Jim

                          Jim in Denver
                          Participant

                            Hi Jim,

                            Thanks for your post – there are many encouraging stories here, and yours is wonderful to know.  Your gratitude and faith are inspiring and heartfelt.  May you have many more years ahead!

                            Best,

                            Jim

                            BethA in VA
                            Participant

                              Three years!!  YEA…what a wonderful celebration.  Thanks for sharing.  Beth

                              BethA in VA
                              Participant

                                Three years!!  YEA…what a wonderful celebration.  Thanks for sharing.  Beth

                                JuleFL
                                Participant
                                  So glad to hear this! Keep enjoying life!!

                                  Jule

                                  JuleFL
                                  Participant
                                    So glad to hear this! Keep enjoying life!!

                                    Jule

                                    MichaelFL
                                    Participant

                                      Another congratulations to you Jim! Enjoy it!

                                      My best to you,

                                      Michael

                                      MichaelFL
                                      Participant

                                        Another congratulations to you Jim! Enjoy it!

                                        My best to you,

                                        Michael

                                        King
                                        Participant

                                          Jim,

                                           

                                          Congratulations!!!  I am so happy to hear this.  What is your scan schedule now?  Wow…3 years and not one recurrence.  I am very happy for you.  Celebrate big.

                                           

                                          Stay Strong
                                          King

                                          Stage IV 7/05 Liver mets

                                            Jim M.
                                            Participant

                                              Hi Kathie,

                                               I finally graduated to go every 6 months!

                                               Take care,

                                               Jim M.

                                              Jim M.
                                              Participant

                                                Hi Kathie,

                                                 I finally graduated to go every 6 months!

                                                 Take care,

                                                 Jim M.

                                              King
                                              Participant

                                                Jim,

                                                 

                                                Congratulations!!!  I am so happy to hear this.  What is your scan schedule now?  Wow…3 years and not one recurrence.  I am very happy for you.  Celebrate big.

                                                 

                                                Stay Strong
                                                King

                                                Stage IV 7/05 Liver mets

                                                lhaley
                                                Participant

                                                  Jim,

                                                  Always in the mood to hear good news!! 

                                                  Yahoo!  Linda

                                                  lhaley
                                                  Participant

                                                    Jim,

                                                    Always in the mood to hear good news!! 

                                                    Yahoo!  Linda

                                                    SandraDee
                                                    Participant

                                                      Jim:

                                                      Praise God!  You are an amazing person who deserves only the best in life.  Congrats to you, Jim.  Meeting you last May was such a huge blessing to me.  Your smile is contagious and your spirit is amazing.  So thrilled for you!  Take good care, until we meet again……

                                                      Sandy – Buffalo

                                                      SandraDee
                                                      Participant

                                                        Jim:

                                                        Praise God!  You are an amazing person who deserves only the best in life.  Congrats to you, Jim.  Meeting you last May was such a huge blessing to me.  Your smile is contagious and your spirit is amazing.  So thrilled for you!  Take good care, until we meet again……

                                                        Sandy – Buffalo

                                                        Brandi
                                                        Participant

                                                          That's wonderful news! Congratulations!

                                                          Brandi
                                                          Participant

                                                            That's wonderful news! Congratulations!

                                                            MaryD
                                                            Participant

                                                              Way to go Jim – that's fantastic news  – I'm so happy for you!!   Keep enjoying life as an NED warrior and wishing you many blessings . .

                                                               

                                                              Mary

                                                              MaryD
                                                              Participant

                                                                Way to go Jim – that's fantastic news  – I'm so happy for you!!   Keep enjoying life as an NED warrior and wishing you many blessings . .

                                                                 

                                                                Mary

                                                            Viewing 23 reply threads

                                                            Tagged: 

                                                            • You must be logged in to reply to this topic.
                                                            About the MRF Patient Forum

                                                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                            Popular Topics