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3 months BRAF = GREAT scans

Forums General Melanoma Community 3 months BRAF = GREAT scans

  • Post
    TracyLee
    Participant

      Hi y'all,

      I know many are struggling on the board right now, and I pray for each of you whether patient, family or friend. 

      That being said, on to some good news. We all need to hear the good, along with the bad when we are terrified or feel hopeless. 

      Got my scan results today. My lungs which previously had "innumerable" nodules (looked like someone blew baby powder on the image!) are all almost resolved! Fluid is gone from right lung, left lung is virtually clear except for a very small amount of fluid. 

      Hi y'all,

      I know many are struggling on the board right now, and I pray for each of you whether patient, family or friend. 

      That being said, on to some good news. We all need to hear the good, along with the bad when we are terrified or feel hopeless. 

      Got my scan results today. My lungs which previously had "innumerable" nodules (looked like someone blew baby powder on the image!) are all almost resolved! Fluid is gone from right lung, left lung is virtually clear except for a very small amount of fluid. 

      My neck is down by over half, or more, on the different measurements. My surgical oncologists jaw dropped, all he could say was "WOW". EKG and labs, all normal. 

      So, do not give up hope. Every  treatment is not going to work for everyone, but keep trying, trust in God and I lift you all also in prayer.

      TracyLee Stage IV May 2011

    Viewing 53 reply threads
    • Replies
        lhaley
        Participant

          So excited for you!  It's always nice to hear good news.

          Linda

            TracyLee
            Participant

              Linda,

              I know you've been through the wringer. Sometimes I feel hesitant about posting a happy post, but feel we all need to see the good, not just the bad.

              Praying for you, and glad you've been able to wean down on the steroids!

              TracyLee

              TracyLee
              Participant

                Linda,

                I know you've been through the wringer. Sometimes I feel hesitant about posting a happy post, but feel we all need to see the good, not just the bad.

                Praying for you, and glad you've been able to wean down on the steroids!

                TracyLee

                TracyLee
                Participant

                  Linda,

                  I know you've been through the wringer. Sometimes I feel hesitant about posting a happy post, but feel we all need to see the good, not just the bad.

                  Praying for you, and glad you've been able to wean down on the steroids!

                  TracyLee

                lhaley
                Participant

                  So excited for you!  It's always nice to hear good news.

                  Linda

                  lhaley
                  Participant

                    So excited for you!  It's always nice to hear good news.

                    Linda

                    glewis923
                    Participant

                      I'm very happy for you TracyLee.  I must admit i feel "guilty" at times about my own successes;  and even worse angry or jealous when someone is stressing over stage 1 or 2!  I know i'm wrong to feel that way, but being honest helps.  I learn much about humility and gratefulness from you and others.  Thank you…..and i AM happy about your scan results.  My lung issues-mutiple- were also mostly gone on last scan- i attribute yervoy, 1 mth. Zelboraf, and God- not nessesarily in that order.

                      Take Care,  Grady.

                      glewis923
                      Participant

                        I'm very happy for you TracyLee.  I must admit i feel "guilty" at times about my own successes;  and even worse angry or jealous when someone is stressing over stage 1 or 2!  I know i'm wrong to feel that way, but being honest helps.  I learn much about humility and gratefulness from you and others.  Thank you…..and i AM happy about your scan results.  My lung issues-mutiple- were also mostly gone on last scan- i attribute yervoy, 1 mth. Zelboraf, and God- not nessesarily in that order.

                        Take Care,  Grady.

                          TracyLee
                          Participant

                            Grady,

                            They all feel I didn't respond to ipi. God is the healer, guiding the doctors. Zelboraf is my drug of choice, for now! We all know that could change. I was happy to celebrate another birthday. Truly do NOT take the little things for granted anymore, and actually try to enjoy the daily stuff most take for granted.

                            Lung mets are awful, I wouldn't wish THAT on my worst enemy. I felt like I was drowning, but not now!

                            TracyLee

                            TracyLee
                            Participant

                              Grady,

                              They all feel I didn't respond to ipi. God is the healer, guiding the doctors. Zelboraf is my drug of choice, for now! We all know that could change. I was happy to celebrate another birthday. Truly do NOT take the little things for granted anymore, and actually try to enjoy the daily stuff most take for granted.

                              Lung mets are awful, I wouldn't wish THAT on my worst enemy. I felt like I was drowning, but not now!

                              TracyLee

                              TracyLee
                              Participant

                                Grady,

                                They all feel I didn't respond to ipi. God is the healer, guiding the doctors. Zelboraf is my drug of choice, for now! We all know that could change. I was happy to celebrate another birthday. Truly do NOT take the little things for granted anymore, and actually try to enjoy the daily stuff most take for granted.

                                Lung mets are awful, I wouldn't wish THAT on my worst enemy. I felt like I was drowning, but not now!

                                TracyLee

                              glewis923
                              Participant

                                I'm very happy for you TracyLee.  I must admit i feel "guilty" at times about my own successes;  and even worse angry or jealous when someone is stressing over stage 1 or 2!  I know i'm wrong to feel that way, but being honest helps.  I learn much about humility and gratefulness from you and others.  Thank you…..and i AM happy about your scan results.  My lung issues-mutiple- were also mostly gone on last scan- i attribute yervoy, 1 mth. Zelboraf, and God- not nessesarily in that order.

                                Take Care,  Grady.

                                Rocco
                                Participant

                                  TracyLee –

                                  Such great news!  Congrats on the good results!

                                  -Rocco, Stage IV, ipi responder

                                  Rocco
                                  Participant

                                    TracyLee –

                                    Such great news!  Congrats on the good results!

                                    -Rocco, Stage IV, ipi responder

                                    Rocco
                                    Participant

                                      TracyLee –

                                      Such great news!  Congrats on the good results!

                                      -Rocco, Stage IV, ipi responder

                                      cwu
                                      Participant

                                        Congrats Tracy. I have been following your postings and know you had some rough times so I am very happy this treatment is working and you had clear scans.

                                        Chau

                                        cwu
                                        Participant

                                          Congrats Tracy. I have been following your postings and know you had some rough times so I am very happy this treatment is working and you had clear scans.

                                          Chau

                                            Karin L
                                            Participant

                                              Super good news Tracy, congrats!  Praise to our Lord for hearing our prayers!

                                              Karin

                                              Karin L
                                              Participant

                                                Super good news Tracy, congrats!  Praise to our Lord for hearing our prayers!

                                                Karin

                                                Karin L
                                                Participant

                                                  Super good news Tracy, congrats!  Praise to our Lord for hearing our prayers!

                                                  Karin

                                                cwu
                                                Participant

                                                  Congrats Tracy. I have been following your postings and know you had some rough times so I am very happy this treatment is working and you had clear scans.

                                                  Chau

                                                  washoegal
                                                  Participant

                                                    WOW – congratulations.  Hard work, prayers and perseverance has finally paid off.  Keep up the good work.

                                                     

                                                    BTW what BRAF inhibitor are you on?

                                                    washoegal
                                                    Participant

                                                      WOW – congratulations.  Hard work, prayers and perseverance has finally paid off.  Keep up the good work.

                                                       

                                                      BTW what BRAF inhibitor are you on?

                                                      washoegal
                                                      Participant

                                                        WOW – congratulations.  Hard work, prayers and perseverance has finally paid off.  Keep up the good work.

                                                         

                                                        BTW what BRAF inhibitor are you on?

                                                        FormerCaregiver
                                                        Participant

                                                          TracyLee, this is truly wonderful news! Praying that you are now able to achieve a durable remission.

                                                          I also pray for all those who are struggling with melanoma, and encourage everyone to do the same.

                                                          Take care

                                                          Frank from Australia

                                                          FormerCaregiver
                                                          Participant

                                                            TracyLee, this is truly wonderful news! Praying that you are now able to achieve a durable remission.

                                                            I also pray for all those who are struggling with melanoma, and encourage everyone to do the same.

                                                            Take care

                                                            Frank from Australia

                                                            FormerCaregiver
                                                            Participant

                                                              TracyLee, this is truly wonderful news! Praying that you are now able to achieve a durable remission.

                                                              I also pray for all those who are struggling with melanoma, and encourage everyone to do the same.

                                                              Take care

                                                              Frank from Australia

                                                                deardad
                                                                Participant

                                                                  Hi TracyLee,

                                                                  That's truly wonderful news…..Enjoy while the sun shines (should I say the shade on this drug).

                                                                  My dad had a complete response in the first month and due for 2nd month scan tomorrow. Hope you too are a complete responder!

                                                                  Take care

                                                                  Nahmi from Melbourne

                                                                  deardad
                                                                  Participant

                                                                    Hi TracyLee,

                                                                    That's truly wonderful news…..Enjoy while the sun shines (should I say the shade on this drug).

                                                                    My dad had a complete response in the first month and due for 2nd month scan tomorrow. Hope you too are a complete responder!

                                                                    Take care

                                                                    Nahmi from Melbourne

                                                                    deardad
                                                                    Participant

                                                                      Hi TracyLee,

                                                                      That's truly wonderful news…..Enjoy while the sun shines (should I say the shade on this drug).

                                                                      My dad had a complete response in the first month and due for 2nd month scan tomorrow. Hope you too are a complete responder!

                                                                      Take care

                                                                      Nahmi from Melbourne

                                                                    MaryD
                                                                    Participant

                                                                      That's fantastic news TracyLee – so happy for you!    You have been through a lot and encouraging news like this needs to be shared.

                                                                      Wishing you continued success and hope you celebrate these wonderful results . .

                                                                      Mary

                                                                      MaryD
                                                                      Participant

                                                                        That's fantastic news TracyLee – so happy for you!    You have been through a lot and encouraging news like this needs to be shared.

                                                                        Wishing you continued success and hope you celebrate these wonderful results . .

                                                                        Mary

                                                                        MaryD
                                                                        Participant

                                                                          That's fantastic news TracyLee – so happy for you!    You have been through a lot and encouraging news like this needs to be shared.

                                                                          Wishing you continued success and hope you celebrate these wonderful results . .

                                                                          Mary

                                                                          momof2kids
                                                                          Participant

                                                                            Very happy to see all the shrinkage, etc.  Always good news for those out there to see that happen!

                                                                             

                                                                            momof2kids
                                                                            Participant

                                                                              Very happy to see all the shrinkage, etc.  Always good news for those out there to see that happen!

                                                                               

                                                                              momof2kids
                                                                              Participant

                                                                                Very happy to see all the shrinkage, etc.  Always good news for those out there to see that happen!

                                                                                 

                                                                                mombase
                                                                                Participant

                                                                                  Tracy Lee, You rock, and so does God!!! Congratulations!

                                                                                  Cristy, Stage IV

                                                                                    o2bcheri
                                                                                    Participant

                                                                                       

                                                                                      yayyy,,,, so happy to hear the good news Tracy….

                                                                                       

                                                                                      xxx

                                                                                      o2bcheri
                                                                                      Participant

                                                                                         

                                                                                        yayyy,,,, so happy to hear the good news Tracy….

                                                                                         

                                                                                        xxx

                                                                                        o2bcheri
                                                                                        Participant

                                                                                           

                                                                                          yayyy,,,, so happy to hear the good news Tracy….

                                                                                           

                                                                                          xxx

                                                                                        mombase
                                                                                        Participant

                                                                                          Tracy Lee, You rock, and so does God!!! Congratulations!

                                                                                          Cristy, Stage IV

                                                                                          mombase
                                                                                          Participant

                                                                                            Tracy Lee, You rock, and so does God!!! Congratulations!

                                                                                            Cristy, Stage IV

                                                                                            triciad
                                                                                            Participant

                                                                                              TracyLee,

                                                                                              This is wonderful news…thanks for sharing.  I pray that your success continues for decades!

                                                                                              Tricia

                                                                                              triciad
                                                                                              Participant

                                                                                                TracyLee,

                                                                                                This is wonderful news…thanks for sharing.  I pray that your success continues for decades!

                                                                                                Tricia

                                                                                                triciad
                                                                                                Participant

                                                                                                  TracyLee,

                                                                                                  This is wonderful news…thanks for sharing.  I pray that your success continues for decades!

                                                                                                  Tricia

                                                                                                    Laurie from maine
                                                                                                    Participant

                                                                                                      HOOORAY!!  You must feel so much better without that fluids, and the tumors in your lungs.  Congratulations on such a great response.  We all have learned to enjoy each day, especially the days we feel GOOD!!! yeah!   I wish/pray for contiued shrinkage.  Thank you for posting

                                                                                                      laurie from maine

                                                                                                      Laurie from maine
                                                                                                      Participant

                                                                                                        HOOORAY!!  You must feel so much better without that fluids, and the tumors in your lungs.  Congratulations on such a great response.  We all have learned to enjoy each day, especially the days we feel GOOD!!! yeah!   I wish/pray for contiued shrinkage.  Thank you for posting

                                                                                                        laurie from maine

                                                                                                        Laurie from maine
                                                                                                        Participant

                                                                                                          HOOORAY!!  You must feel so much better without that fluids, and the tumors in your lungs.  Congratulations on such a great response.  We all have learned to enjoy each day, especially the days we feel GOOD!!! yeah!   I wish/pray for contiued shrinkage.  Thank you for posting

                                                                                                          laurie from maine

                                                                                                        Richard_K
                                                                                                        Participant
                                                                                                          TracyLee
                                                                                                          Great job and congratulations. I hope you have continued and long term benefit from Zelboraf.
                                                                                                          Dick
                                                                                                          Richard_K
                                                                                                          Participant
                                                                                                            TracyLee
                                                                                                            Great job and congratulations. I hope you have continued and long term benefit from Zelboraf.
                                                                                                            Dick
                                                                                                            Richard_K
                                                                                                            Participant
                                                                                                              TracyLee
                                                                                                              Great job and congratulations. I hope you have continued and long term benefit from Zelboraf.
                                                                                                              Dick
                                                                                                              Gene_S
                                                                                                              Participant

                                                                                                                Wow TracyLee that is great news.  Keep up the good work with your new friend Zel. and continue into NED.  I pray for you everyday as well as others on the board to beat this nasty Mel.

                                                                                                                Judy (loving wife and caregiver of Gene)

                                                                                                                Gene_S
                                                                                                                Participant

                                                                                                                  Wow TracyLee that is great news.  Keep up the good work with your new friend Zel. and continue into NED.  I pray for you everyday as well as others on the board to beat this nasty Mel.

                                                                                                                  Judy (loving wife and caregiver of Gene)

                                                                                                                  Gene_S
                                                                                                                  Participant

                                                                                                                    Wow TracyLee that is great news.  Keep up the good work with your new friend Zel. and continue into NED.  I pray for you everyday as well as others on the board to beat this nasty Mel.

                                                                                                                    Judy (loving wife and caregiver of Gene)

                                                                                                                    o2bcheri
                                                                                                                    Participant

                                                                                                                       

                                                                                                                      tracy…

                                                                                                                      this is GREAT news… and so screwed up that you need to feel anything but total elation and excitement that finally

                                                                                                                      something is working on your mel…. 

                                                                                                                      i do not have any disease.. i am here for my best friend who has it.. and i want to keep up with anything and everything that he might at some point need.. right now he is NED..thank god..

                                                                                                                      i watch.. i read.. and care so much about each and every one of you.. i seem to remember not too long ago.. when you were having a rather rough time..

                                                                                                                       

                                                                                                                      so… to hear this fabulous news puts a big smile on my face…

                                                                                                                       

                                                                                                                      YAYYYYYY….. 

                                                                                                                       

                                                                                                                      Michele

                                                                                                                      o2bcheri
                                                                                                                      Participant

                                                                                                                         

                                                                                                                        tracy…

                                                                                                                        this is GREAT news… and so screwed up that you need to feel anything but total elation and excitement that finally

                                                                                                                        something is working on your mel…. 

                                                                                                                        i do not have any disease.. i am here for my best friend who has it.. and i want to keep up with anything and everything that he might at some point need.. right now he is NED..thank god..

                                                                                                                        i watch.. i read.. and care so much about each and every one of you.. i seem to remember not too long ago.. when you were having a rather rough time..

                                                                                                                         

                                                                                                                        so… to hear this fabulous news puts a big smile on my face…

                                                                                                                         

                                                                                                                        YAYYYYYY….. 

                                                                                                                         

                                                                                                                        Michele

                                                                                                                        o2bcheri
                                                                                                                        Participant

                                                                                                                           

                                                                                                                          tracy…

                                                                                                                          this is GREAT news… and so screwed up that you need to feel anything but total elation and excitement that finally

                                                                                                                          something is working on your mel…. 

                                                                                                                          i do not have any disease.. i am here for my best friend who has it.. and i want to keep up with anything and everything that he might at some point need.. right now he is NED..thank god..

                                                                                                                          i watch.. i read.. and care so much about each and every one of you.. i seem to remember not too long ago.. when you were having a rather rough time..

                                                                                                                           

                                                                                                                          so… to hear this fabulous news puts a big smile on my face…

                                                                                                                           

                                                                                                                          YAYYYYYY….. 

                                                                                                                           

                                                                                                                          Michele

                                                                                                                          Carol Taylor
                                                                                                                          Participant

                                                                                                                            Hallelujah Fearless Leader! I am so happy for you I can hardly stand it! Keep the great news coming and celebrate.

                                                                                                                            Carol Taylor
                                                                                                                            Participant

                                                                                                                              Hallelujah Fearless Leader! I am so happy for you I can hardly stand it! Keep the great news coming and celebrate.

                                                                                                                              Carol Taylor
                                                                                                                              Participant

                                                                                                                                Hallelujah Fearless Leader! I am so happy for you I can hardly stand it! Keep the great news coming and celebrate.

                                                                                                                                  NYKaren
                                                                                                                                  Participant

                                                                                                                                    FANTASTIC news.  I'm so happy for you!  You've been through so much.  Hurray!

                                                                                                                                    NYKaren
                                                                                                                                    Participant

                                                                                                                                      FANTASTIC news.  I'm so happy for you!  You've been through so much.  Hurray!

                                                                                                                                      NYKaren
                                                                                                                                      Participant

                                                                                                                                        FANTASTIC news.  I'm so happy for you!  You've been through so much.  Hurray!

                                                                                                                                      vickykay
                                                                                                                                      Participant

                                                                                                                                        Praise the Lord!!!  I am so happy for you. It is so good to hear good news.

                                                                                                                                        Vickykay

                                                                                                                                        Stage 3b

                                                                                                                                        vickykay
                                                                                                                                        Participant

                                                                                                                                          Praise the Lord!!!  I am so happy for you. It is so good to hear good news.

                                                                                                                                          Vickykay

                                                                                                                                          Stage 3b

                                                                                                                                          vickykay
                                                                                                                                          Participant

                                                                                                                                            Praise the Lord!!!  I am so happy for you. It is so good to hear good news.

                                                                                                                                            Vickykay

                                                                                                                                            Stage 3b

                                                                                                                                            Lauri England
                                                                                                                                            Participant

                                                                                                                                              I am so excited for you.  How wonderful good news can be.  Thank you for sharing and God Bless!!

                                                                                                                                              Lauri England
                                                                                                                                              Participant

                                                                                                                                                I am so excited for you.  How wonderful good news can be.  Thank you for sharing and God Bless!!

                                                                                                                                                Lauri England
                                                                                                                                                Participant

                                                                                                                                                  I am so excited for you.  How wonderful good news can be.  Thank you for sharing and God Bless!!

                                                                                                                                                  LynnLuc
                                                                                                                                                  Participant

                                                                                                                                                    It's great news!! YAY!!!

                                                                                                                                                      deardad
                                                                                                                                                      Participant

                                                                                                                                                        It blows me away how supportive everyone on this board is.

                                                                                                                                                        You're all amazing….

                                                                                                                                                        Nahmi from Melbourne

                                                                                                                                                        deardad
                                                                                                                                                        Participant

                                                                                                                                                          It blows me away how supportive everyone on this board is.

                                                                                                                                                          You're all amazing….

                                                                                                                                                          Nahmi from Melbourne

                                                                                                                                                          deardad
                                                                                                                                                          Participant

                                                                                                                                                            It blows me away how supportive everyone on this board is.

                                                                                                                                                            You're all amazing….

                                                                                                                                                            Nahmi from Melbourne

                                                                                                                                                          LynnLuc
                                                                                                                                                          Participant

                                                                                                                                                            It's great news!! YAY!!!

                                                                                                                                                            LynnLuc
                                                                                                                                                            Participant

                                                                                                                                                              It's great news!! YAY!!!

                                                                                                                                                              lyndaloo
                                                                                                                                                              Participant

                                                                                                                                                                Wow TracyLee – I was amazed at your results.  I am so happy for you. I remember reading how you are a working mom with teenagers and dealing with this disease at the same time.  Your encouraging words will hold strong as my husband starts ipi next week.  Way to go!!!!

                                                                                                                                                                Lyndaloo

                                                                                                                                                                lyndaloo
                                                                                                                                                                Participant

                                                                                                                                                                  Wow TracyLee – I was amazed at your results.  I am so happy for you. I remember reading how you are a working mom with teenagers and dealing with this disease at the same time.  Your encouraging words will hold strong as my husband starts ipi next week.  Way to go!!!!

                                                                                                                                                                  Lyndaloo

                                                                                                                                                                  lyndaloo
                                                                                                                                                                  Participant

                                                                                                                                                                    Wow TracyLee – I was amazed at your results.  I am so happy for you. I remember reading how you are a working mom with teenagers and dealing with this disease at the same time.  Your encouraging words will hold strong as my husband starts ipi next week.  Way to go!!!!

                                                                                                                                                                    Lyndaloo

                                                                                                                                                                      Vermont_Donna
                                                                                                                                                                      Participant

                                                                                                                                                                        Dear TracyLee,

                                                                                                                                                                          I am so happy for you and so excited that the BRAF drug is working. I feel that with many people, one treatment that initially looks good for us buys time for us to then try another treatment and so on….that is how I have lived the last 5 years, a succession of treatments that buys me periods of NED time. And has kept me still stage 3a. This is similar for what you are going through. Well we all have hope that the treatment we are doing currently is THE one to render us NED forever, so we need to have hope always.

                                                                                                                                                                        Thanks for your uplifting news and sharing the ups and downs with us, your melanoma family.

                                                                                                                                                                        Vermont_Donna, stage 3a, NED

                                                                                                                                                                        Vermont_Donna
                                                                                                                                                                        Participant

                                                                                                                                                                          Dear TracyLee,

                                                                                                                                                                            I am so happy for you and so excited that the BRAF drug is working. I feel that with many people, one treatment that initially looks good for us buys time for us to then try another treatment and so on….that is how I have lived the last 5 years, a succession of treatments that buys me periods of NED time. And has kept me still stage 3a. This is similar for what you are going through. Well we all have hope that the treatment we are doing currently is THE one to render us NED forever, so we need to have hope always.

                                                                                                                                                                          Thanks for your uplifting news and sharing the ups and downs with us, your melanoma family.

                                                                                                                                                                          Vermont_Donna, stage 3a, NED

                                                                                                                                                                          Vermont_Donna
                                                                                                                                                                          Participant

                                                                                                                                                                            Dear TracyLee,

                                                                                                                                                                              I am so happy for you and so excited that the BRAF drug is working. I feel that with many people, one treatment that initially looks good for us buys time for us to then try another treatment and so on….that is how I have lived the last 5 years, a succession of treatments that buys me periods of NED time. And has kept me still stage 3a. This is similar for what you are going through. Well we all have hope that the treatment we are doing currently is THE one to render us NED forever, so we need to have hope always.

                                                                                                                                                                            Thanks for your uplifting news and sharing the ups and downs with us, your melanoma family.

                                                                                                                                                                            Vermont_Donna, stage 3a, NED

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