My 12 week scan was good news and now the 16th week scan after ipi is still good. Had my scan today and was told I have no new mets anywhere. The mets in my lungs are still shrinking (slowly) and the rest are remaining stable. My Dr. was very happy and said he'd see me in 2 months. I also asked about getting a brain MRI since I had 2 brain mets gamma knifed, but he said he's not concerned, unless I have symptoms. If the ipi is working on my current cancer in the lungs, then maybe it will keep the brain mets from coming for awhile.
My 12 week scan was good news and now the 16th week scan after ipi is still good. Had my scan today and was told I have no new mets anywhere. The mets in my lungs are still shrinking (slowly) and the rest are remaining stable. My Dr. was very happy and said he'd see me in 2 months. I also asked about getting a brain MRI since I had 2 brain mets gamma knifed, but he said he's not concerned, unless I have symptoms. If the ipi is working on my current cancer in the lungs, then maybe it will keep the brain mets from coming for awhile.
2 other things I learned today that is also great news. My hospital in Toronto, Canada starts Anti-PD1 trials and is open to people who've done ipi. He said if I progressed, I could either do ipi or Anit PD-1. He also told me that he's had a great few weeks seeing some patients with bad scans at Week 12 and now good responses at week 16 and 20.
I know there's no cure for this cancer, but at least I can feel happy about things now. It's also great to hear some Dr's had patients on this drug who are still kickin' it 4 years and some 8 years later!!
One other thing I wanted to mention. For those of you who may respond to ipi, don't ever think that you now have a couple of months extra to live (which is what these stupid stats talk about). Believe that you could be someone lucky enough to last much longer. A positive mind is half the battle and you can't give up.
Lisa
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