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1 year after IPI scan results
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1 year after IPI scan results

› Forums › General Melanoma Community › 1 year after IPI scan results

  • Post
    • December 19, 2014 at 9:54 pm
    Julie in SoCal
    Participant

      Hi there friends,

      It's hard to believe that I started all of this up again a year ago!  Last Christmas was such a mess! My recurrence and my mother's illness just left all of us tired and done.  So done that we skipped Christmas. 

      But yesterday I had my 1 year since starting IPI scans and once again they are "perfect", "complete response" and "see you in 6 months".  I still can't quite believe it.  But my Rock Star Doc couldn't even find evidence where the intransit mets were and the biopsy sites are now soft and pliable (as opposed to hard and BB like before).  I am so grateful!

      May you have a wonderful holiday season! Merry Christmas!

      Julie

      Stage 3c: WLE, SNB, LND, HD-INF, GM-CSF, IPI = NERD

      Here's a picture of me and my friends celebrating. I'm in the white shirt and jeans. It is a happy day! 

      Oh Happy Day!

    Viewing 32 reply threads
    • Replies
        • December 19, 2014 at 9:56 pm
        Bubbles
        Participant

          Congrats, Julie!!!  Have a wonderful Christmas!! c

          • December 19, 2014 at 9:56 pm
          Bubbles
          Participant

            Congrats, Julie!!!  Have a wonderful Christmas!! c

            • December 19, 2014 at 9:56 pm
            Bubbles
            Participant

              Congrats, Julie!!!  Have a wonderful Christmas!! c

              • December 19, 2014 at 9:58 pm
              sweetaugust
              Participant

                That is so fantastic Julie! Excellent news for sure.  Congratulations!!!!   Laurie

                • December 19, 2014 at 9:58 pm
                sweetaugust
                Participant

                  That is so fantastic Julie! Excellent news for sure.  Congratulations!!!!   Laurie

                  • December 19, 2014 at 9:58 pm
                  sweetaugust
                  Participant

                    That is so fantastic Julie! Excellent news for sure.  Congratulations!!!!   Laurie

                    • December 19, 2014 at 10:06 pm
                    BrianP
                    Participant

                      What a great Christmas present Julie.  I can't believe it's been a year for you either.  I remember some of your post just like it was yesterday.  You heading back to Asia anytime soon?  Have a wonderful Christmas.

                      Brian

                       

                      • December 19, 2014 at 10:06 pm
                      BrianP
                      Participant

                        What a great Christmas present Julie.  I can't believe it's been a year for you either.  I remember some of your post just like it was yesterday.  You heading back to Asia anytime soon?  Have a wonderful Christmas.

                        Brian

                         

                        • December 19, 2014 at 10:06 pm
                        BrianP
                        Participant

                          What a great Christmas present Julie.  I can't believe it's been a year for you either.  I remember some of your post just like it was yesterday.  You heading back to Asia anytime soon?  Have a wonderful Christmas.

                          Brian

                           

                            • December 19, 2014 at 10:46 pm
                            Marianne quinn
                            Participant

                              Great news. My husband is 9 months NED after his last dose of ipi. He had a small mets to his liver at 14 week scan. He had microwave ablation which was successful. His onc is feeling optimistic which is a big change from last March. Your posts helped so much during the last year. Kept my hopes up. Have a great Christmas. Marianne

                              • December 19, 2014 at 10:46 pm
                              Marianne quinn
                              Participant

                                Great news. My husband is 9 months NED after his last dose of ipi. He had a small mets to his liver at 14 week scan. He had microwave ablation which was successful. His onc is feeling optimistic which is a big change from last March. Your posts helped so much during the last year. Kept my hopes up. Have a great Christmas. Marianne

                                • December 19, 2014 at 10:46 pm
                                Marianne quinn
                                Participant

                                  Great news. My husband is 9 months NED after his last dose of ipi. He had a small mets to his liver at 14 week scan. He had microwave ablation which was successful. His onc is feeling optimistic which is a big change from last March. Your posts helped so much during the last year. Kept my hopes up. Have a great Christmas. Marianne

                                • December 19, 2014 at 11:44 pm
                                jenny22
                                Participant

                                  HI Julie- congratulations on such wonderful news…..it is great to see….

                                  I guess I am where you were this time last year….

                                  I am interested to hear about them starting you on IPI for stage III intransit mets….I have seen 5 melanoma onc experts, and only one is suggesting trying IPI in the adjuvant setting for stage III…..others offered:

                                  Watch and wait

                                  Interferon

                                  Vaccine Trial

                                  Such hard decisons…and every time i read about intransit mets its alway so doom and gloom!

                                  I am encourgaed by your post, and happy for you.

                                   

                                  Merry XMas,

                                  j

                                   

                                  • December 19, 2014 at 11:44 pm
                                  jenny22
                                  Participant

                                    HI Julie- congratulations on such wonderful news…..it is great to see….

                                    I guess I am where you were this time last year….

                                    I am interested to hear about them starting you on IPI for stage III intransit mets….I have seen 5 melanoma onc experts, and only one is suggesting trying IPI in the adjuvant setting for stage III…..others offered:

                                    Watch and wait

                                    Interferon

                                    Vaccine Trial

                                    Such hard decisons…and every time i read about intransit mets its alway so doom and gloom!

                                    I am encourgaed by your post, and happy for you.

                                     

                                    Merry XMas,

                                    j

                                     

                                      • December 20, 2014 at 12:31 am
                                      Ginger8888
                                      Participant

                                        Jenny i am stage 3 C and did the 30 day HD interferon and failed it..Yervoy is working so far, next scan results on the 29th..

                                        • December 20, 2014 at 12:31 am
                                        Ginger8888
                                        Participant

                                          Jenny i am stage 3 C and did the 30 day HD interferon and failed it..Yervoy is working so far, next scan results on the 29th..

                                          • December 20, 2014 at 12:31 am
                                          Ginger8888
                                          Participant

                                            Jenny i am stage 3 C and did the 30 day HD interferon and failed it..Yervoy is working so far, next scan results on the 29th..

                                          • December 19, 2014 at 11:44 pm
                                          jenny22
                                          Participant

                                            HI Julie- congratulations on such wonderful news…..it is great to see….

                                            I guess I am where you were this time last year….

                                            I am interested to hear about them starting you on IPI for stage III intransit mets….I have seen 5 melanoma onc experts, and only one is suggesting trying IPI in the adjuvant setting for stage III…..others offered:

                                            Watch and wait

                                            Interferon

                                            Vaccine Trial

                                            Such hard decisons…and every time i read about intransit mets its alway so doom and gloom!

                                            I am encourgaed by your post, and happy for you.

                                             

                                            Merry XMas,

                                            j

                                             

                                            • December 20, 2014 at 12:29 am
                                            Ginger8888
                                            Participant

                                              Congrats!! I finished Yervoy Aug 13 and just had my second scan and get results on the 29th, hoping they finally come out clear..

                                              • December 20, 2014 at 12:29 am
                                              Ginger8888
                                              Participant

                                                Congrats!! I finished Yervoy Aug 13 and just had my second scan and get results on the 29th, hoping they finally come out clear..

                                                • December 20, 2014 at 12:29 am
                                                Ginger8888
                                                Participant

                                                  Congrats!! I finished Yervoy Aug 13 and just had my second scan and get results on the 29th, hoping they finally come out clear..

                                                  • December 20, 2014 at 1:18 am
                                                  _Paul_
                                                  Participant

                                                    Wow! Now that's a Christmas present that's hard to follow! Very happy for you!

                                                    – Paul.

                                                    • December 20, 2014 at 1:18 am
                                                    _Paul_
                                                    Participant

                                                      Wow! Now that's a Christmas present that's hard to follow! Very happy for you!

                                                      – Paul.

                                                      • December 20, 2014 at 1:18 am
                                                      _Paul_
                                                      Participant

                                                        Wow! Now that's a Christmas present that's hard to follow! Very happy for you!

                                                        – Paul.

                                                        • December 20, 2014 at 2:38 am
                                                        SABKLYN
                                                        Participant

                                                          Hi Julie,Was following your journey since your return from Asia…..terrific news and congratulations!

                                                          • December 20, 2014 at 2:38 am
                                                          SABKLYN
                                                          Participant

                                                            Hi Julie,Was following your journey since your return from Asia…..terrific news and congratulations!

                                                            • December 20, 2014 at 2:38 am
                                                            SABKLYN
                                                            Participant

                                                              Hi Julie,Was following your journey since your return from Asia…..terrific news and congratulations!

                                                              • December 21, 2014 at 12:11 am
                                                              triciad
                                                              Participant

                                                                Julie,

                                                                So happy to hear about your great news.  You've been through a lot and it's encouraging to read about your success.  I just finished my 4th dose of Ipi.  I hope to follow in your shoes!

                                                                Happy holidays!

                                                                Tricia

                                                                • December 21, 2014 at 12:11 am
                                                                triciad
                                                                Participant

                                                                  Julie,

                                                                  So happy to hear about your great news.  You've been through a lot and it's encouraging to read about your success.  I just finished my 4th dose of Ipi.  I hope to follow in your shoes!

                                                                  Happy holidays!

                                                                  Tricia

                                                                  • December 21, 2014 at 12:11 am
                                                                  triciad
                                                                  Participant

                                                                    Julie,

                                                                    So happy to hear about your great news.  You've been through a lot and it's encouraging to read about your success.  I just finished my 4th dose of Ipi.  I hope to follow in your shoes!

                                                                    Happy holidays!

                                                                    Tricia

                                                                    • December 21, 2014 at 5:04 am
                                                                    Tracey R62
                                                                    Participant

                                                                      That's great.  What kind of side effects did you have on yervoy?  i will be having surgery in january to remove my toe and my groin lymph nodes and just overwhelmed over if and which treatments to choose.  

                                                                      • December 21, 2014 at 5:04 am
                                                                      Tracey R62
                                                                      Participant

                                                                        That's great.  What kind of side effects did you have on yervoy?  i will be having surgery in january to remove my toe and my groin lymph nodes and just overwhelmed over if and which treatments to choose.  

                                                                        • December 21, 2014 at 5:04 am
                                                                        Tracey R62
                                                                        Participant

                                                                          That's great.  What kind of side effects did you have on yervoy?  i will be having surgery in january to remove my toe and my groin lymph nodes and just overwhelmed over if and which treatments to choose.  

                                                                            • December 22, 2014 at 6:00 pm
                                                                            Julie in SoCal
                                                                            Participant

                                                                              Hey Tracy!

                                                                              I mostly had fatigue, headache, small joint pain, rash and stomach rumblings. My Dr and I got on each one pretty quick so none of the side effects were serious.  They were annoying and a drag, but not bad enough to warrant changing course.

                                                                              I trust IPI will work it's magic with you too!

                                                                              Julie

                                                                              • December 22, 2014 at 6:00 pm
                                                                              Julie in SoCal
                                                                              Participant

                                                                                Hey Tracy!

                                                                                I mostly had fatigue, headache, small joint pain, rash and stomach rumblings. My Dr and I got on each one pretty quick so none of the side effects were serious.  They were annoying and a drag, but not bad enough to warrant changing course.

                                                                                I trust IPI will work it's magic with you too!

                                                                                Julie

                                                                                • December 22, 2014 at 6:00 pm
                                                                                Julie in SoCal
                                                                                Participant

                                                                                  Hey Tracy!

                                                                                  I mostly had fatigue, headache, small joint pain, rash and stomach rumblings. My Dr and I got on each one pretty quick so none of the side effects were serious.  They were annoying and a drag, but not bad enough to warrant changing course.

                                                                                  I trust IPI will work it's magic with you too!

                                                                                  Julie

                                                                                • December 21, 2014 at 12:03 pm
                                                                                Rosegargala
                                                                                Participant

                                                                                  MERRY CHRISTMAS !!! I hope you REALLY get to enjoy this Holiday Season!!! I know when we found out that I have melanoma I couldn't even think about Christmas , so I know how painful that had to be for you!!!!  I am so happy to hear your wonderful news !!!! My PET scan was clear so I intend on making this the best Christmas ever!!!  HAVE A VERY MERRY CHRISTMAS !!!!!!!!!!!!!

                                                                                  • December 21, 2014 at 12:03 pm
                                                                                  Rosegargala
                                                                                  Participant

                                                                                    MERRY CHRISTMAS !!! I hope you REALLY get to enjoy this Holiday Season!!! I know when we found out that I have melanoma I couldn't even think about Christmas , so I know how painful that had to be for you!!!!  I am so happy to hear your wonderful news !!!! My PET scan was clear so I intend on making this the best Christmas ever!!!  HAVE A VERY MERRY CHRISTMAS !!!!!!!!!!!!!

                                                                                    • December 21, 2014 at 12:03 pm
                                                                                    Rosegargala
                                                                                    Participant

                                                                                      MERRY CHRISTMAS !!! I hope you REALLY get to enjoy this Holiday Season!!! I know when we found out that I have melanoma I couldn't even think about Christmas , so I know how painful that had to be for you!!!!  I am so happy to hear your wonderful news !!!! My PET scan was clear so I intend on making this the best Christmas ever!!!  HAVE A VERY MERRY CHRISTMAS !!!!!!!!!!!!!

                                                                                      • December 21, 2014 at 6:11 pm
                                                                                      DZnDef
                                                                                      Participant

                                                                                        Congratulations Julie!  I'm so happy for you!  Doing the happy dance.  I'll be seeing Rock Star doc in January.   So glad its a Merry Christmas for you this year!  Double-down on those presents to make up for last year.

                                                                                        Cheers!

                                                                                        • December 21, 2014 at 6:11 pm
                                                                                        DZnDef
                                                                                        Participant

                                                                                          Congratulations Julie!  I'm so happy for you!  Doing the happy dance.  I'll be seeing Rock Star doc in January.   So glad its a Merry Christmas for you this year!  Double-down on those presents to make up for last year.

                                                                                          Cheers!

                                                                                          • December 21, 2014 at 6:11 pm
                                                                                          DZnDef
                                                                                          Participant

                                                                                            Congratulations Julie!  I'm so happy for you!  Doing the happy dance.  I'll be seeing Rock Star doc in January.   So glad its a Merry Christmas for you this year!  Double-down on those presents to make up for last year.

                                                                                            Cheers!

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