Anyone go long-term NED with surgery alone?
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Anyone go long-term NED with surgery alone?

› Forums › General Melanoma Community › Anyone go long-term NED with surgery alone?

  • Post
    • November 8, 2014 at 2:18 am
    O_O
    Participant

    Anyone here with mets (IIIC – IV) get long term success with surgery alone? 

    I mean, 5+ years without recurrence.

Viewing 8 reply threads
  • Replies
      • November 8, 2014 at 4:19 pm
      Cooper
      Participant

      Yup!  But with radiation for brain mets and spinal mets.  Surgery is a good way to go when possible.

      • November 8, 2014 at 4:19 pm
      Cooper
      Participant

      Yup!  But with radiation for brain mets and spinal mets.  Surgery is a good way to go when possible.

      • November 8, 2014 at 4:19 pm
      Cooper
      Participant

      Yup!  But with radiation for brain mets and spinal mets.  Surgery is a good way to go when possible.

        • November 8, 2014 at 11:19 pm
        Carole K
        Participant

        I AM CURRENTLY NED 13 YRS 9 MONTHS  I initially had surgery and SNL .  Pregressed 4 1/2 yrs later with lung mets in both lungs. I opeted out of susrgery.  Ten months later dx with brain met.  I had a craniotomy and did holistic treatment for follow up.  Gave myself injections of Iscadoer ( mistletoe) and two other herbs for almost two years.  Good Luck.  We each have to do what we believe is best for us.. !1 Han gin there

        Love and Light

        Carole K

         

        • November 8, 2014 at 11:19 pm
        Carole K
        Participant

        I AM CURRENTLY NED 13 YRS 9 MONTHS  I initially had surgery and SNL .  Pregressed 4 1/2 yrs later with lung mets in both lungs. I opeted out of susrgery.  Ten months later dx with brain met.  I had a craniotomy and did holistic treatment for follow up.  Gave myself injections of Iscadoer ( mistletoe) and two other herbs for almost two years.  Good Luck.  We each have to do what we believe is best for us.. !1 Han gin there

        Love and Light

        Carole K

         

        • November 8, 2014 at 11:19 pm
        Carole K
        Participant

        I AM CURRENTLY NED 13 YRS 9 MONTHS  I initially had surgery and SNL .  Pregressed 4 1/2 yrs later with lung mets in both lungs. I opeted out of susrgery.  Ten months later dx with brain met.  I had a craniotomy and did holistic treatment for follow up.  Gave myself injections of Iscadoer ( mistletoe) and two other herbs for almost two years.  Good Luck.  We each have to do what we believe is best for us.. !1 Han gin there

        Love and Light

        Carole K

         

      • November 9, 2014 at 3:35 am
      Randy437
      Participant

      I've been now been NED almost 5 years after surgeries to remove mets from brain, both lungs and small intestine.  The brain met was followed up with GammaKnife.  I was in a vaccine trial at UVA but the small intestin met was subsequent to that.

      • November 9, 2014 at 3:35 am
      Randy437
      Participant

      I've been now been NED almost 5 years after surgeries to remove mets from brain, both lungs and small intestine.  The brain met was followed up with GammaKnife.  I was in a vaccine trial at UVA but the small intestin met was subsequent to that.

      • November 9, 2014 at 3:35 am
      Randy437
      Participant

      I've been now been NED almost 5 years after surgeries to remove mets from brain, both lungs and small intestine.  The brain met was followed up with GammaKnife.  I was in a vaccine trial at UVA but the small intestin met was subsequent to that.

      • November 11, 2014 at 1:47 pm
      dodgedh2
      Participant

      I was diagnosed at Stage 4 with unknown primary. Surgery with Gamma radiation at margins during surgery. NED for 6-1/2 years now.

      • November 11, 2014 at 1:47 pm
      dodgedh2
      Participant

      I was diagnosed at Stage 4 with unknown primary. Surgery with Gamma radiation at margins during surgery. NED for 6-1/2 years now.

        • November 11, 2014 at 3:03 pm
        oldblue
        Participant

        I have a mate who had SNLB and then axillae lymphadectomy almost 20 years ago. He went to two follow ups with his doctors and thought to hell with it and never went back.

        Back in those days, the operation took 13 hours. He said he decided what will be will be.

        He's a doctor by the way.

        • November 11, 2014 at 3:03 pm
        oldblue
        Participant

        I have a mate who had SNLB and then axillae lymphadectomy almost 20 years ago. He went to two follow ups with his doctors and thought to hell with it and never went back.

        Back in those days, the operation took 13 hours. He said he decided what will be will be.

        He's a doctor by the way.

        • November 11, 2014 at 4:30 pm
        Sheepsandcows
        Participant

        wow! 

        • November 11, 2014 at 4:30 pm
        Sheepsandcows
        Participant

        wow! 

        • November 11, 2014 at 4:34 pm
        Sheepsandcows
        Participant

        After my wow expression 🙂 I must say that sometimes compertalizing works! Living your life as it is, making projects. I am not encouraging denial as a way to facing life, though learning to put some things aside helps to feel life lighter.

        I am impressed with the responses. It brings hope in a very realistic way.

         

        • November 11, 2014 at 4:34 pm
        Sheepsandcows
        Participant

        After my wow expression 🙂 I must say that sometimes compertalizing works! Living your life as it is, making projects. I am not encouraging denial as a way to facing life, though learning to put some things aside helps to feel life lighter.

        I am impressed with the responses. It brings hope in a very realistic way.

         

        • November 11, 2014 at 4:34 pm
        Sheepsandcows
        Participant

        After my wow expression 🙂 I must say that sometimes compertalizing works! Living your life as it is, making projects. I am not encouraging denial as a way to facing life, though learning to put some things aside helps to feel life lighter.

        I am impressed with the responses. It brings hope in a very realistic way.

         

        • November 11, 2014 at 4:30 pm
        Sheepsandcows
        Participant

        wow! 

        • November 11, 2014 at 3:03 pm
        oldblue
        Participant

        I have a mate who had SNLB and then axillae lymphadectomy almost 20 years ago. He went to two follow ups with his doctors and thought to hell with it and never went back.

        Back in those days, the operation took 13 hours. He said he decided what will be will be.

        He's a doctor by the way.

      • November 11, 2014 at 1:47 pm
      dodgedh2
      Participant

      I was diagnosed at Stage 4 with unknown primary. Surgery with Gamma radiation at margins during surgery. NED for 6-1/2 years now.

Viewing 8 reply threads
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