Start Keytruda Wed
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Start Keytruda Wed

› Forums › General Melanoma Community › Start Keytruda Wed

  • Post
    • October 21, 2014 at 7:31 am
    MattF
    Participant

    Hey everyone

    So I am currently on Xgeva injetins fo my bone mets.  And I just finished Yervoy.

     

    Had TAF / MEK Jan – Jun (failed in June and i went downward fast) 

    Ipi Aug – Sept 

    2 rounds of radiation (brain spots and abdomin) over the summer.

     

    Start Keytruda  on Wed 

     

    Thinking this is the last treatment

     

    pretty darn scared.

    Matt

     

     

Viewing 35 reply threads
  • Replies
      • October 21, 2014 at 9:57 am
      s wife
      Participant

      Dear Matt,

      I know you are scared, but remember Keytruda could be the treatment that works for you, so don't give up hope!

      also, remember a lot of people are thinking of you and keeping you in their prayers.

      Sending you many positive thoughts in these difficult times. Hang in there!

      Susannah

      • October 21, 2014 at 9:57 am
      s wife
      Participant

      Dear Matt,

      I know you are scared, but remember Keytruda could be the treatment that works for you, so don't give up hope!

      also, remember a lot of people are thinking of you and keeping you in their prayers.

      Sending you many positive thoughts in these difficult times. Hang in there!

      Susannah

      • October 21, 2014 at 9:57 am
      s wife
      Participant

      Dear Matt,

      I know you are scared, but remember Keytruda could be the treatment that works for you, so don't give up hope!

      also, remember a lot of people are thinking of you and keeping you in their prayers.

      Sending you many positive thoughts in these difficult times. Hang in there!

      Susannah

      • October 21, 2014 at 1:00 pm
      Mat
      Participant

      Matt, wishing you the best as you get started on pembro.  Let's go with the working assumption that you're a forty percent-er!

      • October 21, 2014 at 1:00 pm
      Mat
      Participant

      Matt, wishing you the best as you get started on pembro.  Let's go with the working assumption that you're a forty percent-er!

      • October 21, 2014 at 1:00 pm
      Mat
      Participant

      Matt, wishing you the best as you get started on pembro.  Let's go with the working assumption that you're a forty percent-er!

      • October 21, 2014 at 1:26 pm
      jualonso
      Participant

      Hi Matt,

      I hope keytruda is going to work for you.

      Did you have any response to Ipi ?

      How was the treatment period?

      It can help to people like me that we are following the same path as you

      Thanks and good luck

       

      Jualonso

      • October 21, 2014 at 1:26 pm
      jualonso
      Participant

      Hi Matt,

      I hope keytruda is going to work for you.

      Did you have any response to Ipi ?

      How was the treatment period?

      It can help to people like me that we are following the same path as you

      Thanks and good luck

       

      Jualonso

      • October 21, 2014 at 1:26 pm
      jualonso
      Participant

      Hi Matt,

      I hope keytruda is going to work for you.

      Did you have any response to Ipi ?

      How was the treatment period?

      It can help to people like me that we are following the same path as you

      Thanks and good luck

       

      Jualonso

      • October 21, 2014 at 2:15 pm
      jbronicki
      Participant

      Good luck Matt, I'm keeping this thought in my mind:  It just takes one treatment to work, that's all!  Many many prayers and good thoughts for you.

        • October 21, 2014 at 4:18 pm
        arthurjedi007
        Participant

        Absolutely Jackie.

        I've been there Matt. Zelboraf, Ipi, Taf/Mek. All those medicines failed me at their very first scan. Keytruda I started on May 21st. I got my 1st scan on August 13th. I really didn't believe the medicine was doing anything although I felt about the same as when I started and everyone said I looked better. And 19 tumors shrinking was fantastic. Yeah 4 stayed the same and 7 continued to grow. But finally a medicine that is working at least some for me. Got 3 of the growing ones radiated and they were questiong 2 of the others if they were really growing or not. So on Nov 4th I get my next scan.

        So yeah Matt just hang in there and keep fighting. Try to stay as strong as you can. As you know every day can sometimes be a battle with the physical stuff we fight as well as our thoughts.

        In my opinion Keytruda is the best medicine for me. In many ways I'm stronger now than I was in May. So if I have to do Dr. Rosenberg's TIL I might actually make it through it. But for now Keytruda is for me and hopefully it works for you too.

        Artie

        • October 21, 2014 at 4:18 pm
        arthurjedi007
        Participant

        Absolutely Jackie.

        I've been there Matt. Zelboraf, Ipi, Taf/Mek. All those medicines failed me at their very first scan. Keytruda I started on May 21st. I got my 1st scan on August 13th. I really didn't believe the medicine was doing anything although I felt about the same as when I started and everyone said I looked better. And 19 tumors shrinking was fantastic. Yeah 4 stayed the same and 7 continued to grow. But finally a medicine that is working at least some for me. Got 3 of the growing ones radiated and they were questiong 2 of the others if they were really growing or not. So on Nov 4th I get my next scan.

        So yeah Matt just hang in there and keep fighting. Try to stay as strong as you can. As you know every day can sometimes be a battle with the physical stuff we fight as well as our thoughts.

        In my opinion Keytruda is the best medicine for me. In many ways I'm stronger now than I was in May. So if I have to do Dr. Rosenberg's TIL I might actually make it through it. But for now Keytruda is for me and hopefully it works for you too.

        Artie

        • October 21, 2014 at 4:18 pm
        arthurjedi007
        Participant

        Absolutely Jackie.

        I've been there Matt. Zelboraf, Ipi, Taf/Mek. All those medicines failed me at their very first scan. Keytruda I started on May 21st. I got my 1st scan on August 13th. I really didn't believe the medicine was doing anything although I felt about the same as when I started and everyone said I looked better. And 19 tumors shrinking was fantastic. Yeah 4 stayed the same and 7 continued to grow. But finally a medicine that is working at least some for me. Got 3 of the growing ones radiated and they were questiong 2 of the others if they were really growing or not. So on Nov 4th I get my next scan.

        So yeah Matt just hang in there and keep fighting. Try to stay as strong as you can. As you know every day can sometimes be a battle with the physical stuff we fight as well as our thoughts.

        In my opinion Keytruda is the best medicine for me. In many ways I'm stronger now than I was in May. So if I have to do Dr. Rosenberg's TIL I might actually make it through it. But for now Keytruda is for me and hopefully it works for you too.

        Artie

      • October 21, 2014 at 2:15 pm
      jbronicki
      Participant

      Good luck Matt, I'm keeping this thought in my mind:  It just takes one treatment to work, that's all!  Many many prayers and good thoughts for you.

      • October 21, 2014 at 2:15 pm
      jbronicki
      Participant

      Good luck Matt, I'm keeping this thought in my mind:  It just takes one treatment to work, that's all!  Many many prayers and good thoughts for you.

      • October 21, 2014 at 8:29 pm
      Fen
      Participant

      Wednesday is tomorrow, Matt!!  So glad you don't have to wait and I'm sending huge giant positive thoughts that this is the treatment that does it.    Fen

      • October 21, 2014 at 8:29 pm
      Fen
      Participant

      Wednesday is tomorrow, Matt!!  So glad you don't have to wait and I'm sending huge giant positive thoughts that this is the treatment that does it.    Fen

      • October 21, 2014 at 8:29 pm
      Fen
      Participant

      Wednesday is tomorrow, Matt!!  So glad you don't have to wait and I'm sending huge giant positive thoughts that this is the treatment that does it.    Fen

      • October 22, 2014 at 2:33 am
      MattF
      Participant

      thk you ll so much.

       

      little info…i urrently hve about 7 mets in my bones….7 in my brain….a few soft tissue a few in liver and lungs.

      I had 6 month response to TAF/MEK…when it failed I went down fast

      Ipi seemed o help on aboout the 2nd infusion….and while the Dr knows it may have helped….as I finished Ipi he thinks I need to start Keytruda right away.

      So i like that im getting i…scared about if and ow long i respond etc…all the normal r=thigs that still scare ya.

       

        • October 22, 2014 at 9:27 am
        BrianP
        Participant

        Good luck today Matt. I'll be thinking about you as I get my infusion as well. My first 12 week scan showed reduction. I think that's pretty normal for responders so I think you can expect quick results if you are a responder. I'll pray that you are. 

        Brian

        • October 22, 2014 at 9:27 am
        BrianP
        Participant

        Good luck today Matt. I'll be thinking about you as I get my infusion as well. My first 12 week scan showed reduction. I think that's pretty normal for responders so I think you can expect quick results if you are a responder. I'll pray that you are. 

        Brian

        • October 22, 2014 at 9:27 am
        BrianP
        Participant

        Good luck today Matt. I'll be thinking about you as I get my infusion as well. My first 12 week scan showed reduction. I think that's pretty normal for responders so I think you can expect quick results if you are a responder. I'll pray that you are. 

        Brian

      • October 22, 2014 at 2:33 am
      MattF
      Participant

      thk you ll so much.

       

      little info…i urrently hve about 7 mets in my bones….7 in my brain….a few soft tissue a few in liver and lungs.

      I had 6 month response to TAF/MEK…when it failed I went down fast

      Ipi seemed o help on aboout the 2nd infusion….and while the Dr knows it may have helped….as I finished Ipi he thinks I need to start Keytruda right away.

      So i like that im getting i…scared about if and ow long i respond etc…all the normal r=thigs that still scare ya.

       

      • October 22, 2014 at 2:33 am
      MattF
      Participant

      thk you ll so much.

       

      little info…i urrently hve about 7 mets in my bones….7 in my brain….a few soft tissue a few in liver and lungs.

      I had 6 month response to TAF/MEK…when it failed I went down fast

      Ipi seemed o help on aboout the 2nd infusion….and while the Dr knows it may have helped….as I finished Ipi he thinks I need to start Keytruda right away.

      So i like that im getting i…scared about if and ow long i respond etc…all the normal r=thigs that still scare ya.

       

      • October 22, 2014 at 11:02 am
      Bubbles
      Participant

      Hey Matt,

      Hang in there!!  Wishing you my best today!!  Celeste

      • October 22, 2014 at 11:02 am
      Bubbles
      Participant

      Hey Matt,

      Hang in there!!  Wishing you my best today!!  Celeste

      • October 22, 2014 at 11:02 am
      Bubbles
      Participant

      Hey Matt,

      Hang in there!!  Wishing you my best today!!  Celeste

      • October 23, 2014 at 3:17 pm
      kpcollins31
      Participant

      Hang in there, Matt. Maybe this will be the silver bullet.

      Kevin

      • October 23, 2014 at 3:17 pm
      kpcollins31
      Participant

      Hang in there, Matt. Maybe this will be the silver bullet.

      Kevin

      • October 23, 2014 at 3:17 pm
      kpcollins31
      Participant

      Hang in there, Matt. Maybe this will be the silver bullet.

      Kevin

      • October 23, 2014 at 8:32 pm
      braunerk
      Participant
      I hope it is the silver bullet for you I start Keytruda next week also and am hoping it is a silver bullet for myself.
      • October 23, 2014 at 8:32 pm
      braunerk
      Participant
      I hope it is the silver bullet for you I start Keytruda next week also and am hoping it is a silver bullet for myself.
      • October 23, 2014 at 8:32 pm
      braunerk
      Participant
      I hope it is the silver bullet for you I start Keytruda next week also and am hoping it is a silver bullet for myself.
      • October 24, 2014 at 2:09 pm
      kalisama
      Participant

      Wishing you the very best and hoping first treatment went well. An ironic thing to say, but from where I stand I find you fortunate to have Keytruda as an option. I am still clawing my way through ipi to get to it.

      I have my second ipi infusion this Tuesday, and my only question and goal is how long and what is it going to take to get me to the Keytruda!

      Best of health to you, may this be the one!

      Blessings,
      kali

      • October 24, 2014 at 2:09 pm
      kalisama
      Participant

      Wishing you the very best and hoping first treatment went well. An ironic thing to say, but from where I stand I find you fortunate to have Keytruda as an option. I am still clawing my way through ipi to get to it.

      I have my second ipi infusion this Tuesday, and my only question and goal is how long and what is it going to take to get me to the Keytruda!

      Best of health to you, may this be the one!

      Blessings,
      kali

      • October 24, 2014 at 2:09 pm
      kalisama
      Participant

      Wishing you the very best and hoping first treatment went well. An ironic thing to say, but from where I stand I find you fortunate to have Keytruda as an option. I am still clawing my way through ipi to get to it.

      I have my second ipi infusion this Tuesday, and my only question and goal is how long and what is it going to take to get me to the Keytruda!

      Best of health to you, may this be the one!

      Blessings,
      kali

      • October 27, 2014 at 3:13 am
      MattF
      Participant

      thanks

      so the actual infusion is 30 min and went well. i had a dr apt a blood daw and an Xgeva shot all at the same tim so it was fun.

      as a side note I should mention the night before my 1st treatment I had a small siezure….

      left sided….arm…hand….face head an neck…….since then i have lost a little movement in my left hand. Really te hnd and arm have been weaker and soar since the siezure (which is same time as keytruda and same time as xgeva shot in my left arm…so im kind o guessing its the siezure that messed with motion control.

      otherwise just fatigue folllowing inusion.

      Matt

      • October 27, 2014 at 3:13 am
      MattF
      Participant

      thanks

      so the actual infusion is 30 min and went well. i had a dr apt a blood daw and an Xgeva shot all at the same tim so it was fun.

      as a side note I should mention the night before my 1st treatment I had a small siezure….

      left sided….arm…hand….face head an neck…….since then i have lost a little movement in my left hand. Really te hnd and arm have been weaker and soar since the siezure (which is same time as keytruda and same time as xgeva shot in my left arm…so im kind o guessing its the siezure that messed with motion control.

      otherwise just fatigue folllowing inusion.

      Matt

      • October 27, 2014 at 3:13 am
      MattF
      Participant

      thanks

      so the actual infusion is 30 min and went well. i had a dr apt a blood daw and an Xgeva shot all at the same tim so it was fun.

      as a side note I should mention the night before my 1st treatment I had a small siezure….

      left sided….arm…hand….face head an neck…….since then i have lost a little movement in my left hand. Really te hnd and arm have been weaker and soar since the siezure (which is same time as keytruda and same time as xgeva shot in my left arm…so im kind o guessing its the siezure that messed with motion control.

      otherwise just fatigue folllowing inusion.

      Matt

        • October 27, 2014 at 3:45 am
        casagrayson
        Participant

        Hang in there, Matt!

         

        • October 27, 2014 at 3:45 am
        casagrayson
        Participant

        Hang in there, Matt!

         

        • October 27, 2014 at 3:45 am
        casagrayson
        Participant

        Hang in there, Matt!

         

      • December 8, 2014 at 6:35 pm
      rick1981
      Participant

      Hi Matt, how are you doing? Did you have your 2nd and 3rd infusion already? Hoping for good news!

      • December 8, 2014 at 6:35 pm
      rick1981
      Participant

      Hi Matt, how are you doing? Did you have your 2nd and 3rd infusion already? Hoping for good news!

      • December 8, 2014 at 6:35 pm
      rick1981
      Participant

      Hi Matt, how are you doing? Did you have your 2nd and 3rd infusion already? Hoping for good news!

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