Scans
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Scans

› Forums › General Melanoma Community › Scans

  • Post
    • September 11, 2014 at 10:38 pm
    Julie in SoCal
    Participant

    Hi Friends!

    Do the happy dance with me!  I had scans this week and just wanted to post and say that I am still NED (or NERD- no evidence of recurring disease)!

    Late last year had 5 rice grain to marble sized in transit mets pop up on my upper arm after 5 years of being NED. I had all 4 doses of Ipi with a predictable combination of side effects (headache, pituitary problems, flu like symptoms and arthritis like symptoms), but I watched each met melt away.  Ipi has been a homerun for me!

    I know this isn't true for everyone here, but I wanted to post this as encouragement to others.  

    Gratefully,

    Julie

    Stage 3c, WLE, SNB, LND, HD-INF, GM-CSF, IPI.

Viewing 20 reply threads
  • Replies
      • September 11, 2014 at 10:50 pm
      DZnDef
      Participant

      I'm dancing, Julie, I'm dancing!!!  VERY happy for you!  Congratulations.  I believe you and I have the same "rock star" doc (isn't that what you've called him?)  He's great, isn't he?  Great news for you and great news for the rest of us too!  May you remain a NERD for 100 years!

      Be well – Maggie

      • September 11, 2014 at 10:50 pm
      DZnDef
      Participant

      I'm dancing, Julie, I'm dancing!!!  VERY happy for you!  Congratulations.  I believe you and I have the same "rock star" doc (isn't that what you've called him?)  He's great, isn't he?  Great news for you and great news for the rest of us too!  May you remain a NERD for 100 years!

      Be well – Maggie

        • September 11, 2014 at 11:28 pm
        Julie in SoCal
        Participant

        Oh yes Maggie, we have the same Rock Star!  LOVE HIM!

        May you find NED (or NERD) in your near future!

        Julie

        • September 11, 2014 at 11:28 pm
        Julie in SoCal
        Participant

        Oh yes Maggie, we have the same Rock Star!  LOVE HIM!

        May you find NED (or NERD) in your near future!

        Julie

        • September 11, 2014 at 11:28 pm
        Julie in SoCal
        Participant

        Oh yes Maggie, we have the same Rock Star!  LOVE HIM!

        May you find NED (or NERD) in your near future!

        Julie

      • September 11, 2014 at 10:50 pm
      DZnDef
      Participant

      I'm dancing, Julie, I'm dancing!!!  VERY happy for you!  Congratulations.  I believe you and I have the same "rock star" doc (isn't that what you've called him?)  He's great, isn't he?  Great news for you and great news for the rest of us too!  May you remain a NERD for 100 years!

      Be well – Maggie

      • September 12, 2014 at 12:23 am
      hbecker
      Participant

      So happy for you! Keep dancing!

      • September 12, 2014 at 12:23 am
      hbecker
      Participant

      So happy for you! Keep dancing!

      • September 12, 2014 at 12:23 am
      hbecker
      Participant

      So happy for you! Keep dancing!

      • September 12, 2014 at 1:40 am
      SABKLYN
      Participant

      Terrific, Julie!  Here's to Nerdom for one and all!!

      • September 12, 2014 at 1:40 am
      SABKLYN
      Participant

      Terrific, Julie!  Here's to Nerdom for one and all!!

      • September 12, 2014 at 1:40 am
      SABKLYN
      Participant

      Terrific, Julie!  Here's to Nerdom for one and all!!

      • September 12, 2014 at 1:40 am
      SABKLYN
      Participant

      Terrific, Julie!  Here's to Nerdom for one and all!!

      • September 12, 2014 at 1:40 am
      SABKLYN
      Participant

      Terrific, Julie!  Here's to Nerdom for one and all!!

      • September 12, 2014 at 1:40 am
      SABKLYN
      Participant

      Terrific, Julie!  Here's to Nerdom for one and all!!

      • September 12, 2014 at 1:48 am
      BrianP
      Participant

      NERDs rock! And so do you Julie. Congrats. 

      • September 12, 2014 at 1:48 am
      BrianP
      Participant

      NERDs rock! And so do you Julie. Congrats. 

      • September 12, 2014 at 1:48 am
      BrianP
      Participant

      NERDs rock! And so do you Julie. Congrats. 

      • September 12, 2014 at 3:18 am
      Bubbles
      Participant

      Wonderful….very.  c

      • September 12, 2014 at 3:18 am
      Bubbles
      Participant

      Wonderful….very.  c

      • September 12, 2014 at 3:18 am
      Bubbles
      Participant

      Wonderful….very.  c

      • September 12, 2014 at 9:28 am
      Mat
      Participant

      Great news Julie!  I hope this means you'll get to your goal of moving back to the Far East.

      • September 12, 2014 at 9:28 am
      Mat
      Participant

      Great news Julie!  I hope this means you'll get to your goal of moving back to the Far East.

        • September 12, 2014 at 8:57 pm
        jbronicki
        Participant

        wonderful news!

         

        • September 12, 2014 at 8:57 pm
        jbronicki
        Participant

        wonderful news!

         

        • September 12, 2014 at 8:57 pm
        jbronicki
        Participant

        wonderful news!

         

      • September 12, 2014 at 9:28 am
      Mat
      Participant

      Great news Julie!  I hope this means you'll get to your goal of moving back to the Far East.

Viewing 20 reply threads
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