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Scans

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  • Post
    • September 11, 2014 at 10:38 pm
    Julie in SoCal
    Participant

      Hi Friends!

      Do the happy dance with me!  I had scans this week and just wanted to post and say that I am still NED (or NERD- no evidence of recurring disease)!

      Late last year had 5 rice grain to marble sized in transit mets pop up on my upper arm after 5 years of being NED. I had all 4 doses of Ipi with a predictable combination of side effects (headache, pituitary problems, flu like symptoms and arthritis like symptoms), but I watched each met melt away.  Ipi has been a homerun for me!

      I know this isn't true for everyone here, but I wanted to post this as encouragement to others.  

      Gratefully,

      Julie

      Stage 3c, WLE, SNB, LND, HD-INF, GM-CSF, IPI.

    Viewing 20 reply threads
    • Replies
        • September 11, 2014 at 10:50 pm
        DZnDef
        Participant

          I'm dancing, Julie, I'm dancing!!!  VERY happy for you!  Congratulations.  I believe you and I have the same "rock star" doc (isn't that what you've called him?)  He's great, isn't he?  Great news for you and great news for the rest of us too!  May you remain a NERD for 100 years!

          Be well – Maggie

          • September 11, 2014 at 10:50 pm
          DZnDef
          Participant

            I'm dancing, Julie, I'm dancing!!!  VERY happy for you!  Congratulations.  I believe you and I have the same "rock star" doc (isn't that what you've called him?)  He's great, isn't he?  Great news for you and great news for the rest of us too!  May you remain a NERD for 100 years!

            Be well – Maggie

            • September 11, 2014 at 10:50 pm
            DZnDef
            Participant

              I'm dancing, Julie, I'm dancing!!!  VERY happy for you!  Congratulations.  I believe you and I have the same "rock star" doc (isn't that what you've called him?)  He's great, isn't he?  Great news for you and great news for the rest of us too!  May you remain a NERD for 100 years!

              Be well – Maggie

                • September 11, 2014 at 11:28 pm
                Julie in SoCal
                Participant

                  Oh yes Maggie, we have the same Rock Star!  LOVE HIM!

                  May you find NED (or NERD) in your near future!

                  Julie

                  • September 11, 2014 at 11:28 pm
                  Julie in SoCal
                  Participant

                    Oh yes Maggie, we have the same Rock Star!  LOVE HIM!

                    May you find NED (or NERD) in your near future!

                    Julie

                    • September 11, 2014 at 11:28 pm
                    Julie in SoCal
                    Participant

                      Oh yes Maggie, we have the same Rock Star!  LOVE HIM!

                      May you find NED (or NERD) in your near future!

                      Julie

                    • September 12, 2014 at 12:23 am
                    hbecker
                    Participant

                      So happy for you! Keep dancing!

                      • September 12, 2014 at 12:23 am
                      hbecker
                      Participant

                        So happy for you! Keep dancing!

                        • September 12, 2014 at 12:23 am
                        hbecker
                        Participant

                          So happy for you! Keep dancing!

                          • September 12, 2014 at 1:40 am
                          SABKLYN
                          Participant

                            Terrific, Julie!  Here's to Nerdom for one and all!!

                            • September 12, 2014 at 1:40 am
                            SABKLYN
                            Participant

                              Terrific, Julie!  Here's to Nerdom for one and all!!

                              • September 12, 2014 at 1:40 am
                              SABKLYN
                              Participant

                                Terrific, Julie!  Here's to Nerdom for one and all!!

                                • September 12, 2014 at 1:40 am
                                SABKLYN
                                Participant

                                  Terrific, Julie!  Here's to Nerdom for one and all!!

                                  • September 12, 2014 at 1:40 am
                                  SABKLYN
                                  Participant

                                    Terrific, Julie!  Here's to Nerdom for one and all!!

                                    • September 12, 2014 at 1:40 am
                                    SABKLYN
                                    Participant

                                      Terrific, Julie!  Here's to Nerdom for one and all!!

                                      • September 12, 2014 at 1:48 am
                                      BrianP
                                      Participant

                                        NERDs rock! And so do you Julie. Congrats. 

                                        • September 12, 2014 at 1:48 am
                                        BrianP
                                        Participant

                                          NERDs rock! And so do you Julie. Congrats. 

                                          • September 12, 2014 at 1:48 am
                                          BrianP
                                          Participant

                                            NERDs rock! And so do you Julie. Congrats. 

                                            • September 12, 2014 at 3:18 am
                                            Bubbles
                                            Participant

                                              Wonderful….very.  c

                                              • September 12, 2014 at 3:18 am
                                              Bubbles
                                              Participant

                                                Wonderful….very.  c

                                                • September 12, 2014 at 3:18 am
                                                Bubbles
                                                Participant

                                                  Wonderful….very.  c

                                                  • September 12, 2014 at 9:28 am
                                                  Mat
                                                  Participant

                                                    Great news Julie!  I hope this means you'll get to your goal of moving back to the Far East.

                                                    • September 12, 2014 at 9:28 am
                                                    Mat
                                                    Participant

                                                      Great news Julie!  I hope this means you'll get to your goal of moving back to the Far East.

                                                        • September 12, 2014 at 8:57 pm
                                                        jbronicki
                                                        Participant

                                                          wonderful news!

                                                           

                                                          • September 12, 2014 at 8:57 pm
                                                          jbronicki
                                                          Participant

                                                            wonderful news!

                                                             

                                                            • September 12, 2014 at 8:57 pm
                                                            jbronicki
                                                            Participant

                                                              wonderful news!

                                                               

                                                            • September 12, 2014 at 9:28 am
                                                            Mat
                                                            Participant

                                                              Great news Julie!  I hope this means you'll get to your goal of moving back to the Far East.

                                                          Viewing 20 reply threads
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