Finished Treatment…Now the Wait
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Finished Treatment…Now the Wait

› Forums › General Melanoma Community › Finished Treatment…Now the Wait

  • Post
    • February 8, 2014 at 4:41 pm
    JoshF
    Participant

    Well it's been 2 weeks now that I've been home for last round of IL2. I did another 11 bags which was crazy because docs were pegging me at less the 2nd go around. I managed some side effects a little better…mouth sores etc.. After 2 weeks I feel great…skin is smooth as baby butt after major exfoliation. Though I'm itchy, itchy…itchy!! Also, still not creating much salivia which is frustrating…anyone experience that? Just glad to be done and now wait for scans on Feb 17th so just trying to manage that anxiety. Also I don't get results until 19th…usually get same day but doc will be out and trial I'm in has 17th as last day per guidelines.

    NowI'm left with all the questions…am I responder….if so, is it complete…partial? I know these are things that can't be answered immeadiately, specfically is it duable. Only time will tell so I'm trying to go one step at a time. Also, if I have growth or more disease…what's next? What do I do? Brave souls on this site…I read how much so many of you have gone through and try to prepare myself that this may be my life. Good thing is…this forum is full of support and good advice. So know….I appreciate you all.

    Here's to 2014 being a year of great advancements in Melanoma Treatments!!!!

    Josh

Viewing 17 reply threads
  • Replies
      • February 8, 2014 at 7:06 pm
      POW
      Participant

      Way to go, Josh! I'm happy for you that you were able to complete the whole course of treatment and even happier that it's over and you are starting to feel good again. It sounds as though you, like Jerry, would descirbe IL-2 as "tough but do-able".  Good for you!

       

      • February 8, 2014 at 7:06 pm
      POW
      Participant

      Way to go, Josh! I'm happy for you that you were able to complete the whole course of treatment and even happier that it's over and you are starting to feel good again. It sounds as though you, like Jerry, would descirbe IL-2 as "tough but do-able".  Good for you!

       

      • February 8, 2014 at 7:06 pm
      POW
      Participant

      Way to go, Josh! I'm happy for you that you were able to complete the whole course of treatment and even happier that it's over and you are starting to feel good again. It sounds as though you, like Jerry, would descirbe IL-2 as "tough but do-able".  Good for you!

       

        • February 8, 2014 at 10:30 pm
        JoshF
        Participant

        Yes Jerry provided a lot of advice & info to me. He was right on. It is tough but can be done and recovery is fairly quick for most people. Now if we can get better CR rates with treatments I'd be a really happy man!!! Hope IL2 did trick for me…I know it's offer durable responses when it "syncs" with your body. At very least I hope they can glean something from my treatment as it relates to combo therapies. I know Jimmy B is proponent of HD IL2 & ipi in combo. We'll see!!! Thanks for reaching out!!!

        • February 8, 2014 at 10:30 pm
        JoshF
        Participant

        Yes Jerry provided a lot of advice & info to me. He was right on. It is tough but can be done and recovery is fairly quick for most people. Now if we can get better CR rates with treatments I'd be a really happy man!!! Hope IL2 did trick for me…I know it's offer durable responses when it "syncs" with your body. At very least I hope they can glean something from my treatment as it relates to combo therapies. I know Jimmy B is proponent of HD IL2 & ipi in combo. We'll see!!! Thanks for reaching out!!!

        • February 8, 2014 at 10:30 pm
        JoshF
        Participant

        Yes Jerry provided a lot of advice & info to me. He was right on. It is tough but can be done and recovery is fairly quick for most people. Now if we can get better CR rates with treatments I'd be a really happy man!!! Hope IL2 did trick for me…I know it's offer durable responses when it "syncs" with your body. At very least I hope they can glean something from my treatment as it relates to combo therapies. I know Jimmy B is proponent of HD IL2 & ipi in combo. We'll see!!! Thanks for reaching out!!!

      • February 8, 2014 at 7:29 pm
      Jahendry12
      Participant

      Thanks for the update Josh.  Glad you are starting to feel better.  Hoping for positive results!

      And I'm with you – keep the advancements for Melanoma treatments comin'!

      Julie

      • February 8, 2014 at 7:29 pm
      Jahendry12
      Participant

      Thanks for the update Josh.  Glad you are starting to feel better.  Hoping for positive results!

      And I'm with you – keep the advancements for Melanoma treatments comin'!

      Julie

      • February 8, 2014 at 7:29 pm
      Jahendry12
      Participant

      Thanks for the update Josh.  Glad you are starting to feel better.  Hoping for positive results!

      And I'm with you – keep the advancements for Melanoma treatments comin'!

      Julie

        • February 8, 2014 at 7:36 pm
        tschmith
        Participant

        Hoping for great results and glad you did so well.  I was to start IL2 on Monday but it's been postponed until the 24th because I might qualify for a clinical trial at NIH.  Going to meet with them on Tuesday.

        Best wishes to you!

        Terrie

        • February 8, 2014 at 7:36 pm
        tschmith
        Participant

        Hoping for great results and glad you did so well.  I was to start IL2 on Monday but it's been postponed until the 24th because I might qualify for a clinical trial at NIH.  Going to meet with them on Tuesday.

        Best wishes to you!

        Terrie

        • February 8, 2014 at 7:36 pm
        tschmith
        Participant

        Hoping for great results and glad you did so well.  I was to start IL2 on Monday but it's been postponed until the 24th because I might qualify for a clinical trial at NIH.  Going to meet with them on Tuesday.

        Best wishes to you!

        Terrie

        • February 8, 2014 at 10:24 pm
        JoshF
        Participant

        Great!!! What trial? Whatever course you go…I'll be praying for good results for you!

        • February 8, 2014 at 10:24 pm
        JoshF
        Participant

        Great!!! What trial? Whatever course you go…I'll be praying for good results for you!

        • February 8, 2014 at 10:24 pm
        JoshF
        Participant

        Great!!! What trial? Whatever course you go…I'll be praying for good results for you!

        • February 10, 2014 at 2:31 pm
        Maureen038
        Participant

        Terri,

         Let us know what treatment you decide to do. Wishing you great success!!

        Maureen

        • February 10, 2014 at 2:31 pm
        Maureen038
        Participant

        Terri,

         Let us know what treatment you decide to do. Wishing you great success!!

        Maureen

        • February 10, 2014 at 2:31 pm
        Maureen038
        Participant

        Terri,

         Let us know what treatment you decide to do. Wishing you great success!!

        Maureen

      • February 9, 2014 at 12:21 am
      kpcollins31
      Participant
      Congrats on finishing the treatment, Josh. That seems to ne a tough one. Good luck on the upcoming scans.

      Kevin

      • February 9, 2014 at 12:21 am
      kpcollins31
      Participant
      Congrats on finishing the treatment, Josh. That seems to ne a tough one. Good luck on the upcoming scans.

      Kevin

      • February 9, 2014 at 12:21 am
      kpcollins31
      Participant
      Congrats on finishing the treatment, Josh. That seems to ne a tough one. Good luck on the upcoming scans.

      Kevin

      • February 9, 2014 at 4:32 am
      BrianP
      Participant

      Happy for you Josh and praying for good scans for you on the 17th.  I just gotta believe those CR numbers are going to be much improved in combination with IPI. 

      Brian

      • February 9, 2014 at 4:32 am
      BrianP
      Participant

      Happy for you Josh and praying for good scans for you on the 17th.  I just gotta believe those CR numbers are going to be much improved in combination with IPI. 

      Brian

      • February 9, 2014 at 4:32 am
      BrianP
      Participant

      Happy for you Josh and praying for good scans for you on the 17th.  I just gotta believe those CR numbers are going to be much improved in combination with IPI. 

      Brian

        • February 10, 2014 at 12:12 am
        Brendan
        Participant

        Josh,

        Great news that you were able to complete the treatment.  Good luck to you.

        Brendan

         

        • February 10, 2014 at 2:27 pm
        Maureen038
        Participant

        Wow that's fantastic Josh that you finished a grueling treatment ! Praying and wishing for you the very best news!!!

        Maureen

        • February 10, 2014 at 2:27 pm
        Maureen038
        Participant

        Wow that's fantastic Josh that you finished a grueling treatment ! Praying and wishing for you the very best news!!!

        Maureen

        • February 10, 2014 at 2:27 pm
        Maureen038
        Participant

        Wow that's fantastic Josh that you finished a grueling treatment ! Praying and wishing for you the very best news!!!

        Maureen

        • February 10, 2014 at 12:12 am
        Brendan
        Participant

        Josh,

        Great news that you were able to complete the treatment.  Good luck to you.

        Brendan

         

        • February 10, 2014 at 12:12 am
        Brendan
        Participant

        Josh,

        Great news that you were able to complete the treatment.  Good luck to you.

        Brendan

         

      • February 10, 2014 at 3:21 pm
      Rebecca and Bob
      Participant

      Josh,

       

      We will be thinking on you on the 17th! Here's praying for great results.

       

      Rebecca

      • February 10, 2014 at 3:21 pm
      Rebecca and Bob
      Participant

      Josh,

       

      We will be thinking on you on the 17th! Here's praying for great results.

       

      Rebecca

      • February 10, 2014 at 3:21 pm
      Rebecca and Bob
      Participant

      Josh,

       

      We will be thinking on you on the 17th! Here's praying for great results.

       

      Rebecca

      • February 10, 2014 at 5:15 pm
      MattF
      Participant

      Josh,

      Good to hear.

      I go for scans on the 14th…after 2 months on combo TAF +Mek.

      Seems most of my unpleasantness is joint pain and headache etc. but def doable.

       

      Here is hoping to good results on your scans.

      Hope to talk soon.

      Matt

      • February 10, 2014 at 5:15 pm
      MattF
      Participant

      Josh,

      Good to hear.

      I go for scans on the 14th…after 2 months on combo TAF +Mek.

      Seems most of my unpleasantness is joint pain and headache etc. but def doable.

       

      Here is hoping to good results on your scans.

      Hope to talk soon.

      Matt

      • February 10, 2014 at 5:15 pm
      MattF
      Participant

      Josh,

      Good to hear.

      I go for scans on the 14th…after 2 months on combo TAF +Mek.

      Seems most of my unpleasantness is joint pain and headache etc. but def doable.

       

      Here is hoping to good results on your scans.

      Hope to talk soon.

      Matt

Viewing 17 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics