Stage 3B – 2 years NED
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Stage 3B – 2 years NED

› Forums › General Melanoma Community › Stage 3B – 2 years NED

  • Post
    • October 15, 2013 at 11:33 pm
    rlowe
    Participant
    I very rarely post, but check in regularly. I’m sending good mojo to everyone in their battle with the beast. I’m happy to say that I reached my 2 year NED mark in September with help from Vanderbilt and the 10mg ipi trial. I only had 3 infusions before my pituitary couldn’t take it though. I now move to 6 month scans woo hoo!!

    To everyone fighting..strength to those whose fight is over…peace

    Rusty

Viewing 8 reply threads
  • Replies
      • October 16, 2013 at 12:40 am
      SABKLYN
      Participant
      Excellent… Wish you continued good health!
      • October 16, 2013 at 12:40 am
      SABKLYN
      Participant
      Excellent… Wish you continued good health!
      • October 16, 2013 at 12:40 am
      SABKLYN
      Participant
      Excellent… Wish you continued good health!
      • October 16, 2013 at 1:27 am
      Kim41
      Participant
      So glad to hear your good news. I am 3a and just celebrating 2 yrs ned. I pray for continued good health for you.
      • October 16, 2013 at 1:27 am
      Kim41
      Participant
      So glad to hear your good news. I am 3a and just celebrating 2 yrs ned. I pray for continued good health for you.
      • October 16, 2013 at 1:27 am
      Kim41
      Participant
      So glad to hear your good news. I am 3a and just celebrating 2 yrs ned. I pray for continued good health for you.
      • October 16, 2013 at 1:44 am
      Tina D
      Participant

      Good news! 🙂  . Just a question… I also only had 3 doses due to my pituitary. Were you able to completely taper off the prednisone? I am still on 5 but would very much like to try tapering. Dr seems reluctant abt it….

      Thanks and congratualtions on your good reports 🙂

      Tina

        • October 16, 2013 at 3:04 pm
        rlowe
        Participant
        No I have not been able to come off. I was tested after 6 months to check my adrenal function, but there was nothing. They think I will have to be on prednisone forever

        I am sorry to hear you have had issues too. I am just glad for no colitis. Yuk

        • October 17, 2013 at 2:52 am
        Tina D
        Participant

        I agree… the pituitary issue wasn't too bad, esp after they got that terrible headache resolved 🙂   . I am only on 5mg, which is considered replacement dosage, and I only have one adrenal gland anyway… but was hoping to taper off. Probably not too realistic,ha. Thank you…

        Tina

        • October 17, 2013 at 2:52 am
        Tina D
        Participant

        I agree… the pituitary issue wasn't too bad, esp after they got that terrible headache resolved 🙂   . I am only on 5mg, which is considered replacement dosage, and I only have one adrenal gland anyway… but was hoping to taper off. Probably not too realistic,ha. Thank you…

        Tina

        • October 17, 2013 at 2:52 am
        Tina D
        Participant

        I agree… the pituitary issue wasn't too bad, esp after they got that terrible headache resolved 🙂   . I am only on 5mg, which is considered replacement dosage, and I only have one adrenal gland anyway… but was hoping to taper off. Probably not too realistic,ha. Thank you…

        Tina

        • October 16, 2013 at 3:04 pm
        rlowe
        Participant
        No I have not been able to come off. I was tested after 6 months to check my adrenal function, but there was nothing. They think I will have to be on prednisone forever

        I am sorry to hear you have had issues too. I am just glad for no colitis. Yuk

        • October 16, 2013 at 3:04 pm
        rlowe
        Participant
        No I have not been able to come off. I was tested after 6 months to check my adrenal function, but there was nothing. They think I will have to be on prednisone forever

        I am sorry to hear you have had issues too. I am just glad for no colitis. Yuk

      • October 16, 2013 at 1:44 am
      Tina D
      Participant

      Good news! 🙂  . Just a question… I also only had 3 doses due to my pituitary. Were you able to completely taper off the prednisone? I am still on 5 but would very much like to try tapering. Dr seems reluctant abt it….

      Thanks and congratualtions on your good reports 🙂

      Tina

      • October 16, 2013 at 1:44 am
      Tina D
      Participant

      Good news! 🙂  . Just a question… I also only had 3 doses due to my pituitary. Were you able to completely taper off the prednisone? I am still on 5 but would very much like to try tapering. Dr seems reluctant abt it….

      Thanks and congratualtions on your good reports 🙂

      Tina

Viewing 8 reply threads
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